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        Cluster Headache Help and Support >> Cluster Headache Specific >> needing some help with question
        
(Message started by: dopey9499 on Jun 24^th, 2007, 10:07pm)

Title: needing some help with question
Post by dopey9499 on Jun 24^th, 2007, 10:07pm

ok i am not new to ch i have had them since i was 16 years old and now i am 28. I have just been given imitrex stat dose injections and they work well, I hate injections and needels but love this stuff so far this has been the only thing i have found that works. well i was given the perscription last week and was given 4 injections, well i used them up in 4 nights and when i called in my refills i was told i have to wait till next month to get them because the 4 should have lasted me for 30 days. so some questions i have is, should i not be using this stuff on every ch? and is there a way i can get this problem fixed because since i used the last injection friday i have to wait till monday to try to fix the problem and so last night i had to fight all 4 of the ch's with nothing at all. thanx in advance

Title: Re: needing some help with question
Post by thebbz on Jun 24^th, 2007, 10:42pm

Read the imitrex tip on the right. Insurance companies do restrict the consumtion of trex as it is so expensive. That and it is a migraine hand me down. Try coffee or a red bull on the ones you can get to quick. You need 02 as well. Keep in touch and let us know how goes it. How about a transitional med?Like pred or lithium?
http://www.brightok.net/~mnjday/chtherapy.pdf
Hang on and fight.

Title: Re: needing some help with question
Post by UN solved on Jun 24^th, 2007, 11:56pm

Call your doctors office and tell them you need some samples to hold you over. They'll usually have some, if not, tell them to get you some, asap!

Goodluck

UNsolved

Title: Re: needing some help with question
Post by Bob_Johnson on Jun 25^th, 2007, 6:42am

Only your doc is in the position to both pressure the insurnace outfit for more meds AND to offer alternative abortives. I hope you are working with a doc who has broad experience in handling complex headaches situations.

The first reply has a link which outlines current thinking on treatments. Suggest you print and take to our doc for a planning talk.

Within that document is a reference to Zyprexa (olanzapine) as an abortive. Several of us have had good results and it's, on a per dose basis, much less expensive than Imitrex. He can give you a sample and you'll know within a dose or two whether it works for you.
------------------------
Explore these sites. May be some useful ideas depending on your situation: http://WWW.HEALTHINSURANCEINFO.NET Provided by Georgetown University. "Consumer Guide for Getting and Keeping Health Insurance." State by state guide to protections around health insurance.

This paragraph from CONSUMER REPORTS ON HEALTH, 11/05:

"Negotiate with your health plan. Learn how to resolve disagreements about health coverage or benefits with the updated...'Consumer Guide to Handling Disputes With...Health Plan." [How to use the internal grievance and appeal procedures of the plan.] ...(H)ow to appeal a decision to your state's external review program (currently available in 43 states.) Download a copy at www.ConsumersUnion.org/health/hmo-review." Free copy by writing to, including the state about which you want information, to Consumer Reports, 101 Truman Ave., Yonkers, NY 10703, Attn: CCHC.

Title: Re: needing some help with question
Post by chewy on Jun 25^th, 2007, 7:04am

http://headaches.about.com/cs/advocacy/a/trip_limits.htm

Title: Re: needing some help with question
Post by dopey9499 on Jun 25^th, 2007, 1:38pm

ok i got ahold of the doc and he said that he will get ahold of the insurance and hope to get it taken care of, but he said in so many words that i need to find another doctor that could help me more and referd me to someone, so fingers crossed. when i go i will ask about some of the things that you all have brought up and see how it goes so i will keep yall posted. thanks for the help so far and the great advise i have gotten more info about our problem in the last two days then i have in the 12 years of having ch.

Title: Re: needing some help with question
Post by Rosybabe on Jun 25^th, 2007, 1:54pm

you have to have your O2, I use Cafergot when I am out of triptans.