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        Cluster Headache Help and Support >> Cluster Headache Specific >> Possible Reversal for Cluster Headaches!
        
(Message started by: bonniebluebug on Jun 15th, 2007, 1:32am)
Title: Possible Reversal for Cluster Headaches!
Post by bonniebluebug on Jun 15th, 2007, 1:32am
Just as an introduction, I am engaged to a man who has suffered from cluster headaches for over 13 years now.I made it my priority to research everything I could on cluster headaches...and I do mean everything!

Just the last couple of months I have made some interesting connections in various wordwide studies that lead to a couple answers for possible (VERY POSSIBLE) reversal of the condition.

My sweetheart is eginning these supplements tomorrow and hopefully this time....(If you are a sufferer, you know all too well how many doctors, specialists, narcotics..etc that a person dealing with cluster headaches will go through to find anything to help.)

Here is what theresearch has pointed at (or lack of taking up this whole website I will not post everything, just the main points) Due to a low Melatonin levels in cluster headache patients, the circadian cycle (which regulates out sleep times...it's like our internal clock) is not regulated properly.  Also, research has demonstrated that low testosterone levels also effect the onset of cluster headaches. (even women have testosterone levels)

Please look at the following web addresses for further information.  I hope it helps you regain a normal life.  I pray for all of you!  Copy and paste the web addresses into your address bar to view them.  (I am in no way affiliated with these, they just really state what all the research points to) Hopefully my sweetheart will be finally free rom the "demon" and I pray you will too.

http://www.usdoctor.com/cluster.htm  
(watch the video by clicking your mouse on the photo of the man!)

http://headaches.about.com/gi/dynamic/offsite.htm?zi=1/XJ&sdn=headaches&zu=http%3A%2F%2Fwww.current-reports.com%2Farticle_frame.cfm%3FPubID%3DPA10-2-2-06%26amp%3BType%3DAbstract

Take Care,
Blue Bug
Title: Re: Possible Reversal for Cluster Headaches!
Post by Lotus on Jun 15th, 2007, 2:43am

Hello Bonnie and welcome

Just like to let you know that we have had in depth discussions before here about melatonin supplement and low testosterone in association with CH.

My husband's testosterone was found low during his last cycle and he was given Sustanon injections until the level was normal again. He also took melatonin 12 mg at night to help the sleep cycle. Both helped but did not completely stop the attacks. He continued to have daily attacks. The intensity may have been less with the correction of the testosterone level but since he was on other medications it was unclear how much was the effect of the sustanon. The melatonin helped block most of the night hits but some were still breaking through.

What helped the most was the combination of neurontin, verapamil and lithium. This blocked more than 2/3 of the normal attacks. Oxygen, ice, imigran or zyprexa took care of the rest.

However, he didnt become painfree ( no attack, no shadow ) until the cycle finished by itself.

I hope you your fiance has better luck with melatonin and testosterone supplement.

Painfree wishes to both of you.


Annette
Title: Re: Possible Reversal for Cluster Headaches!
Post by Bob P on Jun 15th, 2007, 7:39am
Low testosterone and melatonin are more likely effects than causes.  Look to what regulates the levels normally and you will be a step closer to the cause.
Title: Re: Possible Reversal for Cluster Headaches!
Post by thebbz on Jun 15th, 2007, 4:25pm
I have to agree with Bob. Dammit! :P
all the best
jb
Title: Re: Possible Reversal for Cluster Headaches!
Post by Pinkfloyd on Jun 15th, 2007, 4:54pm

on 06/15/07 at 16:25:47, thebbz wrote:
I have to agree with Bob. Dammit! :P
all the best
jb


Well...I'll agree with Bob P too as long as nobody tells him I did.

http://i23.photobucket.com/albums/b392/psiloscribe/sprint.gif
Title: Re: Possible Reversal for Cluster Headaches!
Post by Bob P on Jun 15th, 2007, 6:24pm
Hey, even a blind hog finds an acorn if he roots long enough.
Title: Re: Possible Reversal for Cluster Headaches!
Post by thebbz on Jun 15th, 2007, 6:33pm
You da man Mr. P ;) Lovely words of wit.
jb
Title: Re: Possible Reversal for Cluster Headaches!
Post by Jonny on Jun 15th, 2007, 9:23pm
Hey Bonnie,

Laughing my mother-fucking ass off! (I typed that out just for you) ;;D

Do you REALLY think you have found more than Dr Goasby?, he has been researching this for decades....and we only know what we do because of him.

" Reversal of the condition?".....to reverse it you have to know what started it.....Laughing my mother-fucking ass off once agian!!!

Go sell your shit elsewhere, bitch.....we can spot you walking in the door!

Your a fucking who.re, thats all you are!
Title: Re: Possible Reversal for Cluster Headaches!
Post by thebbz on Jun 15th, 2007, 9:54pm
Damm Jonny quit beatin around the bush..say it like it is [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]
jb
Title: Re: Possible Reversal for Cluster Headaches!
Post by gMike on Jun 15th, 2007, 9:58pm
He keeps holdin his emotions in like that, he's gonna explode!! ::) ;;D ;;D ;;D
Title: Re: Possible Reversal for Cluster Headaches!
Post by Ray on Jun 15th, 2007, 11:14pm
I take it that you suspect this person is a Troll?

Ray
Title: Re: Possible Reversal for Cluster Headaches!
Post by Jonny on Jun 15th, 2007, 11:20pm

on 06/15/07 at 23:14:19, Ray wrote:
I take it that you suspect this person is a Troll?


No one SELLS any HA cures on this site.....ok, Ray?
Title: Re: Possible Reversal for Cluster Headaches!
Post by Ray on Jun 15th, 2007, 11:28pm
Point taken, and I'll defend it to the death if need be.

Ray

PS Jonny, I needed the comic relief, by the way!  Thanks!
Title: Re: Possible Reversal for Cluster Headaches!
Post by UN solved on Jun 16th, 2007, 1:56pm
I was LMMFAO just reading the title to this thread !

I also took Melatonin 12mg nightly and had Testosterone injections @ the hospital for awhile and it did NOTHING for the attacks  :-/

Too bad there's not a reversal for this thread !

PF Wishes

UNsolved
Title: Re: Possible Reversal for Cluster Headaches!
Post by bonniebluebug on Jun 17th, 2007, 5:09pm
Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more!  These levels are low due to growing older.  The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them!  Also, if your so called doctors actually worked on "curing" you, where would their income be?  The majority of the medical professionals are not interested in you, only your money.  They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for!  Research that!
I thought I'd pass of some useful information, but I guess it does no good to help those who like feeling sorry for themselves and want the rest of the world to do the same.  And for all those of you who swore at me, get off your lazy uneducated butts and help yourself!
Title: Re: Possible Reversal for Cluster Headaches!
Post by Redd on Jun 17th, 2007, 6:15pm
[quote author=bonniebluebug link=board=chspecific;num=1181885587;start=0#14 date=06/17/07 at 17:09:51]Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more!  These levels are low due to growing older.  The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them!  Also, if your so called doctors actually worked on "curing" you, where would their income be?  The majority of the medical professionals are not interested in you, only your money.  They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for!  Research that!
I thought I'd pass of some useful information, but I guess it does no good to help those who like feeling sorry for themselves and wther fav of mine. I'd go just to hear Neil Peart bang the skins!!!

Trees always reminds me of this place  ;;D

One thing I forgot to mention about Waters.
Almost all concerts now do not allow any cameras. Waters allows "small disposable" cameras so there was plenty of flashes going off. They just don't want people walking in with "professional" equipment with zoom lenses etc. and I saw plenty of people having to "check" their equipment at the door.
I'm sure though that if someone has a small digital with a zoom that would fit into a pocket.......it would get it.

Bobw
Title: Re: Roger Waters Concert
Post by BlueMeanie on Jun 13th, 2007, 1:16pm
I was lucky to watch Pink Floyd perform "Divison Bell" in Chicago years ago. Just bought the DVD called "Pulse"  which is the exact same concert footage performed in the U.K. If you want to see a high quality Pink Floyd DVD, it is definately wniebluebug link=board=chspecific;num=1181885587;start=0#0 date=06/15/07 at 01:32:54]answers for possible (VERY POSSIBLE) reversal of the condition.

My sweetheart is eginning these supplements tomorrow and hopefully this time....[/quote]
Title: Re: Possible Reversal for Cluster Headaches!
Post by Kevin_M on Jun 17th, 2007, 6:30pm

on 06/15/07 at 01:32:54, bonniebluebug wrote:
that lead to a couple answers for possible (VERY POSSIBLE) reversal of the condition.



Answers should come after the question mark of your research.
Title: Re: Possible Reversal for Cluster Headaches!
Post by George_J on Jun 17th, 2007, 7:12pm

on 06/17/07 at 17:09:51, bonniebluebug wrote:
Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more!  These levels are low due to growing older.  The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them!  


Hm.

So howcome I started getting them at thirteen and cycled twice a year when I was younger?  It's only now that I'm older that they've begun to subside--at the same time that my testosterone and melatonin levels are apparently dropping.

I'm not the only one whose CH has followed this pattern.

For your clusterhead's sake, I hope whatever supplement cocktail he gets does something positive.  But I doubt that it will.

Best,

George  
Title: Re: Possible Reversal for Cluster Headaches!
Post by LeLimey on Jun 17th, 2007, 7:24pm
Our only hope is that with time they lessen.

You cannot "reverse" cluster headaches - an unfortunate turn of phrase at best.

Its not just my little boy who has CH, sadly we know of many kids with this horrific condition.

My sons neuro is one of the most eminent and respected CH specialists in the world. When Jasper described his headaches to him this man was sitting on the floor with him and struggling to swallow the lump in his throat (I had tears running down MY face)

I defy you to say doctors don't want to CURE clusters because they do. Anyone who has seen someone getting hit is horrified by what we go through - doctors included. Yes the money in medicine s good but the hours are crap, watching people suffer is not my idea of how to spend my days and their malpractice insurance is rocketing daily - being a doctor isn't all it's cracked up to be.
Title: Re: Possible Reversal for Cluster Headaches!
Post by AlienSpaceGuy on Jun 17th, 2007, 8:34pm

on 06/17/07 at 17:09:51, bonniebluebug wrote:
... Also, if your so called doctors actually worked on "curing" you, where would their income be?  The majority of the medical professionals are not interested in you, only your money.  They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for! ... 

Now, if that isn't a typical 'research result' from someone of the snake oil fraction.....         ::)
Title: Re: Possible Reversal for Cluster Headaches!
Post by BobG on Jun 19th, 2007, 11:56am

on 06/17/07 at 17:09:51, bonniebluebug wrote:
Melatonin and Testosterone... These levels are low due to growing older.  

Hmmmm....my clusters started when I was about 26 years old. That's about the peak time "to be a man". My clusters were at their worst until about age 50. Now that I've entered my sixth decade of life my melatonin and testosterone levels (may) be down a little but so are my clusters. Actually they have almost disappeared.

Not to change the subject but I do have a question. My hair has been thinning for the last 10 years and the clusters have are few and far between. What's up with that? Do we need new research? Any bald clusterheads out there?  ;;D
Title: Re: Possible Reversal for Cluster Headaches!
Post by michael on Jun 19th, 2007, 2:36pm
I lost most of my hair in my 20's......a year after I got married!
Title: Re: Possible Reversal for Cluster Headaches!
Post by Sandy_C on Jun 19th, 2007, 3:36pm

on 06/17/07 at 17:09:51, bonniebluebug wrote:
Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more!  These levels are low due to growing older.  The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them!  Also, if your so called doctors actually worked on "curing" you, where would their income be?  The majority of the medical professionals are not interested in you, only your money.  They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for!  Research that!
I thought I'd pass of some useful information, but I guess it does no good to help those who like feeling sorry for themselves and want the rest of the world to do the same.  And for all those of you who swore at me, get off your lazy uneducated butts and help yourself!

perhaps you'd suffer less if you educated yourself more!  

How dare you.  The people on these boards, many of whom have spent the majority of their lives researching about, learning about, attempting every possible remedy to CH that has ever been proposed to them, including brain surgery!  

How DARE you come in here as a "guest" and tell us to get off our lazy butts and educate ourselves.

I truly wish your sweetheart the best of luck and hope he will find pain free time.  But, he is going to have a hard row to hoe with a supporter such as yourself.

BEGONE!

Sandy
Title: Re: Possible Reversal for Cluster Headaches!
Post by LeLimey on Jun 19th, 2007, 6:39pm
Cor bloody blimey - I have NEVER seen Sandy get pissed before - impressive isn't she?!  ;;D
Title: Re: Possible Reversal for Cluster Headaches!
Post by Redd on Jun 19th, 2007, 7:59pm

on 06/19/07 at 18:39:12, LeLimey wrote:
impressive isn't she?!  ;;D


I hearby (un-officially) present her with her own troll poking stick.

http://www.articimo.com/africa%20walking%20stick.jpg

Welcome to the troll hunters club Sis....
Title: Re: Possible Reversal for Cluster Headaches!
Post by Sandy_C on Jun 20th, 2007, 12:29pm

on 06/19/07 at 18:39:12, LeLimey wrote:
Cor bloody blimey - I have NEVER seen Sandy get pissed before - impressive isn't she?!  ;;D



:-* :-* :-*

Thanks.  I do try to maintain a semblance of decorum at all times, lady-like (yeah, well whatever) and polite  (kinda sorta).  Screw that!

Pissed is not the word for my thoughts about that bimbo!  She just pushed my buttons the wrong way! >:(
Title: Re: Possible Reversal for Cluster Headaches!
Post by Sandy_C on Jun 20th, 2007, 12:32pm

on 06/19/07 at 19:59:51, Redd wrote:
I hearby (un-officially) present her with her own troll poking stick.

http://www.articimo.com/africa%20walking%20stick.jpg

Welcome to the troll hunters club Sis....




Dearest Pegg.  I most humbly thank you for this great honor and accept with humble humility, and vow to use the troll hunters club with wisdom, sensitivity, and humongous force.   ;;D

Sandy
Title: Re: Possible Reversal for Cluster Headaches!
Post by Ray on Jun 20th, 2007, 2:22pm
Dear Sandy:

I congratulate you with this honor, and hope to never incur your wrath!

Ray
Title: Re: Possible Reversal for Cluster Headaches!
Post by Sandy_C on Jun 21st, 2007, 1:24pm
Oh, Ray,  don't you worry your pretty little head about it.

I'm a very charming, sweet, kind, even tempered, docil, old lady of 61  ;)( wanna buy a bridge?)  

Trust me, I will bark, but when I am forced to bite, you WILL feel the pain.  ;;D

Sandy
Title: Re: Possible Reversal for Cluster Headaches!
Post by horsegirl on Jun 22nd, 2007, 8:28pm
hi horse girl here im new but not to ch,i have had mine sense 15 and cycled twice a year till25 now im 44 and down to every three years,for 6 weeks im in my 5 week and its been my whorst ever.Im realy bad with computers,but my daughter found this web site for me and i love all you guys,I dontr feel alone anymore.
Title: Re: Possible Reversal for Cluster Headaches!
Post by ClusterChuck on Jun 22nd, 2007, 8:33pm
Note to self: NEVER piss off Sandy ...

Chuck
Title: Re: Possible Reversal for Cluster Headaches!
Post by ClusterChuck on Jun 22nd, 2007, 8:38pm

on 06/22/07 at 20:28:35, horsegirl wrote:
hi horse girl here im new but not to ch,i have had mine sense 15 and cycled twice a year till25 now im 44 and down to every three years,for 6 weeks im in my 5 week and its been my whorst ever.Im realy bad with computers,but my daughter found this web site for me and i love all you guys,I dontr feel alone anymore.


Hi, horsegirl!  A fellow horse lover and former owner of several horses.

I am sorry to see you have to be here, but I am GLAD you found us!

Start a new thread, in the "Getting to Know You" section, and tell us of your life with clusters.  What have you tried.  What you are taking now.

Us nosey concerned people want to know, and see if we can offer any suggestions!

Chuck


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