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Title: sinus problems triggering ch ?? Post by dave..... on Nov 28th, 2006, 4:12pm i just talked to the neurologist she says there is something wrong w/ my sinuses on the entire left side of my head and that is triggering my ch ???? and untill i get my sinuses checked out there is not mutch they can do ???????????????? wtf |
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Title: Re: sinus problems triggering ch ?? Post by JeffB on Nov 28th, 2006, 4:22pm Get a second opinion. |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 28th, 2006, 4:33pm jeff....... my thoughts exactly |
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Title: Re: sinus problems triggering ch ?? Post by JeffB on Nov 28th, 2006, 4:43pm There are plenty of knowledgable people here, don't be afraid to ask for their advise. |
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Title: Re: sinus problems triggering ch ?? Post by CynthiaB on Nov 28th, 2006, 4:55pm Having been "successfully" treated for acute sinusitis in October, I can report that it had no effect whatsoever on CH. Except that the antibiotics made me vomit, adding a new and exciting dimension to the beast. That's doesn't mean your sinuses are fine. I can only speak for myself. I have chronic sinus problems. But I have only had 4 cluster cycles in my 39 years, so they can't be too much of a trigger or at least not a common one. Do check it out though. Maybe this is what's making it so bad for you this time. I wouldn't chuck any of our cluster stuff out the window while you're pursuing this line, though. |
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Title: Re: sinus problems triggering ch ?? Post by BB on Nov 28th, 2006, 6:32pm Hi Dave, Few points to ponder: 1- Is the neurologist specialising in headaches? Is the neurologist treating many CH ? If not -> get a 2nd opinion from one who does. 2- How did the neurologist arrive at the conclusion? Is there abnormality seen on your Xrays, Ct scan, MRI ... ? Were the films reviewed by ENT spec to confirm whatever the abnormality was could have anything to do with your CH? 3- Do you have a history of sinus problem ? If yes did you have it before/after/during CH ? It looks like something you need to look into and check out but dont bet all your money on it as the only/simple cause/trigger for your CH. Best to get it looked at properly by someone with the experience of headaches and particularly CH. Best of luck and painfree wishes to you. Annette |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 29th, 2006, 6:34am yes my neurologist specializes in ch....... no i have no history of sinus problems........they saw the sinus problem when they reviewed my mra/mri ..... 8 years ago when they first told me i had ch i had no sinus problem......... |
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Title: Re: sinus problems triggering ch ?? Post by chewy on Nov 29th, 2006, 6:38am Its entirely possible that a sinus problem could trigger attacks. Treat the sinus problem and see what happens. Have you been seeing the same neuro for 8 years? |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 29th, 2006, 7:00am yes same neuro for 8 years ......tomorow i see another dr. for the sinus problem |
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Title: Re: sinus problems triggering ch ?? Post by LadyElaine1 on Nov 29th, 2006, 7:16am I do believe that can do it. Treat the sinus and see. |
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Title: Re: sinus problems triggering ch ?? Post by chewy on Nov 29th, 2006, 7:37am What has the neuro been doing for the last 8 years? Are you currently on meds? |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 29th, 2006, 7:40am they have been trying to stop the cycles when i get them....... |
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Title: Re: sinus problems triggering ch ?? Post by chewy on Nov 29th, 2006, 7:44am Quote:
How? Eight years with the same neuro there must have been meds prescribed. Is she currently prescribing? |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 29th, 2006, 7:49am depakote seems to be the only thing that has worked.... to prevent them........ for the pain when i get them........ nothing works |
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Title: Re: sinus problems triggering ch ?? Post by chewy on Nov 29th, 2006, 7:54am Point I'm trying to make here is if the neuro has been treating you properly for 8 years then her advice is probably sound regarding getting the sinuses fixed before she tries other CH treatments.. |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 29th, 2006, 7:58am i agree completley thats why i am seing another dr. tomorow morning for the sinus problem...... i just wish she could give me something for the pain till i get it figured out.... for some reason she wont give me any narcotics..... i hope she dosent think i just want drugs..... i just dont want the pain |
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Title: Re: sinus problems triggering ch ?? Post by chewy on Nov 29th, 2006, 8:19am Then she is a very smart neuro. Narcotics do not work well for CH and can cause more problems than it solves. I suggest you read up on appropriate treatments for Ch. Narcs are not one of them. Heres a good start. http://www.guidelines.gov/summary/summary.aspx?doc_id=6582&nbr=4142&string=cluster+AND+headache |
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Title: Re: sinus problems triggering ch ?? Post by dave..... on Nov 29th, 2006, 8:25am verry interesting... thank you |
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Title: Re: sinus problems triggering ch ?? Post by fjgcpa on Dec 1st, 2006, 12:05pm I have had lived with headaches for over fourty years, the drs have never been able to put me in a box and tell me what causes them because they are never consistant. However the last few years I must say my sinus's have been setting off my head aches. I sleep on two pillows to keep my head above my heart so my sinus will drain and I take a sinus pill before going to sleep. Interestly if I do not and my head falls off the pillow I will end up with a migrane or an major eye headache for a day or two on the side of the head where my head fell off the pillow. So I do think that Sinuses can be a trigger to kick off ch. Frank |
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Title: Re: sinus problems triggering ch ?? Post by BarbaraD on Dec 1st, 2006, 3:41pm Most of us have some sinus problems. and they can make them worse (or be a trigger at times). Try some Melatonin at night (12mg). It will mix with about anything and your neuro will probably agree (mine did). O2 is an abortative as well as Red Bull if you get to it on the start. Hope your sinuses clear up soon. |
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Title: Re: sinus problems triggering ch ?? Post by painfulnoodle on Dec 3rd, 2006, 12:30am I know it sounds crazy, but a friend of my gf had a sinus infection that got bad enough that it triggered ch's ... after he found out I was having them, he told her to be very nice to me when I was in a cycle! Anyway, he didn't treat it and it got so bad that it infected his spinal fluid and eventually caused Meningitis. Is that nutz or what! My ENT has wanted to do sinus surgery for a few years but until this I disregarded it ... I'm going to have it checked into. Even if it doesn't fix the ch's, who needs the extra grief of sinus headaches? Battling the ch beast is bad enough!!! |
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Title: Re: sinus problems triggering ch ?? Post by swimchica623 on Dec 3rd, 2006, 12:46pm Hi, I've had chronic sinusitis since I was about 14-15 and clusters for not even a year (I'm 21). I've had three cluster cycles and we think that they are coming shortly after sinus infections....I have an impacted sinus over my left eye and I am a episodic lefty with the clusters so maybe they are agrevating each other...we even thought maybe the antibiotics were doing something. I am going ahead with sinus surgery (this new thing called balloon sinuplasty, VERY cool and minimally invasive) in just 2 weeks. We figured at the very least that it will get rid of the sinus pain above my eye that I have had since I was 15ish and stop the sinus infections. Anything extra...less aggrevation with clusters, helping asthma, helping allergies, etc, will be bonus. Knowing that going into it is what's improtant because I don't want to disappoint myself. I think that when you are in cycle your CT scan will show your sinuses even worse too. They did one and in addition to my always impacted sinus it showed some more inflammation and opacification in ducts and other sinus cavities. um hope this helps some, just sharing my experince with sinuses and clusters although as you can see I've had a longer battle with sinuses than clusters, cluster battle is just beginning! Lisa |
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Title: Re: sinus problems triggering ch ?? Post by Beastfodder on Dec 5th, 2006, 11:06am Onset of my Autumnal episodic CH is always precluded by poor sinuses but whether that's a symptom of CH or a trigger is the question. Suspect with the regularity of my attacks it's more of a symptom, since sinus infection every year plus or minus a few days has to be long odds. In fact sinusitis was the diagnosis I lived with for quite a few years so had the rhinoplasty and, I believe, the linings of the particularly infected left hand side sinus also came out in surgery. Unfortunately it did bugger all for CH the next year and the next year and the next year... Suspect blowing up a tiny balloon in a sinus cavity would have a similarly spectacular result. ps anything more than a finger up your nose is not minimally invasive! |
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Title: Re: sinus problems triggering ch ?? Post by swimchica623 on Dec 5th, 2006, 12:48pm on 12/05/06 at 11:06:22, Beastfodder wrote:
hahahaha true but i guess i meant comparitivally, compared to the traditional way of doing sinus surgery! |
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Title: --Re: sinus problems triggering ch ?? Post by sailpappy on Dec 5th, 2006, 7:46pm ;;D ;;DHmmmmmmm? :o :o :o :o ::) ::) ::) ::) :o :o :o :o ::) ::) ::) ::) :o :o :o :o http://www.acclarent.com/professional/balloon.html Video--http://mfile.akamai.com/12899/wmv/vod.ibsys.com/2006/0503/9153514.200k.asx I believe sinus problems like this are usually the first thing looked for and easially found with x-ray? Maybe if this works for you, your trigger will be gone, Wouldn't that be Wonderful!! Pappy http://home.comcast.net/~jhallahan2/wsb/media/299782/site1286.gif |
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Title: Re: sinus problems triggering ch ?? Post by slhaas on Dec 9th, 2006, 3:34pm It could be. I've had cycles start just after getting a sinus infection and I've had sinus infections start just after getting a Ch cycle, but I've also had sinus infections with no CHs and CHs with no sinus infections. It may be a trigger for some people if it's bad enough, or it could just be a bad coincidence. I suppose it could be a relationship with the lack of sleep, immune system being weakened, or something like that too, but it's hard to say. |
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Title: Re: sinus problems triggering ch ?? Post by TonyG1 on Dec 15th, 2006, 8:51am on 11/28/06 at 16:12:57, dave..... wrote:
Just saw an ENT doc a few weeks ago regarding an apparently severe sinusitis -- didn't even know I had an issue -- got an eye infection secondary to the sinus problem.... 21 days of antibiotics twice a day, 11 days of Prednisone, and a nasal steroid spray.... seems to have kicked my cycle off... I was fine before the 'treatment'. I know prednisone is supposed to abort a cycle but it seems to have triggered it in my case ... :( |
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