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        Cluster Headache Help and Support >> Cluster Headache Specific >> It started three years ago. When does it end?
        
(Message started by: NoMoreCH on May 31^st, 2007, 3:20pm)

Title: It started three years ago. When does it end?
Post by NoMoreCH on May 31^st, 2007, 3:20pm

Anyone in here who is longer painfree now than the total period they suffered from CH? Or at least three years without attacks?

I would like to know if CH can go away again and never return, or that I am stuck for life with this crap....

Any succes stories or is this a life sentence?

Title: Re: It started three years ago. When does it en
Post by Sandy_C on May 31^st, 2007, 3:44pm

Well, NMCH, I'm not really sure what your are asking us to answer here.

I'm guessing your bottom line question is are you stuck with CH for life. Correct?

CH is a life sentence. Accept it. Now, learn to deal with it. Many CH sufferers have lived literally three decades and more with this affliction. The key word here is
lived.

Yes, CH has gone away for a few people. Never to return? No. I don't think so. CH is what it is, and it's different for everyone.

If you choose to look at your CH as a "life sentence" then that's exactly what it will be. If you choose to look at your CH as something that is part of you, part of your life, then you will look at CH as nothing more than something that is you, something that you have to deal with, no more.

Yes, it may be a lifetime sentence. It's what you do with that knowledge that makes the difference.

Sandy

Title: Re: It started three years ago. When does it end?
Post by Wayne on May 31^st, 2007, 3:55pm

I think that if anyone had told me that this time a year ago I probably would have shot myself. It does seem to be manageable though, knowledge is an excellent ally, so is caffiene!

Title: Re: It started three years ago. When does it end?
Post by aprilbee on May 31^st, 2007, 4:11pm

You're stuck for life....but it is who you are...embrace it and learn from it become the strongest person you know! :)

Title: Re: It started three years ago. When does it end?
Post by billyjoe on May 31^st, 2007, 4:16pm

All I can tell you is I had 6 years pain free prior to this attack. Not sure if being smoke free for 5 years had anything to do with it, but I started up a year ago and here I am again. Needless to say, I'm on the wagon again.

Title: Re: It started three years ago. When does it end?
Post by BarbaraD on May 31^st, 2007, 4:44pm

some go for years without an attack and some are chronic for years and years and then just stop (for how long who knows). The beast is just not something you can make book on. He hits when he gets ready and you accept it as such.

But when you're pain free you make the most of your PF time and don't anticipate his coming back until he does.

Attitude Attitude Attitude.

Hugs BD

Title: Re: It started three years ago. When does it en
Post by Paul98 on May 31^st, 2007, 4:45pm

on 05/31/07 at 15:44:53, Sandy_C wrote:

Ditto

And to add to it, CH has opened doors for me in life. If I did not have Ch I would not have understood some opportunities and made friends with a broad specrum of people.

-P.

Title: Re: It started three years ago. When does it en
Post by George_J on Jun 1^st, 2007, 3:07am

on 05/31/07 at 16:45:31, Paul98 wrote:

And to add to it, CH has opened doors for me in life. If I did not have Ch I would not have understood some opportunities and made friends with a broad specrum of people.

-P.

Right, Paul. Can't say that I'd choose to do this again (as if choices are given) but I wouldn't be the same person if CH wasn't a thread throughout my life.

It's not a sentence--it just is.

Will it continue for you, NMCH? No one can answer that. Perhaps yes, perhaps no.

But then again, nothing is certain, eh?

Best wishes always,

George

Title: Re: It started three years ago. When does it end?
Post by BC_Battler on Jun 1^st, 2007, 4:03am

It might never end, sadly.

I've been fighting CHs for a couple of years and have fairly frequent cycles of pain that last for months. Right now I am in the middle of a tough cycle and am having absolutely no fun. I dread going to sleep because I know the beast will return. But I also know that better days lie ahead and despite the pain I have a pretty good life.

Keep your head up. CHs are tough, but I guarantee that you are tougher.

Here's to a pain-free night! Cheers

Title: Re: It started three years ago. When does it end?
Post by taraann on Jun 1^st, 2007, 2:00pm

Expect the worst, hope for the best. That said, my grandpa outgrew them. So I am hoping for the same but expecting to be stuck with them for life so that way I always have good coping mechanisms. I have come a long, long way with coping better. 9 years ago I was a mess and I was episodic back then. I would freak out over a kip 4. Now I am chronic and I can handle a whole hell of a lot more! It takes quite a bit to freak me out now. Unless it's the dentist ;;D

Title: Re: It started three years ago. When does it en
Post by MR_FLOOR on Jun 5^th, 2007, 12:24am

on 05/31/07 at 15:44:53, Sandy_C wrote:

CH is a life sentence. Accept it. Now, learn to deal with it. Many CH sufferers have lived literally three decades and more with this affliction. The key word here is
lived.

If you choose to look at your CH as a "life sentence" then that's exactly what it will be. If you choose to look at your CH as something that is part of you, part of your life, then you will look at CH as nothing more than something that is you, something that you have to deal with, no more.

Sandy

You are so right Sandy if there is one thing I learned from this site is you can't let it beat you.Like Chuck always says Attitude Attitude Attitude.

Dave