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Title: Here We Go Again ... Post by UN solved on Jun 26th, 2007, 6:33pm The beast is slowly but surely sneaking back in. I'm getting sporadic hits both in the daytime and during the night. Last jab 4 hours ago and I'm already shadowing again. (this may even turn into something within the next cpl of minutes). It seems that my Histamine ride is over once again ... last stop is Cluster Hell !! >:( BTW, I got a 3 - 3.5 week break from hits thanks to the last treatment ... but I was hoping for a longer break again this time. :-/ ( Longest break so far, about 8 or 9 weeks ) UNsolved |
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Title: Re: Here We Go Again ... Post by Ray on Jun 26th, 2007, 7:13pm Sorry for the pain, but just take it one moment at a time and NEVER let the beast win. My best hopes, wishes, and blessings are headed your way. Ray |
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Title: Re: Here We Go Again ... Post by Redd on Jun 26th, 2007, 7:20pm See Mike, this is where I disagree with INHS criteria. Remissions that are forced by medications, and must be maintained by the use of medications are not remissions in my opinion but simply successful medical interventions. A spontanious end to a cycle that needs no medications to continue the period of PF time would in my opinion be a true remission. |
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Title: Re: Here We Go Again ... Post by MR_FLOOR on Jun 27th, 2007, 8:38am on 06/26/07 at 19:20:37, Redd wrote:
I agree red when I wen't through my so called remission it was after my histamine desensitization,don't get me wrong I cherished my pain free time but it was not true remission it was induced by meds.But believe me I'm not complaining I loved every minute of it. [smiley=twocents.gif].........................Dave |
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Title: Re: Here We Go Again ... Post by LeLimey on Jun 27th, 2007, 9:35am I agree with Redd too Michael hang in there hon - kick it's arse and hopefully next time will be another marathon pain free session for you - I'll have my fingers crossed! Helen |
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Title: Re: Here We Go Again ... Post by DennisM1045 on Jun 27th, 2007, 11:08am Hi Michael, I’m sorry to hear the beast is rearing his ugly head again. Hang tough man. We’re all with you. Make sure you have your abortives lined up. Good luck and keep us posted. -Dennis- |
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Title: Re: Here We Go Again ... Post by UN solved on Jun 27th, 2007, 12:26pm Thanks everyone. Last night was a rough one with 2 attacks (both requiring a 'jab') :( I seen my local neuro yesterday and we both agreed that I'd stay out of the hospital for as long as I can handle it. Just before I'm about to CRACK, I'll go back in and do another round of histamine. Hope you all had a better night than I did ! PF Wishes UNsolved |
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Title: Re: Here We Go Again ... Post by Shedz on Jun 27th, 2007, 12:29pm Hang in there chap, and give the beast hell. Wishing you some PF time Michael. Paul. |
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Title: Re: Here We Go Again ... Post by Buzz on Jun 27th, 2007, 12:29pm Keep strong! |
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Title: Re: Here We Go Again ... Post by Barry_T_Coles on Jun 28th, 2007, 4:27am Hi Michael, Sorry to hear the beast is back; looks like we will be doing the dance together, I started again last Saturday with nightly hits but so far nothing above a KIP 7. Looks like if the Taurine & Magnesium routine was working it’s stopped now. At least I had 240 days PF so I can't complain. Ah well ain't life grand. Let’s hope it’s a short one Cheers Barry |
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Title: Re: Here We Go Again ... Post by jcreedy on Jun 28th, 2007, 10:52am on 06/28/07 at 04:27:36, Barry_T_Coles wrote:
I've been going with Kudzu, Calcium/Magnesium and Taurine every day for almost two weeks now. I've had two bad headaches in that time period wheras before the supplements I was having one or two CHs every day. I got a bad one a couple of nights ago when I had a few pints, but that's my fault. Take care Michael. |
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Title: Re: Here We Go Again ... Post by Wayne on Jun 29th, 2007, 5:07am on 06/28/07 at 04:27:36, Barry_T_Coles wrote:
Howzit Barry Sorry to hear this, I really thought you were on a good wicket with this. I hope the cycle is short and manageable. Cheers, Wayne |
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Title: Re: Here We Go Again ... Post by midwestbeth on Jun 29th, 2007, 6:59am Sorry to hear the beast is rearing it's ugly head. Hang in there. Beth |
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Title: Re: Here We Go Again ... Post by BarbaraD on Jun 29th, 2007, 7:47am Sorry Michael Just when we think it's safe to go back in the water ..... And Redd, I agree -- even when we're in "remission" we're not really "thur" with the beast - we're just on "hold" till he decides to pop in again. But I love the remission periods. Hang in there Michael... Hugs BD |
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