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        Cluster Headache Help and Support >> Cluster Headache Specific >> i have a brain tumor
        
(Message started by: aloneuk on Jul 6^th, 2007, 8:54am)

Title: i have a brain tumor
Post by aloneuk on Jul 6^th, 2007, 8:54am

not sure where 2 post this !??

after posting some great nows yesterday and feeling on top of the world i opened my mail this morning and there was a letter from the hospital with my mri results and
i have a tumor on the pituitary gland its not very big but its there,

i have now got an appointment with prof goadsby on the 8th aug to talk about what can be done, im feeling like i have been kicked in the bollox and could do with some love if theres any spare

:'(

Title: Re: i have a brain tumor
Post by Patrick_A on Jul 6^th, 2007, 10:05am

Lots of love coming your way.

My 1st inclination was to congratulate you on actually finding out what was wrong, but the fact it was a brain tumor kind of takes the joy out of it. Doesn't it?
Hopefully it is a very simple procedure.
Good luck, and let know what your prognosis is.

Patrick_A

Title: Re: i have a brain tumor
Post by Klusterkopf on Jul 6^th, 2007, 10:15am

on 07/06/07 at 08:54:30, aloneuk wrote:

My best wishes that the tumour will be successfully removed and that you will have a fast recovery.

Title: Re: i have a brain tumor
Post by Guiseppi on Jul 6^th, 2007, 10:19am

On the one hand it's no longer the unknown...but what a crummy known. Hoping it's a simple procedure, sending my families prayers and thoughts your way.

Guiseppi

Title: Re: i have a brain tumor
Post by black on Jul 6^th, 2007, 10:20am

keep thinking positive no matter what.one step at time to cope things.it can be harmless and with one surgery to become pain free forever.try not to think it too much because sometimes things get bigger when we imagine it.work it with ur doc. and only advice ican give u is that.one step at time.best wishes and keep the spirit through hard times ;)

Title: Re: i have a brain tumor
Post by Redd on Jul 6^th, 2007, 10:24am

Oh man...You have every spare vibe and thought I got....

Title: Re: i have a brain tumor
Post by DennisM1045 on Jul 6^th, 2007, 11:52am

I can't find the words to express how sorry I am for your diagnosis. Stay strong and know that you will be in my thoughts and prayers. Please check back and let us know how things go.

-Dennis-

Title: Re: i have a brain tumor
Post by Ray on Jul 6^th, 2007, 11:54am

My very best wishes for a good outcome. Prayers and more are headed your way.

Ray

Title: Re: i have a brain tumor
Post by Paul98 on Jul 6^th, 2007, 11:56am

Take things one step at a time and learn what your options are for treatment. Sending lots of vibes and prayers.

-P.

Title: Re: i have a brain tumor
Post by LeLimey on Jul 6^th, 2007, 12:00pm

Ike - I don't know where to start hon.

I'm away from sunday night until the 25th but once I'm back any help or support I can give you and Tami is there okay? If you need help with anything or if the two of you just want a break you're more than welcome to come and stay.

By the sounds of it they've caught it early so thats good. What with early diagnosis and the strength of this place you've got the best team going mate.

If you want to talk before sunday pm me your number and I'll give you a shout.

Lots and lots and lots of love
Helen xxx

Title: Re: i have a brain tumor
Post by Buzz on Jul 6^th, 2007, 12:37pm

I am truly, deeply sorry to hear about your tumour.

It can be hard to see a bright side to such news, but there is one: You have all of our best wishes, prayers and strongest vibes. You are with people who genuinely care and who genuinely want to make sure you beat that little lump of good for nothing sheit!

My friend beat (5 years' remission now) a very serious case of Lukemia through, he believes, visualising a little Pacman steadily gobbling up the extra white cells; try to imagine your own little pacman steadily munching his way through your tumour... believe it, and do it. ALL the time.

Kind regards

Paul

Title: Re: i have a brain tumor
Post by Sandy_C on Jul 6^th, 2007, 12:46pm

Holy crap! When we all search for a diagnosis, nobody wants to hear this kind of result. I'm so sorry, and I, too, hope it's an easy procedure.

I'm sending every vibe I've got to you, not to mention a few prayers.

Sandy

Title: Re: i have a brain tumor
Post by LeeS on Jul 6^th, 2007, 12:58pm

Sorry to hear the news mate :'(

Strength will be in support and there'll be plenty here. PM me if you would like to chat/get together, whatever - I'm in Herts too.

Wishing you all the best

-Lee

Title: Re: i have a brain tumor
Post by LeLimey on Jul 6^th, 2007, 1:24pm

Ike much as I'm always slating Lee its only in fun, he's one of my very best friends in the whole world and I would trust him with my life. If you get the chance to meet him - DO! (Just not on whatever day me and you meet up 'k?! ;) )

He has forgotten more about CH and brain pathology than I will ever know and if anyone can shed a little light on this for you he can. Much as it hurts me to admit it I really cannot praise this bloke enough and you can't go wrong listening to him.

lots of love
Helen

Title: Re: i have a brain tumor
Post by horsegirl on Jul 6^th, 2007, 1:54pm

lots of praying going on here!!

Title: Re: i have a brain tumor
Post by Shedz on Jul 6^th, 2007, 1:54pm

Oh dear, not good Ike :(
This not fair after yesterday.
PM or mail me if ya need to chap,even if ya just need to rant..................

Paul.

Title: Re: i have a brain tumor
Post by thebbz on Jul 6^th, 2007, 5:37pm

I have some to spare. You now have it. More love less tumor. Good luck with DR. G
all the best
jb

Title: Re: i have a brain tumor
Post by Lotus on Jul 6^th, 2007, 7:11pm

So sorry to hear of this news and sending all prayers and vibes that I have to you.

I am amazed they broke the news to you by mailing the result directly to you! In Australia, such diagnosis has to be given in person by a doctor, preferably your GP so that not to shock the patient and so that any question can be answered satisfactorily.

I hope it makes you feel a little bit better to know that the pituitary is the most accessible gland of the head. It makes surgery a lot easier than other parts of the brain. Pituitary gland tumours often respond to hormone treatments very well. There are many ways they can shrink it either by meds or by radiation. Surgery may not be necessary.

http://www.pituitary.org/faq/

I am very glad you have Prof Goadsby. You are in good hands and I wish you all the very best for a successful, quick and easy treatment and complete recovery.

Annette

Title: Re: i have a brain tumor
Post by MR_FLOOR on Jul 6^th, 2007, 8:58pm

[smiley=hug.gif] [smiley=hug.gif]Good luck from my whole family.Keep your head up

Dave

Title: Re: i have a brain tumor
Post by agonymum on Jul 7^th, 2007, 7:29pm

ike ,

thankyou for you recent support to me , you are obviously a gorgeous person.
im sorry to hear your news and so hope its going to get sorted out for you really soon .

sending you alot of love and squeezy hugs too xxxx

Title: Re: i have a brain tumor
Post by George_J on Jul 7^th, 2007, 8:30pm

I'm hopeful that your appointment with Dr. Goadsby yields some good options for you--a better, more competent physician would be difficult to imagine, from all I've heard.

Best wishes always,

George

Title: Re: i have a brain tumor
Post by ordinary_joe on Jul 8^th, 2007, 12:03am

Ike,
Prayers and lots of hope from here. One day at a time...and know we are with you in spirit.

Title: Re: i have a brain tumor
Post by Lenny on Jul 8^th, 2007, 1:36am

Dear Ike,
I am lost for words :'( :'(,sending all my vibe's your way with a big hug (heto-style) ;;D....Lenny

Title: Re: i have a brain tumor
Post by sandie99 on Jul 8^th, 2007, 3:46am

I am so sorry for the news... [smiley=hug.gif]

If you need to talk about it, I'm here. My father and my uncle both had brain tumors, so I know a bit about living with it. And I know that it makes a huge difference in what type of tumor you have and where it is located. This is the moment to fight!

I must admit that it is a surprise to me as well that you got the news via mail; my dad was told it personally by his doctor. These things do vary.

Hugs & prayers,
Sanna

Title: Re: i have a brain tumor
Post by Barry_T_Coles on Jul 8^th, 2007, 7:08am

Sending every vibe I can muster from down under, stay strong friend.
Kind Regards
Barry

Title: Re: i have a brain tumor
Post by Rosybabe on Jul 8^th, 2007, 10:15am

Ike, my prayers are for you, may the sweet Lord watch upon you and he will guide the doctor's hands to do what needs to be done for you to come back to health.

Amen.

Title: Re: i have a brain tumor
Post by aloneuk on Jul 8^th, 2007, 11:06am

wow
thank you all so much for kind words and support, it makes me feel alot better to know your all out there and im not so alone with this,

im feeling ok at the moment and from what ive been told and read ive got it in the best place for treatment, im seeing my gp tomorrow to talk some more, i spoke to her on the phone on friday and she was great and answered lots of questions for me. it seems odd to be sad as i ''wanted them to find something'' so that this pain would stop and i could get on with my life.

my gp tells me they are 99%sure its benign but they think its been there a long time and is most likly why my eye sight has got worse and worse over the last few years, but its only been my right eye and im almost blind in it now .
ill keep you posted as i know more

thanx for being here

ike

Title: Re: i have a brain tumor
Post by sandie99 on Jul 10^th, 2007, 2:53am

Ike,

thank you for the update. :)

It's great to hear that you're in the best place for treatment! Wonderful. :)

Lots of vibes and prayers are on their way for you from Finland.

Hugs & best wishes,
Sanna

Title: Re: i have a brain tumor
Post by E-Double on Jul 10^th, 2007, 3:23am

Hugs to you my brother!

Title: Re: i have a brain tumor
Post by southwalessunshine on Jul 10^th, 2007, 8:50am

hi Ike,
Thank you so much for offering me your support when you are clearly going through so much of your own right now.
my thoughta are with you x

Title: Re: i have a brain tumor
Post by artonio7 on Jul 11^th, 2007, 4:01am

Ike so very sorry to hear abut your news. You're in my thoughts and prayers.
A couple years back a friend of mine was diagnosed with a one centimeter tumor in his brain and was treated at the Cleveland Clinic with gamma knife surgery. He's 70 years old and still kicking.

I hope and pray you find the peace of mind and appropriate treatment for successfully dealing with your condition. Most importantly DO NOT GIVE UP HOPE! ..and if you want to be angry that's a good thing too.

Please feel free to pm me anytime you want to join me in the chat room to talk... if you see me online just send me a post or post in the general message board that you want to chat and go to this link http://www.clusterheadaches.com/chat/ if I'm not there wait and someone will be in.

with warm regards,
Tony

Title: Re: i have a brain tumor
Post by taraann on Jul 11^th, 2007, 8:34am

Yeah we have some pretty interesting chats in that weirdo room ;;D. Hey what happened to Coffee chat???

How are ya hanging in there Ike? How's the mommy to be dealing with all of this? Us woman are rocks and all, let her know she is welcome anytime if she wants to come here to rant, or myspace too of course, you got my address. She's gotta be a pretty cool chick if she's your other half ;)

Title: Re: i have a brain tumor
Post by aloneuk on Jul 11^th, 2007, 10:01am

hiya
thanx everyone, tony have a look at your PMs
im in chat now if anyone is around?
tami the mummy to be is good enjoying being pregnant really is a dream come true, as far as the leg and tumor she is my ROCK!! i fell apart, she held me up she really is holding our family together right now dunno where id be with out her..

ill tell her to drop you a line taraann,

ike x