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        Cluster Headache Help and Support >> Cluster Headache Specific >> Need help finding LSA
        
(Message started by: littlefoot on Aug 8^th, 2007, 3:52pm)

Title: Need help finding LSA
Post by littlefoot on Aug 8^th, 2007, 3:52pm

Don't have a lot of time right now. Did want to ask if anyone can tell me where to go to get the LSA.

Will check back soon and post more.

littlefoot

Title: Re: Need help finding LSA
Post by Bob P on Aug 8^th, 2007, 3:59pm

May want to try Miguel. He's usually sitting in the black BMW at the corner of 81st & Broadway.

Title: Re: Need help finding LSA
Post by Brewcrew on Aug 8^th, 2007, 4:14pm

Hmmmm...First post, wants illicit drugs.

Title: Re: Need help finding LSA
Post by Guiseppi on Aug 8^th, 2007, 4:21pm

What's really scary is I'm a cop and have NO idea what LSA is?????? Is he just a bad speller???

Guiseppi

Title: Re: Need help finding LSA
Post by Brewcrew on Aug 8^th, 2007, 4:25pm

LSA, also known as d-lysergic acid amide, d-lysergamide, ergine, and LA-111, is an alkaloid of the ergoline family that occurs in various species of vines of the Convolvulaceae and some species of fungi. As the dominant alkaloid in the hallucinogenic seeds of Rivea corymbosa (ololiuhqui), Argyreia nervosa (Hawaiian baby woodrose) and Ipomoea tricolor (morning glories, tlitliltzin), it is often stated that ergine and/or isoergine (its epimer) is responsible for the psychedelic activity. In fact, the effects of synthetic LSA and iso-LSA are not particularly psychedelic, see Mixing the Kykeon below for a summary of human trials, and Chapter 17 and entry #26 of TiHKAL for further discussion. Whether or not these compounds account for the hallucinogenic effects of the seeds remains unclear. Ergine is a DEA schedule III drug in the United States.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 8^th, 2007, 4:32pm

It's been several years (3) since I had a ch and many more since I have been to this board. I had really begun to think that I was not going to get them any more due to have been involved in "energy therapy" and being told that they would not return.

As most of you know, not many people understand these headaches and I am currently in a living situation where I do not have transportation, health insurance and some rather strict guidelines as to what I can do when. The expectation of the people around me, is that the headaches cannot be that bad and that I can wait 6 months to get in to see a doctor on some indigent program.

I know from 20+ years of having these headaches that it is NOT that simple and you get referred from one doc to another, and all the other BS that goes with it. I don't want to try a bunch of different stuff that is not going to work.

I only have access to this lap top for short intervals at a time. My other option is to catch a bus, spend 2 hours to get to the library only to be able to use thier computer for an hour.

If anyone can direct me to what some of the most promising treatments are I would greatly appreciate it. I should have this computer for another couple of hours.

Thanks!!!!
littlefoot

Title: Re: Need help finding LSA
Post by vietvet2tours on Aug 8^th, 2007, 4:38pm

on 08/08/07 at 16:32:33, littlefoot wrote:

Get thee some oxygen fool.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 8^th, 2007, 4:40pm

I have tired oxygen, unfortunately it has never done anything for me.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 8^th, 2007, 4:43pm

The only thing I have used at home with any success is the injectable form of Imitrex. I am going to look into getting a prescription and then financial assistance to get it filled. I have had to use 3 injections to get rid of one headache so it gets pricey...

Title: Re: Need help finding LSA
Post by Brewcrew on Aug 8^th, 2007, 4:47pm

Have you read all the material in the links at the left?

None of them say "LSA," so if you've read the rest and have chosen to discard it all, I'm afraid you're sorta outta luck.

Title: Re: Need help finding LSA
Post by tommyD on Aug 8^th, 2007, 4:55pm

Quote:

Get thee some oxygen fool

Indeed. Oxygen works well with LSA. But there is nothing foolish about it. Many who had oxygen not work well often find it works much better in combination with indole-ring hallucinogens such as LSA.

Rivea corymbosa seeds, known as ololiuqui, can be purchased legally for the purpose of growing Rivea corymbosa, a flowering vine with heart-shaped leaves and trumpet shaped flowers.

It is illegal to eat the seeds, even for the purpose of relieving cluster headaches.

See the LSA faq at www.clusterbusters.com/faqlsa.htm - there are links to gardeing suppliers there. Please read the entire faq.

-tommyD

And by the way, luck has nothing to do with it.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 8^th, 2007, 5:10pm

Thanks Tommy,

I was looking around the website earlier today when I had this computer but couldn't get to where I was at. I have a friend working on getting me a computer but don't know when that will be. Mean time I have limited access and and trying to make the most of my time.

Title: Re: Need help finding LSA
Post by tommyD on Aug 8^th, 2007, 5:17pm

Oh, hey while you're online, if possible, see:

http://www.clustermasx.com/

Oxygen also works much better with a clustermasx, developed for clusterheads by a clusterhead.

-tommyD

Title: Re: Need help finding LSA
Post by littlefoot on Aug 8^th, 2007, 6:09pm

Thanks again Tommy. I looked at the website you sent. Didn't see a place to order it though. Haven't checked it out completely.

Feeling (mentally and emotionally) better already!!! I can "hold on, help is on the way"...

littlefoot

Title: Re: Need help finding LSA
Post by BMoneeTheMoneeMan on Aug 9^th, 2007, 11:59am

on 08/08/07 at 16:43:32, littlefoot wrote:

I have had to use 3 injections to get rid of one headache so it gets pricey...

I can see that getting pricey pretty quick. Last I heard, burial was around $9,000, cremation is only about $1500.

I'm not trying to be mean, please dont take offense, but taking 3 full doses of any triptan is a really dumb idea. Please follow the guidelines set forth by your doctor or the maker of the drug. I am quite sure neither of them said to take 3 doses. That is very dangerous.

PF wishes
B$

Title: Re: Need help finding LSA
Post by horsegirl on Aug 9^th, 2007, 2:05pm

try a predisone taper , and at the same time have him give you a verapimil subscription. Its better to prevent the ha instead of waiting till they come and using potentialy bad for you drugs like imatrex , Keep trying the o2 also it should work on most of your ha,

Title: Re: Need help finding LSA
Post by littlefoot on Aug 9^th, 2007, 10:51pm

MoneMan,

Well, whether you want to believe it or not my neurologist, did tell me that I could use up to 3 imitrex injections in a 24 hour period. This was back in1996. His position was that if it worked and kept me out of the ER than "go ahead". The only problem he had with me using that much, is he didn't think it was very "cost effective" and hated the idea of the "maker" making so much money. I was also on verapamil along with a lot of other meds. I had great insurance back then, working for the state of Montana. I didn't find out until much later how dangerous it was to be using that much imitrex... If I told you the other things this doc had mean on you probably wouldn't believe it.

Thanks for your concern though.

littlefoot

Title: Re: Need help finding LSA
Post by nani on Aug 10^th, 2007, 12:08am

Are you saying you took 3 shots for one attack, or over one day?
How long do your headaches last unmedicated?

Title: Re: Need help finding LSA
Post by BMoneeTheMoneeMan on Aug 10^th, 2007, 2:36am

on 08/08/07 at 16:43:32, littlefoot wrote:

I have had to use 3 injections to get rid of one headache

Most indications say 2 doses in 24 hours. If you doc says to use 3 in 24 hours, it's probably ok. to use 3 doses for 1 headache is really bad news.

When you tried O2, did you use it at 15 litres per minute with a non-rebreather? U might want to give it another shot, it works for a lot of us.
For some of us it doesnt make the CH go away completely, but it does kick it back a couple notches in terms of intensity. For others, they get total relief in minutes......but you have to use it properly.
If I were you, i might try it again.

Also maybe try caffeine. Caffeine is a vaso constrictor. Coffee, cola, red bull, any of it should help.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 10^th, 2007, 9:53pm

Are you saying you took 3 shots for one attack, or over one day?
How long do your headaches last unmedicated?

Yes Nan, I did that many times, more often than not if I had the imitrex available.

I don't know that I ever used the oxygen the way you are describing it. I've kind of got the impression that the doc's don't really know how to prescribe it so that it is effective for ch. Is that true?

I will have to come back and look into it more once I am a bit more rested. Had a very strange experience, at least for me, with the headache the other night and haven't recovered from it. It would get really bad for 3-6 hours, then let up for 2 and come back for 3, let up for 3, come back for 4, ect. It was really bad, more than it wasn't and this went on for over 24 hours. I vomitted violently through out the whole bout.
Never had that happen before, off/on thing and the intense vomitting. Got to where I was having dry heaves, which I have never had.

You folks are really great. I would be feeling pretty werid and alone right now if I weren't in touch with you all.
THANK YOU!!!

Littlefoot

Title: Re: Need help finding LSA
Post by nani on Aug 10^th, 2007, 10:06pm

For clarity, please...
do your headaches last 24 hours?

I ask because clusters generally have a duration of 30 minutes to 2 hours. Some people have had a longer one, but that is rare. And a 24 hour cluster, even at a mid level kip, would likely have someone throwing themselves under a bus.

Have you been diagnosed by a neurologist?

Title: Re: Need help finding LSA
Post by rolo65 on Aug 10^th, 2007, 10:10pm

on 08/08/07 at 16:14:57, Brewcrew wrote:

Hmmmm...First post, wants illicit drugs.

Stop taking so much trex, if you use it for every hit it becomes less effective and gives those long rebounds. Follow the O2 tips and it works if you keep taking a breath when the bag is full at 10+ LPM. Those of us (clusterheads) that are chronic swear by it because it works the best without side effects (rebounds) and keeps its effectiveness over time.

PF wishes, Rolo.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 10^th, 2007, 10:46pm

Rolo,

I don't use trex at all anymore. I can't afford it. I was using that much many years ago, when I had great insurance and a doc that thought he was helping me. I have nothing, no meds or insurance at all right now. Well, I guess thats not entirely true as I did order an alternative med, but have yet to try it.

I don't know why that headache was so intense and werid the other night.

Thanks for your concern,

littlefoot

Title: Re: Need help finding LSA
Post by nani on Aug 10^th, 2007, 10:49pm

littlefoot, if, in fact you have another headache type...it's possible the alternative won't help at all.
Can you describe the location of the pain?
The duration?
I'm not sure why you haven't addressed my questions directly.

Title: Re: Need help finding LSA
Post by littlefoot on Aug 10^th, 2007, 11:16pm

Nani,

I didn't see your post. Sorry, I am too exhausted to be here, should try to get some sleep. My headaches have typically lasted 2-4 hours. What happened the other night was, like I said, werid....The 1st time I have EVER experienced anything like it.

Yes, I have seen numerous neurologist's over the almost 30 years (29 to be exact) I have been having cluster (diagnosed many times) headaches. They started when I was 21 yo. They always come behind my left eye and the pain is indescribable. There is probably nothing I wouldn't do to get out from underneath it, short of suicide.
Have I answered enough of your questions????

Title: Re: Need help finding LSA
Post by nani on Aug 10^th, 2007, 11:24pm

Thank you.
So, in the past you've used 3 shots in a 4 hour period. That could be deadly. 3 shots in 24 hours is much different than 3 shots in 4 hours.

Alternative treatments that work for CH may not work for other HA types, that's why I asked.

Good luck to you.

Title: Re: Need help finding LSA
Post by UN solved on Aug 11^th, 2007, 12:13am

Nani read the same thing I did. At first, I thought you did not have clusters at all ... now, I'm just not so sure.

It seems that clusterheads are often suspicious when we hear or read of someone else having this dreadful condition since it is pretty rare and often misdiagnosed.

Hope you find some relief soon. (And a good doctor)

Goodluck

UNsolved 8)

Title: Re: Need help finding LSA"
Post by Maffumatt on Aug 11^th, 2007, 1:27pm

google this "hbwr seeds"

Title: Re: Need help finding LSA
Post by Jonny on Aug 11^th, 2007, 1:37pm

::)

Title: Re: Need help finding LSA
Post by horsegirl on Aug 12^th, 2007, 2:27pm

2 to 4 hrs typicaly is long, so sorry, by the way i ,vomit when i get a very bad hit only. is there a doctor that knows you that can just call in a perscription of verapamil at least 120 three times a day. and maybe a predisone taper both are very cheap , here in iowa at walmart i think it was 12 for verap and 10 bucks for predisone, the 02 is a little much. but those 2 scripts is in my oppinion the best , if you can't get the o2. they pretty much elimanate my ha, truely! can i ask you how long the peek of your ha last. the reason we ask so many ? its the only way we can understand your situation so we can help, and you sound like your realy due for a break.