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Cluster Headache Help and Support >> Cluster Headache Specific >> when does it end?
(Message started by: clavers on Jan 23rd, 2007, 12:34pm)

Title: when does it end?
Post by clavers on Jan 23rd, 2007, 12:34pm
Does this horror ever end? Does anyone know of a person who has simply stopped having CH's?  Do you reach an age when you outgrow them?  I am on my 23rd year and I have about had it.

Title: Re: when does it end?
Post by seasonalboomer on Jan 23rd, 2007, 1:02pm
some people do. it is one thing about old age to be hopeful about. besides wisdom and experience......    ;)

Scott

Title: Re: when does it end?
Post by Bob_Johnson on Jan 23rd, 2007, 1:44pm
Scott, the only reason they stop with age is to make room for all the new disorders which are coming down the pike!

Literature is scanty on the question of age. Have seen a couple of anectodal reports which suggesting a downward movement around 60+.

I'm almost 71 and haven't had an attack in about 4-years (which is too bad [?]) because it was back then that I discovered how effective Zyprexa was for me to abort an attack.

Title: Re: when does it end?
Post by Pellsey on Jan 29th, 2007, 8:25am

on 01/23/07 at 13:44:04, Bob_Johnson wrote:
I'm almost 71 and haven't had an attack in about 4-years (which is too bad [?]) .



You can have mine,

i've been havng 4 x #10's a day for the past fortnight (which might not be too bad for you) but is shithouse for me.

Title: Re: when does it end?
Post by chewy on Jan 29th, 2007, 9:00am
My cycles stopped 4 years ago.

But its CH. Could start tommorow.

Title: Re: when does it end?
Post by BB on Jan 29th, 2007, 9:53am

It ends when the hypothalamus decides to work properly again. It doesnt seem like there is anything anyone can do to make it happen though.

Mother nature ! Just like the weather, it rains when it wants to!

Painfree wishes to you.

Annette

Title: Re: when does it end?
Post by Karla on Jan 29th, 2007, 3:13pm
I am chronic and got hit 8x/day all 10's all year long.  It was like this for 6 years.  I tried every medicine on the market known and unknown to help migraines and clusters.  After 35 meds I finally found one that worked as a preventative and it has keept me ch free for the last 3 years.  Read up here on the site for things and medicines people have tried and you may find something that you havent tried yet that may work for you!  Good luck.

Title: Re: when does it end?
Post by Richr8 on Jan 29th, 2007, 3:17pm
14 years and counting.  I'll let you know when/if it stops.  Sorry you are having such a bad time.

Title: Re: when does it end?
Post by olepi on Jan 29th, 2007, 3:26pm
I've been getting them for about 35 years so far. Aged 53 and they started at 19. About every 12-18 months for 3-4 weeks at a time. The last two batches were on the right side (usually on the left) and have not been as severe.

Title: Re: when does it end?
Post by BarbaraD on Jan 29th, 2007, 4:17pm
Several have gone into remission, but as far as them ending -- never heard of that except in a couple of cases (Donna H).

I've been chronic since 97 and sometimes I can go several weeks without getting a hit and then I may have them everyday for months... just quit trying to worry about when the next one is going to hit. It will when it gets ready.

Just enjoy the PF time when you have it and live thru the rest.

Hugs BD

Title: Re: when does it end?
Post by thomas on Jan 29th, 2007, 4:21pm

on 01/29/07 at 16:17:48, BarbaraD wrote:
just quit trying to worry about when the next one is going to hit. It will when it gets ready.

Just enjoy the PF time when you have it and live thru the rest.


You know that that mentality right there ^ is what has really helped my mental health in dealing with this.

Title: Re: when does it end?
Post by Guiseppi on Jan 29th, 2007, 5:16pm
I was snow plowing towards 50 thinking that might be the magic age when they stopped. Then Sailpappy.........who I believe is almost as old as dirt.......burst my bubble when he said he's hoping for a break around his 115th birthday!

The best advice has already been given, embrace the pain free times, stay strong and kick ass when the beast returns. And post a lot!!!!

Guiseppi

Title: Re: when does it end?
Post by burnt-toast on Jan 30th, 2007, 8:29am
As-soon-as I find out, I'll let you know.  Until then I'll be right there with ya' praying for this nightmare to end.  


Best wishes,

Tom  

Title: Re: when does it end?
Post by Turts on Jan 31st, 2007, 6:33pm
it ends in old age simply because you forget you had it once its gone

;;D



Quote:
The best advice has already been given, embrace the pain free times, stay strong and kick ass when the beast returns. And post a lot!!!!

here, here


Turts




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