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        Cluster Headache Help and Support >> Cluster Headache Specific >> all not alone
        
(Message started by: horsegirl on Jun 22^nd, 2007, 9:24pm)

Title: all not alone
Post by horsegirl on Jun 22^nd, 2007, 9:24pm

hi,I have gotten so much info from this site,mostly i dont feel so alone anymore i mean with the cluster ha.from being shuned in work places to my first two husbands not even trying to understand,luckily my third husband of ten years is an angel when it comes to my ha's.sense there so rare Ive never met anyone that had them.research has come along way,when i was 15 i got my first one,and thought i had a sinus ha,then when i was 20 i finaly was diagnoised I looked them up in a headache book and it said the profile for a person with cluster headaches was a 40 year old man that drinks and smokes heavily with a red bulbus nose,maybe one of you read that to but that was 20 some years ago.I'd sure like to get ahold of that person that wrote that.we still got along way to go.Ive read many post from many of you and notice attitude wich is well earned im sure it was annoying having that lady junebug or whatever the hell her name was act like she had the answers when youve all read and tried everything or close to it anyway just begging please dont be to hard on me like that if i say something stupid cause im reall sensitive lol [

Title: Re: all not alone
Post by JenniferD on Jun 22^nd, 2007, 9:31pm

Hi Horsegirl and welcome!

Yep, 22 years ago I had the same misdiagnosis and was told the same characteristics! We musta had the same dr!

Get to know everyone here cuz this is the most wonderful group of people you'll ever find. (and don't worry, I say lotsa stupid stuff and they kinda like me anyway)

Welcome to the nut house!

Hugs,
Jen

Title: Re: all not alone
Post by Jonny on Jun 22^nd, 2007, 9:33pm

[quote author=horsegirl link=board=chspecific;num=1182561840;start=0#0 date=06/22/07 at 21:24:00]Ive read many post from many of you and notice attitude wich is well earned im sure it was annoying having that lady junebug or whatever the hell her name was act like she had the answers when youve all read and tried everything or close to it anyway just begging please dont be to hard on me like that if i say something stupid cause im reall sensitive lol [/quote]

This is where I take very special notice on this post.

You be the judge!

Title: Re: all not alone
Post by ClusterChuck on Jun 22^nd, 2007, 10:18pm

Eve, welcome to the Nut House !!!!

You feel so good just reading these posts. Wait until you get to MEET a fellow clusterhead!!! THAT is just AWESOME!!! If you ever get a chance, especially if there are SEVERAL getting together, GO!!! MOST of us leave our ax and ax-murderer tendencies at home when we meet other clusterheads ... Well SOME leave them home ... OK, OCCAISIONALLY they are left home ...

I have met MANY of these people, that you see posting, in person, and the bond is unbelievable!!! AND instantaneous!

BUT, I MUST warn you. All the rest of the people here, except for you and I (of course), are NUTS!!! You and I will have to work EXTRA hard to keep these loonies in line! [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]

LOL

Chuck [smiley=laugh.gif]

Title: Re: all not alone
Post by horsegirl on Jun 22^nd, 2007, 11:10pm

thanks for the welcome, every time i take an interest in someone and press the deal to read all there post to get to know there story it goes so slow it wont connect,oh well ill just gradualy get to know you all,i cant tell if johnny likes me much and i even told him my name,my daughter sighned me on and gave me the name horsegirl cause i love horses.

Title: Re: all not alone
Post by Sean_C on Jun 22^nd, 2007, 11:14pm

Jonnys part horse Eve, well................. thats what Chewy says anyway.

Title: Re: all not alone
Post by horsegirl on Jun 22^nd, 2007, 11:28pm

oops another reason for him not to like me misspelled jonny horses are very foregiving even if there only part horse

Title: Re: all not alone
Post by Linda_Howell on Jun 22^nd, 2007, 11:39pm

Only people who have been here a while know that Jonny doesn't like his name being mis-spelt. Especially new people, but you seemed to know that without being told. hmm

Quote:

just begging please dont be to hard on me like that if i say something stupid cause im reall sensitive lol [

You're real sensitive? o.k. then.so I'll just say welcome.

luinda

Title: Re: all not alone
Post by GrandPotentate on Jun 22^nd, 2007, 11:50pm

I'm glad you found this group. These folks have been a wonderful source of comfort. It is pretty scary going through the unknown phase with docs who don't know what is going on. I went through that, even though I might be described as "a 40 year old man that drinks and smokes heavily with a red bulbus nose"

Beer doesn't agree with me while I'm in cycle, but I enjoy otherwise. I did give up the smokes on the doctor's advice, while he had me doped up. The nose is a family thing.

Bummer that the beast can hit a sweet young thing like you, too.