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        Cluster Headache Help and Support >> Cluster Headache Specific >> Say it aint so
        
(Message started by: briantrudeau on Nov 18^th, 2006, 9:35pm)

Title: Say it aint so
Post by briantrudeau on Nov 18^th, 2006, 9:35pm

Hello all,
Was wondering if it is a possibility to go from eposodic to chronic ? Seems my cycles last longer and come back sooner than they have in the past. I should be on a break still from the summer bashing I took, but instead they were back at daylight savings time. Im into week 3 again and feels like there has been more blast these past cycles than ever. Anyone else noticing this out there? Are the planets out of wack or anything? I am just cant think about going form eposodic to chronic (sorry to all those who are you are brave and strong people)
Keep me posted
Brian

Title: Re: Say it aint so
Post by Linda_Howell on Nov 18^th, 2006, 10:02pm

Quote:

Was wondering if it is a possibility to go from eposodic to chronic ?

This not be what you want to hear but, Yes...happens a lot.

Quote:

Im into week 3 again

That does mean YOU are going chronic dear. ;;D

Title: Re: Say it aint so
Post by NovellRed on Nov 19^th, 2006, 12:12am

It happened to me. Episodic for 5 years then chronic for 15. Then one day I didn't have a CH, then another day. I had a break for almost a month before they came back. As time passed the cycles got shorter and the breaks longer. I reclassified myself as episodic. The next 10 years passed with the same pattern. I now classify myself as normal with only an occasional bout of CH.
They can and do change. There is always hope.

Title: Re: Say it aint so
Post by georgej on Nov 19^th, 2006, 12:24am

You're still very much episodic, Brian. You're not chronic until you've gone a year with only short periods of PF time.

It's just a word, anyway, and a definition. Worrying about what may happen in the future is not productive--the future does not exist. Only the present exists. One day at a time, one hit at a time. Most of the chronics here will tell you the same thing as the episodics--live your life in the pain-free times, whether the time is measured in hours, or in months. We're all in the same boat (not Chewy's boat, ;) but nevertheless).....If we let the beast rule our lives, then the beast wins.

Live your life, and then you win.

Best wishes,

George

Title: Re: Say it aint so
Post by sandie99 on Nov 19^th, 2006, 3:13am

Brian,

I've been an episodic, then chronic and now episodic again. Don't let the thought of becoming a chronic scare you; you're not one until you are one. Let's hope that it won't ever happen.

best wishes & PF days,
Sanna

Title: Re: Say it aint so
Post by The Image on Nov 19^th, 2006, 6:29am

Don't panic yet Brian. I once had them for 2 months (they usually lasted me about 2 weeks) but they returned to normal.

Nowadays they last for about 3 to 4 weeks but unlike the 2 weeker ones which gave me a level 9 or 10 every night, I now have mainly 3's to 7's with one 9 or 10 which signals my episode is nearing its end.

See, they kind of change pattern without warning.

I've also had a kind of revenge attack where the CH weeks are over and life returns to pain free and normal and then a few weeks later the CH comes back even worse which I find very upsetting.

One thing I have noticed (maybe just with me or maybe not) is that the longer the episode lasts, the less intense the CH's. For instance a one week episode would be agony but a 6 week episode would be mainly shadows.

Title: Re: Say it aint so
Post by The Image on Nov 19^th, 2006, 6:36am

The worse ones I ever had lasted a week. Most though last 3 to 4 weeks and aren't as bad.