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Cluster Headache Help and Support >> Cluster Headache Specific >> getting in the way of my life
(Message started by: sanj on Feb 4th, 2007, 11:48pm)

Title: getting in the way of my life
Post by sanj on Feb 4th, 2007, 11:48pm
[smiley=huh.gif][i][/i]

hi all im new to the site but a veterin for clusters, now have had them for 14 years it is getting in the way of my work now taking time of work. employers not being supportive enough,
like now i was 0ff work for 4 days sick leave cause of the c.h went back for two days thinking they have subsided but ohno they came back with vengence. so going sick again will cause problems with my employer and cause me more stress resulting in more c.h what a life .
[smiley=huh.gif] :'( :)

Title: Re: getting in the way of my life
Post by JohnM on Feb 5th, 2007, 7:32am
Hi Sanj

Welcome to our world.

Unfortunatly, most people who suffer from episodic CH do so for many weeks or several months at a time. They can't afford to take all these weeks off work or else they risk losing their job.

You need to find an abortive (like Imigran injections) that you can take at work and knock out a CH quickly so that you can get back to work without taking any time off (or without pissing off your inconsiderate boss), and then work with your doctor to find a preventative that works for you.

Read as much as you can on this board and maybe print out some stuff to take to the Dr to make sure he prescribes Imigran and anything else that may be worth a try. Trust me - your Dr probably knows less about CH than you do!

John

Title: Re: getting in the way of my life
Post by burnt-toast on Feb 5th, 2007, 9:43am
Many of us have been in your shoes.  

You haven't mentioned any help/treatments -  If you're attempting to deal with this on your own, you're most likely suffering more than you need to.  A cure may not be possible but there are ways to improve your condition.  

Take some time to look around/read and if you aren't currently under a doctor's care make it a priority to get some help.

Best wishes,

Tom    

Title: Re: getting in the way of my life
Post by mel on Feb 5th, 2007, 1:35pm
Hello sanj,

Please click on this link: http://www.ouch-us.org/chinfo1.htm  and read as much as possible on help for preventatives, abortives, dealing with friends, family, workplace and much more.

Oxygen has helped a great many cluster sufferer and would be vital to research.  

All the info. you need is in the link I gave you.  

Take care,
melissa

Title: Re: getting in the way of my life
Post by Mattrf on Feb 5th, 2007, 6:52pm
Sorry you are having a rough time and I know the added stress of worrying about job security does not help at all, I wish I had some good advice for you but I work with a bunch of doctors in a research center and they all know what I have and are very supportive but I still worry about my job, even the best employer can take only so much missed work no matter how understanding they are or how hard you try not to let it interfere with work.
I hope everything works out for you, I am sending some positive vibes your way, hang in there.

Matt



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