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        Cluster Headache Help and Support >> Cluster Headache Specific >> 11 years and they're BACK!!!!  
        
(Message started by: Debbie1 on Jul 20^th, 2007, 7:25pm)

Title: 11 years and they're BACK!!!!
Post by Debbie1 on Jul 20^th, 2007, 7:25pm

I am new to this site but certainly not to CH. I'm a 53 yr old female. I had my first one 32 years ago the day I brought my first son home from the hospital. I had him C-section under general.

First they gave me codeine. Then a doc started Sancert., Worked well but lots of side effects. Finally Prednisone, Verapimille and O2. Back then I was seasonal, every two years and they'd last for almost 3 months at a time. Then poof they stopped. As the years passed I thought I was FREE.

On 6/25 I underwent surgery for an almost 100% blocked corotid artery. In recovery over night and had my first one although I was so drugged I didn't connect it. Then this Monday at 5:58am BANG- here we go again!!! So far I've had 2 more full blown, yesterday 4:38am and today 4:36am. Imitrex injections helping the big ones and O2 helping to abort. I'm going to try to go to Jefferson Hospital headache clinic in Phila asap since I have high blood pressure and am on meds for that don't know if I can add the Verapimille.

11YEARS!!!! I CAN'T BELIEVE THIS!!!!! >:( :-[ [smiley=huh.gif]

Title: Re: 11 years and they're BACK!!!!
Post by Guiseppi on Jul 20^th, 2007, 7:28pm

Sorry to hear they're back! I went 2.5 years and figured I had finally beaten them.....wrong!!! You've found us...please stick around and make yourself at home in your new second home!!!

Guiseppi

Title: Re: 11 years and they're BACK!!!!
Post by Debbie1 on Jul 20^th, 2007, 7:43pm

Thank you so much. I'm glad I stumbled upon this site (while looking for updated info) People who don't get them just don't get it. It'll be nice to chat with those who do!

Title: Re: 11 years and they're BACK!!!!
Post by thebbz on Jul 20^th, 2007, 7:45pm

Good luck at Jefferson. What timing huh? I hate it for ya.
jb
lets us know how it goes

Title: Re: 11 years and they're BACK!!!!
Post by George_J on Jul 20^th, 2007, 7:58pm

After 11 years? That just flat isn't fair at all.

I wonder....was the blockage in the carotid artery on the cluster side? If so, could it be that the reduced blood flow in that artery kept you from getting the symptoms of an attack for all that time?

Purely speculation.

Sorry you're getting nailed again.

Best wishes,

George

Title: Re: 11 years and they're BACK!!!!
Post by Debbie1 on Jul 20^th, 2007, 8:05pm

Hey George, that's exactly what I told the vascular surgeon. I have new and improved blood flow so maybe it woke uo those vascular veins in my head! And yes, same side - always left.

Title: Re: 11 years and they're BACK!!!!
Post by thebbz on Jul 20^th, 2007, 8:10pm

I'm a lefty too. Check your posts on the Getting to know ya board ;;D
Hope your not getting hit too bad.
jb

Title: Re: 11 years and they're BACK!!!!
Post by Debbie1 on Jul 20^th, 2007, 8:12pm

What can I say..I'm a clusterhead! [smiley=laugh.gif]

Title: Re: 11 years and they're BACK!!!!
Post by Jimi on Jul 20^th, 2007, 10:24pm

That is some kinda unfair. I have been pain-free since 2000. I am 58. Clusters actually come from the combination of the vessels constricting and dialating. My theory is that my vessels are so clogged up that they don't dialate anymore. So what has happened to you would fall under that theory. Of course when I think of ClusterChuck, that theory goes out the window. ;)

Title: Re: 11 years and they're BACK!!!!
Post by Rosybabe on Jul 20^th, 2007, 11:04pm

Welcome fellow clusterhead Debbie1!!

The beast was missing you I guess :-/,

Please stay around and let us get to know you a little better :)

Rosy.

Title: Re: 11 years and they're BACK!!!!
Post by barry_sword on Jul 21^st, 2007, 7:29am

Hi Debbie. So sorry that BAST'D came back to see you after 11 years. We are here for you. Glad you have the o2.

Barry

Title: Re: 11 years and they're BACK!!!!
Post by Lenny on Jul 21^st, 2007, 1:13pm

on 07/20/07 at 19:25:08, Debbie1 wrote:

On 6/25 I underwent surgery for an almost 100% blocked corotid artery. Imitrex injections helping the big ones and O2 helping to abort. I'm going to try to go to Jefferson Hospital headache clinic in Phila asap since I have high blood pressure and am on meds for that don't know if I can add the Verapimille. >:( :-[ [smiley=huh.gif]

Hi Debbie1, sorry to hear that the beast is back,you might want to speak to your doc regarding the imitrex (since you have a history with the heart) wishing you many PFDAN to come..........Lenny

Title: Re: 11 years and they're BACK!!!!
Post by sandie99 on Jul 27^th, 2007, 4:35am

Debbie,

I'm so sorry that the beast is back... [smiley=hug.gif] But I am glad that you found your way here.

Thanks to those 11 years you know that you can be PF again. And you WILL! :)

Pain-free wishes,
Sanna

Title: Re: 11 years and they're BACK!!!!
Post by JohnMcCloy on Jul 27^th, 2007, 6:59pm

Thats Unreal.It is interesting how the 2 triggers were physcially traumatic events.
Childbirth and your surgery.
Anyway Glad your surgery was succesful.Perhaps they will go away for another 11 after this.

Title: Re: 11 years and they're BACK!!!!
Post by Cesare on Jul 31^st, 2007, 3:51am

Nothing surprise me anymore with CH.
I am 49 years old, look at my pattern:
1987 - First CH shows up - One week mild attacks
1991 - Second time - 1 month and a half - Misdiagnosed until almost the very end of the cycle.
1998 - 7 years after came back - Lasted (with some remission periods) almost one year. Neurologist thought I was getting cronic. Ended in summer 1999. Verapamil and Imigran used.
2005 - Back after 7 years - Lasted almost 3 months. Imigran and Cafergot
2007 - Started end of June, looks like I'm at cycle peak now. I'm on 480 mg/day Verapamil and Imigran injections 2 times/day.

Any logic in this?

Thanks for all your helpfull and interesting posts.
Take care, ciao
Cesare