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        Cluster Headache Help and Support >> Cluster Headache Specific >> ??? strange ???
        
(Message started by: Lenny on Jul 21^st, 2007, 1:43pm)

Title: ??? strange ???
Post by Lenny on Jul 21^st, 2007, 1:43pm

I have been in re-mission since this past november,untill i starting getting hit on july12.....The only strange thing about this, nothing past a kip 5 (beleive me i am not complaining).

My past history as far as getting hit's have been 7's and above (with a shadow here and there). Another strange thing is the beast,for whatever reason has failed to wake me so far....In the past he use to visit me day and night(i never had that alarm clock type visit).....

As far as before he would wake me appr. 90% of the time (within an hour of sleep)....Untill kudrow started to have me take cafergot 1 hour prior to sleep,if i had to guess,i would get 5 good nights of sleep using it...

This is all very new to me this pattern, it just stays there right behind my eye just to let me know that he is thinking of me........I am ready for him but he is not comming.....Anyone else experiance this ??? PFDAN...Lenny

Title: Re: ??? strange ???
Post by DennisM1045 on Jul 21^st, 2007, 3:59pm

This sounds like a good change to me ;;D I know what it's like to feel like your waiting for the storm to come. Any change in pattern makes us starting over thinking things and looking for reasons. Sometimes its hard to just accept a break. I'm glad the beast is going easy on you and hope it continues.

Pain free wishes to ya.

-Dennis-

Title: Re: ??? strange ???
Post by Tara Ann on Jul 21^st, 2007, 6:20pm

Ahhh life is one big change :P I have always been able to count on my 3ish am hits but the rest changes over time. I have my alarm clock visits that I can count on during the day , but they will change, they always do except the 3 am I don't get it either. This frigging CH shit makes no sense. Just roll with it. That's all you can do.

Title: Re: ??? strange ???
Post by thebbz on Jul 21^st, 2007, 8:09pm

There is no set pattern, no set nothing with the beast.
Keep on fightin.
jb

Title: Re: ??? strange ???
Post by TxBasslady on Jul 22^nd, 2007, 3:26am

Just when you think you got it all figured out...it changes. ::)

The beast likes it that way.....always keeps us on our 02 toes. ;;D

Jean

Title: Re: ??? strange ???
Post by southwalessunshine on Jul 22^nd, 2007, 10:14am

I get these ones. They sit right behind my eye and are pretty painful but not quite the beast. They start off with me not knowing if they're a normal headache or a shadow, then progress to me not knowing if they're shadows or are gonna turn into the beast. I usually get them for about 3-5 days every 3 weeks.