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        Cluster Headache Help and Support >> Cluster Headache Specific >> clusterheadache~
        
(Message started by: daniel96 on Feb 12th, 2007, 1:01am)
Title: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 1:01am
Hello all, its been a nice and informative forum here. I was diagnosed with cluster headaches 2 years ago and now I am  still on medication like most of you do.  I read up that caffeine do helps during CH periods and I am going to try out during my CH period which is now. I hope it can somehow reliefs me from the headaches as my medication seems to take much longer time to subside the headaches. I am keen to know more CH friends out there, and hopefully to know more about this headache and more ways to counter to CH.
This is my brief information of my CH record.

Age:25
Gender: Male
Medication: Verpamil (40mg) & SumaTriptan (50mg) Imigran
CH Periods: During Spring. February to March Period. Normally occurs around 10am in the morning. Attack lasts for 1 - 2 hours.

Just to check if there's anyone from singapore here... :)

Cheers.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 1:16am
Oops forgot to indicate my daily dose

Verpamil is 480mg/day
Title: Re: clusterheadache~
Post by georgej on Feb 12th, 2007, 1:17am

on 02/12/07 at 01:01:47, daniel96 wrote:
Age:25
Gender: Male
Medication: Verpamil (40mg) & SumaTriptan (50mg) Imigran
CH Periods: During Spring. February to March Period. Normally occurs around 10am in the morning. Attack lasts for 1 - 2 hours.

Just to check if there's anyone from singapore here... :)

Cheers.


Welcome, Daniel.

As far as I know, you're the first from Singapore here.

I'll defer to those with more knowledge of the medications you're taking.  I'm sure they will be along shortly to greet you as well.

Again, welcome--it's a pleasure to meet you.

Best,

George
Title: Re: clusterheadache~
Post by duckie on Feb 12th, 2007, 3:28am
Hey Daniel,

I'm not from Singapore but will an Aussie help!  Just on caffeine, a lot of people have tried Red Bull or other energy drinks with caffeine and taurine with some success.  I've tried it only a couple of times but it seems to lessen the attack somewhat.  Trick is to "slam it down fast", won't work as well if you don't scull.  Like George I will defer to the more experienced CHers here for medication information.

I've only just recently started posting messages and I can say that you'll find everyone really helpful and supportive.  

PF vibes to you

Lii
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 5:38am
Great. Hope we can share more information around here.

And for every CH cycle,there's a difference in terms of time/no.of attacks right? cause for the past 2 years I seems to experience different time of the day & no. of attacks per day.
Title: Re: clusterheadache~
Post by seasonalboomer on Feb 12th, 2007, 6:41am
Yes, Daniel, CH seems to constantly "morph". Just when you think you got it's schedule down it'll throw you a curve ball.

Welcome to the site. Thee's a lot of info on the main site but also in looking at a lot of the past threads.

Are you using injectable sumitriptan? (In the U.S. we have "Imitrex" which is injectable that can extinguish a hit in less than 5 minutes.) The pills take too long.

Scott
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 6:49am

on 02/12/07 at 06:41:49, seasonalboomer wrote:
Yes, Daniel, CH seems to constantly "morph". Just when you think you got it's schedule down it'll throw you a curve ball.

Welcome to the site. Thee's a lot of info on the main site but also in looking at a lot of the past threads.

Are you using injectable sumitriptan? (In the U.S. we have "Imitrex" which is injectable that can extinguish a hit in less than 5 minutes.) The pills take too long.

Scott


Hi Scott, currently I am still using pills. Its used to take about 15mins for it to take effect but sad to say this morning It didn't worked. I have to look into the cost too as I still a student else I would have look into other treatments.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 7:27am
+ a update for all

- almost have 2th attack of the day.

* quickly open a can of red bull + put in one glass of ice and glup it down.

The headache aborted in roughly 10-15mins.

COOL. hope this continues.   [smiley=laugh.gif]
Title: Re: clusterheadache~
Post by Guiseppi on Feb 12th, 2007, 10:08am
Hey welcome to the board, it is a great forum for swapping what works and doesn't work. Have you tried oxygen yet? For me it will abort a headache in as little as 3-4 minutes if I start it at the first sign of a headache.

It must be used at a high flow rate, up to 15LPM and using a non- rebreather or "cluster" mask.

Glad the energy drink worked for you, wishing you a short cycle this time around!

Guiseppi
Title: Re: clusterheadache~
Post by froggy on Feb 12th, 2007, 11:07am
Hi Daniel,

If you're here, you're definitely doing something right!

Welcome
Title: Re: clusterheadache~
Post by Turts on Feb 12th, 2007, 3:21pm
Gday Daniel,

welcome aboard

TUrts
Title: Re: clusterheadache~
Post by chewy on Feb 12th, 2007, 5:01pm
The verapamil dosgae is the same as mine and it is effective for me. Others require a higher dosage.

Have you considered imitrex injections rather than pill form?

Also melatonin is a good sleep aid and is available over the counter in the US. Dont know about Singapore.

Another option that may break a cycle entirely is a prednisone taper. Ussually only effective if done in conjunction with a theraputic dose of a preventative.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 8:02pm

on 02/12/07 at 10:08:32, Guiseppi wrote:
Hey welcome to the board, it is a great forum for swapping what works and doesn't work. Have you tried oxygen yet? For me it will abort a headache in as little as 3-4 minutes if I start it at the first sign of a headache.

It must be used at a high flow rate, up to 15LPM and using a non- rebreather or "cluster" mask.

Glad the energy drink worked for you, wishing you a short cycle this time around!

Guiseppi


I have not yet try on oxygen yet cause need my neuro to refer me to the vendor and I yet to find out the cost too. If its too expensive I have to consider.

Yeah the energy works pretty fine for the first time, will be trying out it again. But bad thing is cant sleep well cause too awake in the night lol.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 8:03pm

on 02/12/07 at 11:07:12, froggy wrote:
Hi Daniel,

If you're here, you're definitely doing something right!

Welcome


Thanks froggy!
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 8:03pm

on 02/12/07 at 15:21:51, Turts wrote:
Gday Daniel,

welcome aboard

TUrts



Gday to you too Turts. :)
Title: Re: clusterheadache~
Post by BB on Feb 12th, 2007, 8:11pm

Hi Daniel,

Welcome to the Board and painfree wishes to you.

I am glad to hear that the Red Bull is working well for you. Have you tried ice on the neck during a hit ? It can help a lot with the pain too.

My husband who has CH is also called Daniel, I hope that its just a popular name and not a common trait !  :P  8)  ;)  ;;D

All the best.

Annette
Title: Re: clusterheadache~
Post by Barry_T_Coles on Feb 12th, 2007, 8:19pm
Hi Daniel

Welcome aboard http://bestsmileys.com/waving/2.gif

Cheers
Barry
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 9:14pm

on 02/12/07 at 20:11:47, BB wrote:
Hi Daniel,

Welcome to the Board and painfree wishes to you.

I am glad to hear that the Red Bull is working well for you. Have you tried ice on the neck during a hit ? It can help a lot with the pain too.

My husband who has CH is also called Daniel, I hope that its just a popular name and not a common trait !  :P  8)  ;)  ;;D

All the best.

Annette


Hi Annette, the pain at the neck is towards the slightly left of the neck right? cause I always have pain over there. So far I haven't tried ice pack, Daniel is a powerful name hehe I feel.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 9:15pm

on 02/12/07 at 20:19:36, Barry_T_Coles wrote:
Hi Daniel

Welcome aboard http://bestsmileys.com/waving/2.gif

Cheers
Barry



Hi Barry :)
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 9:20pm
Hi dear friends, I have a question here.

Just to check .. does anyone of you family's members have such issue on CH? its not heritable from parents right?

Cause according to my family history, I seems to be the first who got CH. There's some of my family members who have migraines. And I just went for my Thalassaemia DNA test to check if I have it, cause my aunt's have it and its can be along with the family tree.
Title: Re: clusterheadache~
Post by BB on Feb 12th, 2007, 9:44pm

CH is not strongly inheritable in comparison to other medical conditions but there are families with more than one member with CH. Its more common to find migraine in the relatives of a CHer.

In my Daniels case, he is the only one diagnosed with CH but he has many relatives with migraines.

BTW, are you a smoker? Most CHers are or were ( heavy ) smokers. Whether smoking was causative or just a by product of CH, the debate continues.

Wishing you PFDAN

Annette
Title: Re: clusterheadache~
Post by AussieBrian on Feb 12th, 2007, 9:48pm
A firm and accurate diagnosis of CH really is important because firstly we tend to take quite strong medications which do you no good if you don't need them and, secondly, because if you're being treated wrongly then another condition is being left un-treated completely.

Just keep asking questions, mate, because knowlege is our best weapon.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 10:27pm

on 02/12/07 at 21:44:15, BB wrote:
CH is not strongly inheritable in comparison to other medical conditions but there are families with more than one member with CH. Its more common to find migraine in the relatives of a CHer.

In my Daniels case, he is the only one diagnosed with CH but he has many relatives with migraines.

BTW, are you a smoker? Most CHers are or were ( heavy ) smokers. Whether smoking was causative or just a by product of CH, the debate continues.

Wishing you PFDAN

Annette



Hi Annette, I used to be a smoker during my army days. But nowadays I don't touch it anymore. As for beer & wine also very seldom. But I know when I used to smoke or drink, its doesn't trigger it as my CH is episodic , It come in periodic form.
Title: Re: clusterheadache~
Post by daniel96 on Feb 12th, 2007, 10:28pm

on 02/12/07 at 21:48:29, AussieBrian wrote:
A firm and accurate diagnosis of CH really is important because firstly we tend to take quite strong medications which do you no good if you don't need them and, secondly, because if you're being treated wrongly then another condition is being left un-treated completely.

Just keep asking questions, mate, because knowlege is our best weapon.


Yeah I agreed with you. I don't like medicines at all. Make me feel weaker.
Title: Re: clusterheadache~
Post by duckie on Feb 13th, 2007, 3:03am
Hey Daniel,

Just to add to Annette's post I have a family history of migraines on my mother's side but the first CHer in the family that i know of.  Ice packs help (or frozen peas!!) and I just put it where it hurts.  From reading some other posts some people get a lump on the neck/mouth/head etc when they get an attack.  

PF vibes, Lii
Title: Re: clusterheadache~
Post by tanner on Feb 13th, 2007, 3:42am

duckie, I thought I would introduce myself and say Happy Valentines Day at the same time. There aren't many of us on at this time in the states which I hope is a good thing.

I look forward to getting to know you as time goes on!

Best wishes....... Tim
Title: Re: clusterheadache~
Post by duckie on Feb 13th, 2007, 4:00am
Hey Tim, you are up early hope you are having a PF night  :) It's only 8pm here so it's my usual log in time.

Wishing you a Happy Valentines day to you too, you're the first one to wish me one  ;)  May we all be PF and loved on this special day.

I look forward to getting to know you too, I don't know what i did without this place.  Out of curiousity is tanner a last name??

Lii
Title: Re: clusterheadache~
Post by daniel96 on Feb 13th, 2007, 7:38am

on 02/13/07 at 03:03:02, duckie wrote:
Hey Daniel,

Just to add to Annette's post I have a family history of migraines on my mother's side but the first CHer in the family that i know of.  Ice packs help (or frozen peas!!) and I just put it where it hurts.  From reading some other posts some people get a lump on the neck/mouth/head etc when they get an attack.  

PF vibes, Lii


ohh Okay duckie haha good to hear that it works for u... so far the red bull is doing fine for me , had 2 attacks , I had one can before it hit me hard. It manage to go off in less than 15mins. very cool. One can of red bull is $1 SGD, one pill is $10 SGD. lol
Title: Re: clusterheadache~
Post by daniel96 on Feb 13th, 2007, 7:40am
4 hours to Valentine day. I got no lover lol. Anyway happy valentine day to all CHers.


Enjoy ur day with your love one yah.

;;D ;;D ;;D ;;D ;;D ;;D
Title: Re: clusterheadache~
Post by BB on Feb 13th, 2007, 9:33am

on 02/13/07 at 07:40:28, daniel96 wrote:
4 hours to Valentine day. I got no lover lol.
;;D ;;D ;;D ;;D ;;D ;;D



Well, you have got a few hours to go get yourself one!   ;)  ;;D

Annette
Title: Re: clusterheadache~
Post by daniel96 on Feb 13th, 2007, 9:44am

on 02/13/07 at 09:33:17, BB wrote:
Well, you have got a few hours to go get yourself one!   ;)  ;;D

Annette



I already open my door & put a sign "25/m/single & available free on 14th Feb". No one knock on my door yet. LoLx.
Title: Re: clusterheadache~
Post by BB on Feb 13th, 2007, 9:54am

on 02/13/07 at 09:44:16, daniel96 wrote:
I already open my door & put a sign "25/m/single & available free on 14th Feb". No one knock on my door yet. LoLx.



LOL ! You dont have much experience with marketing ploy do you ? You will do much better by posting a photo of a really really cute dog with the following ad : " really cute puppy, absolutely adorable, completely house trained, loved to be cuddled, free to a good home, desperately need a lady owner " .... You will surely get many many knocks, so many that you may not be able to cope with ....  8)

Just one thing, when answering the door, explain that the puppy has gone, you simply forgot to take the sign down, but the puppy's ex owner is still available !  ;)

;;D

Annette
Title: Re: clusterheadache~
Post by daniel96 on Feb 13th, 2007, 10:02am

on 02/13/07 at 09:54:18, BB wrote:
LOL ! You dont have much experience with marketing ploy do you ? You will do much better by posting a photo of a really really cute dog with the following ad : " really cute puppy, absolutely adorable, completely house trained, loved to be cuddled, free to a good home, desperately need a lady owner " .... You will surely get many many knocks, so many that you may not be able to cope with ....  8)

Just one thing, when answering the door, explain that the puppy has gone, you simply forgot to take the sign down, but the puppy's ex owner is still available !  ;)

;;D

Annette


*JAWS DROPPED* LOL. THAT's a nice one!!!! worth a try though. hahahaha.

I guess Daniel (your hubby) sure got a way of wooing you last time, he sure have more creative ideas then.  hahaha...
Title: Re: clusterheadache~
Post by BB on Feb 13th, 2007, 10:43am

on 02/13/07 at 10:02:52, daniel96 wrote:
I guess Daniel (your hubby) sure got a way of wooing you last time, he sure have more creative ideas then.  hahaha...


The only thing I will tell is that I didnt get an engagement ring initially, I got an engagement dog !  8)

Annette
Title: Re: clusterheadache~
Post by daniel96 on Feb 13th, 2007, 11:09am

on 02/13/07 at 10:43:46, BB wrote:
The only thing I will tell is that I didnt get an engagement ring initially, I got an engagement dog !  8)

Annette



thats is so sweeeeeeetttttttt OMG!!! lol you are so loved by him yah.... envy envy . lol


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