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        Cluster Headache Help and Support >> Cluster Headache Specific >> botox ????
        
(Message started by: catherinelane on Jan 21^st, 2007, 4:54pm)

Title: botox ????
Post by catherinelane on Jan 21^st, 2007, 4:54pm

I just read that scientists at Rome university have given Botox injections to over 1,000 migrane sufferers, evry subject found that thier attacks reduced from around 30 a month to seven and were less severe. Anyone tried this for ch ???? and well if it don't work at least no one will be able to tell from your expression that youre in pain [smiley=laugh.gif] pf wishes and love cath XXXX

Title: Re: botox ????
Post by catherinelane on Jan 22^nd, 2007, 12:08pm

i wasn't joking by the way!!!!

Title: Re: botox ????
Post by LeLimey on Jan 22^nd, 2007, 12:16pm

Cath I haven't tried it myself and I hadn't heard of any other ch'er having any joy with it but I was waiting to see if anyone here would relate their experience.
It might take a couple of days but don't give up on replies just yet - not everyone checks in over the weekend!
Helen

Title: Re: botox ????
Post by roy21302 on Jan 22^nd, 2007, 12:21pm

Hi,
Welcome, yes I have heard of it being used for CH, it was mentioned to me by my Neuro on a visit to Queens Square last year. I think they decided to try other thing for me, as my hits switch side so easily. I do know that they use it and get some results with it.
Cheers Roy :)
PS At my age they need to use it by the bucket load to smooth wrinkles [smiley=laugh.gif] [smiley=laugh.gif]

Title: Re: botox ????
Post by LeeS on Jan 22^nd, 2007, 12:34pm

I've read of mixed reports in respect of botox for CH. Here's a summary:

Quote:

http://edition.cnn.com/HEALTH/library/DS/00487.html

Cluster Headache:
A limited number of studies have been performed regarding botulinum toxin in patients with cluster headache. One study with 2 patients yielded excellent results, where both patients had no further clusters after 1 week of treatment. The effects lasted 10-12 weeks.34 The results of a recent study35 on botulinum toxin for cluster headache (by Robbins) are as follows:

Ten chronic cluster headache patients received botulinum toxin for refractory clusters.

The injections were done with low dose botulinum toxin; either 24 units of BTA per patient, or the equivalent BTB (1200 units). These were patients who had been refractory to the usual preventive and abortive medications for cluster headache. Side effects were minimal in this study. For the 7 chronic cluster patients, the injections were moderately effective in 3/7, and extremely effective for one. The botulinum toxin was not effective for 3 of the chronic cluster sufferers. Of the 3 episodic cluster sufferers, 1 obtained complete relief and 1 had moderate relief. The 3rd achieved complete relief with the first set of injections, but only moderate improvement after a further set of injections one year later. One other cluster study found that 2 of 4 patients improved, with doses ranging widely from 24 to 150 U.36 Therefore, while the results in cluster patients have not been very encouraging, certain patients do benefit from the injections.

Full report can be found here:
http://www.headachedrugs.com/archives/botulinum_cluster.html

I know of a few women who might find it useful though. You still got that rugged looking forehead Helen?

-Lee

Title: Re: botox ????
Post by JeffB on Jan 22^nd, 2007, 1:47pm

My sister has used it for her migraines with pretty good success.

Title: Re: botox ????
Post by Karla on Jan 22^nd, 2007, 3:18pm

I have chronic ch and I also get aprox 8 migraines a month. I tried botox injections several times. I got no relief for my ch but it did help stop my migraines from occurring.

Title: Re: botox ????
Post by catherinelane on Jan 22^nd, 2007, 5:18pm

well well well i seriously thought some one was yanking my chain....... lol :-[ you learn something new evry day as they say......