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        Cluster Headache Help and Support >> Cluster Headache Specific >> Interesting Statistic. [I thought]
        
(Message started by: DannyV on May 9^th, 2007, 12:54am)

Title: Interesting Statistic. [I thought]
Post by DannyV on May 9^th, 2007, 12:54am

An article on headache that I read in a magazine called" Hospital Physician-Neurology Board Review" was titled[of course] "Migrane And Related Syndromes"
Part of the article focused on CH. The doctor who wrote the article stated [briefly] how unbareable the pain is and how it does not recieve nearly as much attention in the medical community as Multiple Sclerosis does, even though just as many people suffer from each in this country. He showed identical numbers.
Could that be possible? I have known a couple people who had M.S. I Never met anyone with this.

Title: Re: Interesting Statistic. [I thought]
Post by birdman on May 9^th, 2007, 8:47am

I had always been under the impression that Ch's are rare. In 20 years of suffering, I have only meet one person who is also a sufferer. I personally know 3 MS patients closely.

Title: Re: Interesting Statistic. [I thought]
Post by chrisw on May 9^th, 2007, 10:41am

I dont believe it. I know three people with MS, and have never met another clusterhead.

Chrisw

Title: Re: Interesting Statistic. [I thought]
Post by nani on May 9^th, 2007, 10:46am

It's true. MS gets a lot more press, and generally, it's easier to diagnose. Think of how many of us spent years being misdiagnosed. Dr Andrew Sewell, formerly of Harvard McLean, and currently collecting data for a potenial study on LSA and kudzu's efficacy for CH, told us that at the OUCH convention in July. That may be his article. He is currently working independently and being funded by MAPS. Harvard McLean is still handling the pending psilocybin and CH study.

Title: Re: Interesting Statistic. [I thought]
Post by LeeS on May 9^th, 2007, 12:23pm

With all due respect to Dr Sewell nani, I do believe it was Goadsby et al who first mentioned similar prevalence levels (based on UK stats though):

Quote:

Epidemiology

The prevalence of CH is estimated to be 0.1 per cent, about the same as that of multiple sclerosis in the UK. The male-female ratio is 3.5-7:1. It can occur at any age, although the most common age of onset is the third or fourth decade of life.

Source: http://www.hospital-doctor.co.uk/hd_news/hd_news_article.asp?ID=2498&Section=Feature

However, the latest figures quoted by the IoN for CH is between 0.2%-0.4% for CH. I don't believe MS has increased so significantly in such a short space of time :-/

-Lee

Title: Re: Interesting Statistic. [I thought]
Post by nani on May 9^th, 2007, 12:32pm

I don't know who said it first, Lee... I just said that Andrew told us in his presentation. :P ;)

I also thought that the article mentioned might be Andrew's. But I'm not sure about that. :-[

Title: Re: Interesting Statistic. [I thought]
Post by LeeS on May 9^th, 2007, 1:09pm

Hey nani, not having a go at you, and certainly not supporting that lot at the IoN :P

Calm down love and have a fag ;;D

-Lee

Title: Re: Interesting Statistic. [I thought]
Post by Margi on May 9^th, 2007, 1:12pm

just ignore Lee, Nani. I bet he's the kind of guy who paper clips his socks together in the drawer.

I think him telling you to become homosexual is a little over the line though.... :-/

Title: Re: Interesting Statistic. [I thought]
Post by LeeS on May 9^th, 2007, 1:38pm

Oh no! It's like waiting for a bus. Two menopausal women on my back now; all we need now is that limey-bird :P

:-*

Title: Re: Interesting Statistic. [I thought]
Post by DannyV on May 9^th, 2007, 1:48pm

Just so y'all know ,this particular article was written by Dr. Paul Rizzoli also from Massachusetts. He is head of the Graham Headache Center. I believe he is also on the Board Of Neurology @ Harvard Medical School.
Fag means cigarette in England.

Title: Re: Interesting Statistic. [I thought]
Post by Margi on May 9^th, 2007, 1:58pm

Yes, I did know that, Danny. But, hey, thanks for stepping on my punchline! ;) (I'm just teasing).

As an aside to Lee ... your callous nomenclature and presumptive labelling is duly noted and filed for future reference/retribution. Be warned. So tell us Lee....where DID you come up with your screenname?
:-*

Title: Re: Interesting Statistic. [I thought]
Post by nani on May 9^th, 2007, 5:35pm

LOL... I stepped away and missed all the fun.
Lee, darling, I've given up fags... they were bad for my health, and self-esteem.
Danny, don't mind Lee and Margi... they like to play.

Title: Re: Interesting Statistic. [I thought]
Post by DannyV on May 9^th, 2007, 6:23pm

Sorry. I saw that Canadian flag and just assumed that you were not very cultured. I will however be forever endebted to you for Bobby Orr.
Wow this place is fun. You are all hot shits.

Title: Re: Interesting Statistic. [I thought]
Post by Rosybabe on May 9^th, 2007, 6:35pm

[smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]

Title: Re: Interesting Statistic. [I thought]
Post by BlueMeanie on May 9^th, 2007, 11:41pm

You probably HAVE met a few Clusterheads and just not known it. The ones that i've known (prior to finding this board) I knew for a few years before we discovered we where BOTH Clusterheads. Unless they are in cycle, its' hard to tell. ;)

Title: Re: Interesting Statistic. [I thought]
Post by Charlotte on May 9^th, 2007, 11:54pm

One of the guys I work with is episodic ch. Like blue meanie says, you wouldn't know unless someone is in cycle or sees you getting hit. My friend Reg has had a couple of pf years.

Charlotte