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        Cluster Headache Help and Support >> Cluster Headache Specific >> Topomax Done
        
(Message started by: jimp63 on Jun 18^th, 2007, 4:06pm)

Title: Topomax Done
Post by jimp63 on Jun 18^th, 2007, 4:06pm

Update. Hi evereyone. I just finished my first ever course of Topomax for a rather lengthy cycle, 2 courses of Prednisone couldn't tame the beast this time around. Anyone care to share their experience of coming off Topo; I'd like to have a heads up of what to possibly expect (rebound, cycle pick-up, PF!!! etc). Thanks.

Title: Re: Topomax Done
Post by thebbz on Jun 18^th, 2007, 6:20pm

Never quit anything cold turkey. Taper off drink lots of water. Listen to the doc.
good luck.
jb

Title: Re: Topomax Done
Post by UN solved on Jun 18^th, 2007, 8:19pm

Kidney stones hurt too ! (Topo side effect ) Drink LOTS of water or lemonade with real lemon juice !

Goodluck

UNsolved

Title: Re: Topomax Done
Post by taraann on Jun 20^th, 2007, 5:49am

To take good care of your kidneys/ urinary tract and for prevention of probs cranberry juice and cranberry concentrate pills. If kidney/urinary prob starts to act up I drink a TON of cranberry juice and take over the counter uristat.

Title: Re: Topomax Done
Post by Wayne on Jun 26^th, 2007, 7:22am

I came off Topo over a period of a week after long usage, cut off 25mg every 2 days and had no side effects at all, just felt much more lively.

Cheers,

Wayne

Title: Re: Topomax Done
Post by agonymum on Jul 2^nd, 2007, 3:23pm

hi,

this is one of the meds my gp recently mentioned as an alternative to verapamil . how does it work and do you recommend it ?

x

Title: Re: Topomax Done
Post by Wayne on Jul 3^rd, 2007, 6:50am

on 07/02/07 at 15:23:20, agonymum wrote:

hi,

this is one of the meds my gp recently mentioned as an alternative to verapamil . how does it work and do you recommend it ?

x

Hi Debbie

It certainly worked very effectively for me for killing the beast but I found at high dosages I was very 'light headed'. lower dosages were fine but not always 100%effective for CH control. Verapamil is a much better deal for me but we are all different and you're going to have to find out what works best for you. from your side, seeing that you're already on Verap I would suggest upping that dosage and see how it works before changing drugs as you have to wean off one before starting another and then the Topomax also takes a while to get going properly.

Cheers,

Wayne