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Cluster Headache Help and Support >> Cluster Headache Specific >> Still blows my mind
(Message started by: bruce802 on Jan 31st, 2007, 9:42am)

Title: Still blows my mind
Post by bruce802 on Jan 31st, 2007, 9:42am
I have been suffering from CH’s since I was about 18 years old.  I am now 38 years old and I still I sit here and shake my head at how ridiculously weird of a sickness this is.  To think that these headaches are so excruciating at times and not knowing why we get them and how they can hit you like clockwork is just F****** weird to me.

Bruce

Title: Re: Still blows my mind
Post by brewcrew on Jan 31st, 2007, 1:38pm
It's still a McMystery.

Title: Re: Still blows my mind
Post by 5yearsteve on Jan 31st, 2007, 3:24pm
Yeah, I think of this a lot also. Maybe our brains are performing a scan disk, defragging, and then replacing missing clusters. HAHA  

Title: Re: Still blows my mind
Post by georgej on Jan 31st, 2007, 4:52pm
I'm still astounded when I come out of one that it hasn't killed me outright.

:P

George

Title: Re: Still blows my mind
Post by starlight on Jan 31st, 2007, 5:17pm
Bruce, I have been getting them for almost 20 years too since I was 14 yrs. old.  The nature of them, their clockwork nature, the "unexplained" nature of them and also how badly they suck has also caused me to try to find some meaning or explanation--perhaps even a kind of spiritual pondering.  I would be curious if anyone had any thoughts.  I mean--they are definitely weird--especially how they come at night (for me anyway).  

Title: Re: Still blows my mind
Post by Turts on Jan 31st, 2007, 6:26pm
I think the wierdness of how they come, work, and go makes it all the more difficult for "outsiders' to understand or appreciate how severe they are aswell.

Turts

as for the title????

I think " still explodes my mind"

          "still excruciatingly, agonisingly, tormently destroys my mind and livelyhood"

could have worked aswell.  ;;D

Turts





Title: Re: Still blows my mind
Post by taraann on Jan 31st, 2007, 9:40pm
Yup still blows my mind how I haven't blown my brains out yet............ oooh sorry kinda dark but I come from a family with a dark sense of humor, so naturally when I read the title I though that immediatly!  

Quote:
I was about 18 years old.  I am now 38 years old

I was pre-first child and I am still going ... not 10 yrs yet but it feels like a million.  If this "affliction" isn't titled yet completely and properly the one thing it sure is, is depressing!

Title: Re: Still blows my mind
Post by Skyhawk5 on Jan 31st, 2007, 11:39pm
I do believe there is a light out there but it would sure be nice if I didn't need the Hubble Telescope to see it.


Title: Re: Still blows my mind
Post by MJ on Feb 1st, 2007, 12:28am

And now the freaking hubble broke. But there is still a light out there.

Your right Bruce its a pretty strange affliction.

Title: Re: Still blows my mind
Post by Filbert on Feb 1st, 2007, 4:46am
A year or so ago AussieBrian described the pain of CH as being like pure white pain. Pain in its purest form. It's a description that struck a chord with me. Sorry Brian if I didn't remember your description spot on.

  Fil.

Title: Re: Still blows my mind
Post by taraann on Feb 1st, 2007, 4:52pm

on 01/31/07 at 23:39:15, Skyhawk5 wrote:
I do believe there is a light out there but it would sure be nice if I didn't need the Hubble Telescope to see it.

My dad helped build the Hubble.......LOL funny it's had so many problems.

Title: Re: Still blows my mind
Post by Chillrmn1 on Feb 1st, 2007, 7:00pm
Yep, I can't imagine there's not one of us that doesn't think and wonder the same things.......the whys, whats, and how this disorder manifests and can't be cured in this day and age of science, technology, and medicine. Hopefully one day soon.

Title: Re: Still blows my mind
Post by Barry_T_Coles on Feb 2nd, 2007, 8:05am
If I was a masochist and experienced this pain I would have a serious look at myself  and say Your one sick Puppy. :-/

Title: Re: Still blows my mind
Post by TonyG1 on Feb 2nd, 2007, 6:24pm
Bruce -- Been doing this 20+ years as well.... never fails to amaze me when a new cycle starts... :o

Can't do a darn thing but arm yourself with meds / O2 and ride it out...  

Title: Re: Still blows my mind
Post by ccbiggsoo7 on Feb 17th, 2007, 3:40am
kinda reminds you of a unhappy marriage doesn't it.

Title: Re: Still blows my mind
Post by BrianJ on Feb 17th, 2007, 5:22am
I say to my wife every single time im coming out of a CH

"what a f*****g stupid illness it hurts so bad then just goes away"

I cant believe that summin that hurts me so much that i cry like a little girl isnt going to kill me

This Beast we suffer from has a wacked sence of humor that is for sure.

Title: Re: Still blows my mind
Post by ccbiggsoo7 on Feb 17th, 2007, 1:11pm
I think it shows just how strong the fight can be in an individual, when one has no other choice. Never in my life have i experienced, or would want my worst enemy to experience the pain of these god awful things. When first diagnosed i remember walking into the pawn shop and staring at the handguns, contemplating that "it" was the only way out.Six a day, was taking its toll on me. I didn't want to live anymore and i wasn't going to suffer like this, life just wasn't worth it. Then luckily i found a good neuro and imitrex got me threw the physical , and the good ol people and stories of this site pulled me threw the mental aspect. Knowing that i wasn't alone and had other people that was going threw this and had tuffed it out made me fighter! I still get my ass knocked off but your bet your ass im not laying down!!

Title: Re: Still blows my mind
Post by Phil L on Feb 17th, 2007, 3:21pm
Amen

Title: Re: Still blows my mind
Post by TonyG1 on Feb 17th, 2007, 4:02pm

on 02/17/07 at 13:11:09, ccbiggsoo7 wrote:
Knowing that i wasn't alone and had other people that was going threw this and had tuffed it out made me fighter! I still get my ass knocked off but your bet your ass im not laying down!!


You said it .... http://www.websmileys.com/sm/violent/sterb029.gif



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