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        Cluster Headache Help and Support >> Cluster Headache Specific >> Strange headache
        
(Message started by: downstairs on Jan 25^th, 2007, 1:46pm)

Title: Strange headache
Post by downstairs on Jan 25^th, 2007, 1:46pm

I'm 2 weeks into my first cycle ever, so pardon my newbie questions.

I've exclsuively had headaches that last 15 mins to 1 hour. They range from KIP 1 to 8, but they seem to come and go in that time.

Last night I had a definate 10. It sucked big time, especially since it was overnight while sleeping (well, I wasn't sleeping anymore). That lasted an hour or so, which is normal.

Then at 7am I got something in the range of a 4... but it didn't go away... it lasted until like noon... went up to around an 8... 5 hours of in-and-out headache.

Is this normal? Should I expect this from time to time, or is this an indication of something bad?

No medication worked on any of this (actually, at this point, nothing is really working for me- still trying to find the right meds for me).

Title: Re: Strange headache
Post by vietvet2tours on Jan 25^th, 2007, 2:01pm

Oxygen my friend

Title: Re: Strange headache
Post by downstairs on Jan 25^th, 2007, 2:05pm

on 01/25/07 at 14:01:18, vietvet2tours wrote:

Oxygen my friend

My neuro didn't perscribe any. I'm going to try to bug him to do that for me next time :(

It sucks.

Can I just get my own O2 w/o a perscription? I mean... its oxygen... its not really controlled is it?

Title: Re: Strange headache
Post by vietvet2tours on Jan 25^th, 2007, 2:12pm

on 01/25/07 at 14:05:47, downstairs wrote:

Just get some from your local welding supply shop

Title: Re: Strange headache
Post by Mattrf on Jan 25^th, 2007, 2:14pm

You should get him to prescribe it and make sure you get a high flow regulator and a non re-breather mask as well the tube things just don’t work.
Read everything you can here and print out and take it with you to your doctor to educate him as most people her have to, the neurologist normally just do not know enough to treat you properly and you have to help them.

Read the O2 info on the left.

Hope your cycle ends soon, welcome to the board.

Matt

Title: Re: Strange headache
Post by JeffB on Jan 25^th, 2007, 3:06pm

It's not that strange my friend. Sounds like you may be in or close to the middle of a cycle.

Title: Re: Strange headache
Post by vietvet2tours on Jan 25^th, 2007, 3:14pm

on 01/25/07 at 14:05:47, downstairs wrote:

The question was "Can I just get my own O2 w/o a perscription? I mean... its oxygen... its not really controlled is it?" If ya don't want to wait go the welders o2 route. I did and it was the best day of my life.

Title: Re: Strange headache
Post by BB on Jan 25^th, 2007, 6:29pm

My husband very commonly has "residual pain" or a persistent shadow that can last for hours after a bad CH hit, especially a kip10.

What you described sounds like heavy shadowing and its not that rare.

Try oxygen, red bull and lots of water, it may help.

Painfree wishes to you.

Annette

Title: Re: Strange headache
Post by BarbaraD on Jan 25^th, 2007, 7:04pm

Welcome to the family Down.

Get you some RED BULL and at the first sign of a headache down (don't sip it) a can of it. This sometimes helps.

What meds have you been on? Ergotomine usually helps mine after they riv up to about a 7-8 ( I don't take anything till then -- don't like meds). And it's a whole lot cheaper than Imitrex.

Keep us up to date on your progress.

And what you're having sounds like a shadow. That's common so don't get upset yet.

Hugs BD

Title: Re: Strange headache
Post by B14CK5H33P on Jan 25^th, 2007, 7:36pm

Sounds like very heavy shadowing to me. I've had bouts where I will get a kip 8-10 for an hour, come out of that down to a level 3 or 4 shadow for abojut a half hour then go right back into the mosh. Sounds like what is happening to you.

Definitely get some o2 and Red Bull.

Peace,
Carl D

Title: Re: Strange headache
Post by downstairs on Jan 26^th, 2007, 3:31pm

Thanks all... the 10 headache + 5-hour beast was followed by 24 hours pain free... so who knows.

Just FYI... Red Bull, Taurine, caffeine... none of that works for me.

O2- I'm trying my best to get that going... neuro is giving me a hard time, my doctor is an idiot so I don't even want to try that.

Title: Re: Strange headache
Post by Rod1400 on Jan 26^th, 2007, 3:49pm

I would have to say try the Oxygen.That's what I use for
the pain and alot of other people say it help's.Best wishes to you

Title: Re: Strange headache
Post by Richr8 on Jan 26^th, 2007, 4:00pm

on 01/26/07 at 15:31:24, downstairs wrote:

O2- I'm trying my best to get that going...

Keep trying. Oxygen has done more for me than anything else I've tried, and with no side effects.

Title: Re: Strange headache
Post by downstairs on Jan 26^th, 2007, 4:11pm

on 01/26/07 at 16:00:31, Richr8 wrote:

Keep trying. Oxygen has done more for me than anything else I've tried, and with no side effects.

I am... it is frustrating... it's easier to get drugs than simple ol' oxygen!

i just posted a new thread asking about the welder's oxygen. I'm willing to do anything at this point.

Title: Re: Strange headache
Post by Richr8 on Jan 26^th, 2007, 4:13pm

We'll keep bumping this up. I know there are folks here with info on the commercial O2 fix.

Title: Re: Strange headache
Post by downstairs on Jan 26^th, 2007, 4:17pm

on 01/26/07 at 16:13:46, Richr8 wrote:

We'll keep bumping this up. I know there are folks here with info on the commercial O2 fix.

Thanks!

Although, I guess technically they should respond to this thread:

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1169843318;start=0