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        Cluster Headache Help and Support >> Cluster Headache Specific >> Botox?
        
(Message started by: horsegirl on Jun 21^st, 2007, 10:19pm)

Title: Botox?
Post by horsegirl on Jun 21^st, 2007, 10:19pm

I have heard insurance pays for Botox for migraines, and clusters on the news once.

Has anyone tried this with cluster headaches?

I was going to but I'm so close to my usual time of it ending for hopefully a couple years like usual.

Title: Re: Botox?
Post by Bob_Johnson on Jun 22^nd, 2007, 7:40am

Medical literature is scant on the subject and outcomes reported are not encouraging. Look elsewhere for more effective treatments.

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)

http://www.brightok.net/~mnjday/chtherapy.pdf

Title: Re: Botox?
Post by Jonny on Jun 22^nd, 2007, 8:12pm

Bob knows what he posts, he probably has done more research on CH than anyone on this site.....and thats saying ALOT! (because there are alot of reseachers here)

Welcome to the house of pain ;;D

BTW: whats your name, im not going to call you what your loggin is. ;)

Title: Re: Botox?
Post by horsegirl on Jun 22^nd, 2007, 9:30pm

my name is eve

Title: Re: Botox?
Post by JenniferD on Jun 22^nd, 2007, 9:37pm

Eve, I've considered the botox thing too, just as a long-shot, but I'll stick to what is currently working for me: verapamil as preventive. So far, I've not been too lucky in the abortives but going to push the dr for a script for O2 (he turned me down the last time I asked).

And when that Bob guy or that Jonny guy tell ya something- listen. ;)

Jen

Title: Re: Botox?
Post by horsegirl on Jun 22^nd, 2007, 9:43pm

I just realized on the post board or whatever ,i wrote all not alone instead of not alone,how stupid .

Title: Re: Botox?
Post by horsegirl on Jun 22^nd, 2007, 9:52pm

thank you all for writing back,ill try to get better at this,by the way Im on verapamil 120 3 times a day and o2 i dont understand why your doctor would say no on the o2,.Its been 4 nights without a ha Id like to stop taking the pills cause they make me tired,but im to chicken there not over

Title: itRe: Botox?
Post by horsegirl on Jun 22^nd, 2007, 10:10pm

hi jennifer, its about the oxygen again there realy is no reason i can think of why a doctor could refuse you ,it helps me alot the first week of my ha it just took it away in minutes then it seemed like all it was doing was postponing ,id wake up put it on fall back to sleep ten minutes later wake up with another,third week no help Id throw down the mask and do the dance but mines more of a scoot i sit on my but push myself around with my heels sometimes till they bleed with rugburn and ofcourse my ice pack my husband chases me with the 02 get it the hell away from me i scream,poor guy,4th week it worked great for me,who knows enough about me im going to bed

Title: Re: Botox?
Post by vegas1002 on Jun 23^rd, 2007, 9:35am

It is probably just a coincidence but I went for Botox injections about a month ago for vanity and my CH's came back 2 weeks ago. Of course I will look for any reason to blame them on. I will never do that again either way. Great to hear that your so close to the end!

Alex (Alexandria)

Title: Re: Botox?
Post by horsegirl on Jun 23^rd, 2007, 4:12pm

alex. may be a coincadence,who knows with these crazy headaches, i went in for a colonostopy 3 years ago and woke up from the drugs with a cluster ha and to boot it was on the oppisite side of my head that they always had came on.,i was ticked.for one cause they wernt due for another year,but sure enough they went away 6 weeks later,and think god back to 3 years again.weird,if i was to tell that story to anyone but you guys theyd think i was crazy and a hypocondreact,anyway did it dull the pain at all for you?