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        Cluster Headache Help and Support >> Cluster Headache Specific >> Clusterphobia
        
(Message started by: UN solved on Jul 3^rd, 2007, 3:44pm)

Title: Clusterphobia
Post by UN solved on Jul 3^rd, 2007, 3:44pm

Shouldn't this be in a dictionary somewhere ??

Clusterphobia - The fear of cluster headaches. ie. The fear of a cluster attack. May also include the fear of sleeping.

UNsolved

Title: Re: Clusterphobia
Post by Gator on Jul 3^rd, 2007, 4:00pm

LOL

Suffered by approximately .1% of the population. (and their families)

Title: Re: Clusterphobia
Post by MR_FLOOR on Jul 3^rd, 2007, 5:08pm

I'm one.

Dave

Title: Re: Clusterphobia
Post by taraann on Jul 3^rd, 2007, 5:29pm

Fellow sufferer ;;D

Title: Re: Clusterphobia
Post by Lotus on Jul 3^rd, 2007, 10:23pm

Is it the cluster or is it the unbearable pain of cluster that we are phobic to ?

For me its the pain that is too much .... :(

Title: Re: Clusterphobia
Post by Gator on Jul 4^th, 2007, 1:07am

Why split hairs? ::) cluster headache = pain

Title: Re: Clusterphobia
Post by burnt-toast on Jul 4^th, 2007, 5:21am

Would it be appropriate to insert the new word into famous quotes? (original authors intentionally left uncreditied for any original material bastardized in this post)

"The only thing to fear is Clusterphobia itself"

"The oldest and strongest emotion of mankind is fear, and the oldest and strongest kind of fear is Clusterphobia"

"To fear is one thing. To let Clusterphobia grab you by the tail and swing you around is another"

"The conquest of Clusterphobia lies in the moment of its acceptance"

"Clusterphobia is one of the very few monsters who warrant the fear we have of them"

"We will not be driven by Clusterphobia into an age of unreason"

Might work???

Tom

Title: Re: Clusterphobia
Post by Wayne on Jul 4^th, 2007, 6:06am

Only problem is dealing with the phobia, you can deal with hydrophobia by not going near water or by disproving the fear. Likewise you can deal with claustrophobia by not going into small places. I for one would gladly volunteer to deal with my Clusterphobia (and I am a Paranoid Clusterphobic) by not having the damn things anymore

Title: Re: Clusterphobia
Post by DennisM1045 on Jul 4^th, 2007, 7:31am

Would that that were an option Wayne.

-Dennis-

Title: Re: Clusterphobia
Post by Wayne on Jul 4^th, 2007, 8:04am

Oh yes Dennis, the eternal optimist in me coming to the surface.

Title: Re: Clusterphobia
Post by GrandPotentate on Jul 4^th, 2007, 8:50am

A phobia is an unreasonable sort of fear that can cause avoidance and panic. I'm not sure that this is unreasonable, nor can I avoid anything. It is hard not to dwell on this between hits or between cycles, but we simply need to seize the good times when they happen.

PF wishes to all!

Title: Re: Clusterphobia
Post by horsegirl on Jul 5^th, 2007, 6:48pm

definition of brave;being afraid but saddling up anyway.brave is what we all are when we walk to our beds to lay are heads down to sleep.

Title: Re: Clusterphobia
Post by Rosybabe on Jul 5^th, 2007, 7:52pm

when I am in cycle I am afraid just to see the night coming...I get my worst hits at night :(

Title: Re: Clusterphobia
Post by swimchica623 on Jul 5^th, 2007, 9:32pm

Being afraid of the inevitable just makes it worse....I think that clusterphobia exists in a much worse form, the general public that is afraid of CH and does not understand it. :-/

Lisa

Title: Re: Clusterphobia
Post by Ray on Jul 6^th, 2007, 12:12pm

To fear the next attack, or to accept the next attack as nearly inevitable. Which would be better and which would be worse?

Ray

Title: Re: Clusterphobia
Post by Sandy_C on Jul 6^th, 2007, 12:54pm

on 07/04/07 at 05:21:45, burnt-toast wrote:

"The conquest of Clusterphobia lies in the moment of its acceptance"

Tom

I think this it is, in a nutshell.

I don't fear CH, because I know it won't kill me. What I fear is the pain of CH, but that pain also will not kill me. I have to accept that I have CH, and with that CH comes pain, so I must also accept the pain. Once I do that, I no longer fear it. It just "is", and I have to deal with it with whatever methods and armor I have.

Sandy

Title: Re: Clusterphobia
Post by Patrick_A on Jul 6^th, 2007, 3:45pm

I remember that fear very well!!

Title: Re: Clusterphobia
Post by swimchica623 on Jul 6^th, 2007, 4:17pm

To add to my first comment....there is a big difference between accepting and giving up. You can accept someting as part of your life but then do all you can to try to change it. And yes, that is much better than fearing it.

Title: Re: Clusterphobia
Post by black on Jul 7^th, 2007, 2:02pm

in short term and when cycles are bad its all about pain.but in long terms its when it will hit.where,with whom and when that happens in public,trying to appear normal.i think thats the phobia.fearing not that it will come but when will it be.also not sure about the rest of u but for me if it happens to be in bad mood and it happens its somehow worser.

Title: Re: Clusterphobia
Post by Bob_Johnson on Jul 7^th, 2007, 4:05pm

A phobia can exist for decades without us ever having the feared experience. But a phobic attack, that is, powerful anxiety, can be triggeed by a THOUGHT about that which is feared; it need not be an actual CH attack.

Sandy has hit it! We can learn how to control our fear so that it does not come to dominate and constrict our life (one of the major parts of the definition of phobia.)

While fear is an automatic response in us, it is possible to learn how to modify and reduce its impact so that we have alternatives to the prisons of avoiding and/or endless expectation.

http://www.ouch-us.org/chgeneral/painvsuffering.htm

Title: Re: Clusterphobia
Post by GrandPotentate on Jul 7^th, 2007, 6:52pm

Everybody has something, CH happens to be my thing.

We can't make the hits stop coming, though we still seek for that. I figure I'm going to get so many hits in a cycle; the best I can hope for is find some relief in duration and hopefully knock them down a point or two. There is a world of difference between a 7 and a 9.

We can control our response to all this, and that is what this site is all about. We can respect the pain and deal with it. Hang tough through the hits, embrace the PF times with gusto!