Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Cluster Headache Specific >> How Long...
        
(Message started by: AngelinaNina on Oct 25^th, 2006, 7:05pm)

Title: How Long...
Post by AngelinaNina on Oct 25^th, 2006, 7:05pm

Hi,

I am a 32 year old female and last year I had ch's every 2-3 days for about a month. They stated on Oct. 17 and ended around Thanksgiving. As we approach a year, I am wondering what was the longest period of time anyone has gone without a ch. I am starting to get nervous, as the neuro said I should expect another episode 4-6 weeks after they ceased. Any insight would be appreciated.

Thanks,
Nina
Vista, CA

Title: Re: How Long...
Post by georgej on Oct 25^th, 2006, 7:19pm

Longest remission I've seen on here was 20 years--before they returned. Lots of people have gone 5 years or so. I've gone 3. There are many, many others who have no break at all.

Far as I'm aware, there's no clear answer to this one. It does what it does.

Best wishes,

George

Title: Re: How Long...
Post by sandie99 on Oct 26^th, 2006, 5:15am

My ch begun in fall 2001. The longest time they've stayed away during these years in 11 months.

Lots of folkes in here have lived happily without the beast for years and their stories inspire me. :)

Best wishes & PF days,
Sanna

Title: Re: How Long...
Post by burnt-toast on Oct 26^th, 2006, 5:28am

Your Neuro may be basing this information on you're history of attacks.

If not...
I'm not sure where the 4 to 6 weeks return information came from.

From everything I've read and heard every sufferer will develop some type of cycle(s) in their attacks. That cycle will most likely be specific to the sufferer and will most likely change from time to time.

There is no set set rule in the occurance of cycles that addresses every sufferer.

Best wishes,

Tom

Title: Re: How Long...
Post by chopmyheadoff on Oct 26^th, 2006, 6:37am

erm a week i think . . . :-/

before verapamil that is 8)

Title: Re: How Long...
Post by chewy on Oct 26^th, 2006, 7:07am

I'm into 5 years.

Title: Re: How Long...
Post by JDH on Oct 26^th, 2006, 9:22am

Thanks to http://www.clusterbusters.com I haven't had to deal with a ch cycle since my last one ended in Feb. '03....amazing!

Jim

Title: Re: How Long...
Post by floridian on Oct 26^th, 2006, 9:23am

For about a decade, I had them every summer for 6 weeks or so. Like clockwork. For the past several years, I have dodged them. Other people's experiences are quite different.

Title: Re: How Long...
Post by BB on Oct 26^th, 2006, 9:31am

Hi Flo,

How did you dodge them ? Please share ?

Thanks

Annette

Title: Re: How Long...
Post by TxBasslady on Oct 26^th, 2006, 7:10pm

CH has a mind of it's own.

It comes and goes when it pleases. Doubt you could find any 2 of us alike.

Best of luck to you,

Jean

Title: Re: How Long...
Post by HEY BAILEY on Oct 26^th, 2006, 11:00pm

I'm really new compared to most of the people here but I've read alot and agree, it would be difficult to find two people with the same symptoms.

My first episode was from May - Aug of 2005
When Aug of 2006 passed without one of these devils I thought I was free and it wouldn't return.

They started again Oct 24th........
I'm dreading going to sleep tonight.....................
:-/

Title: Re: How Long...
Post by kcopelin on Oct 26^th, 2006, 11:04pm

I went almost 4 years once-but had two children in that time-

Its a crap shot.

Hang in there, you have come to the right place for support, information and funny people. Just DO NOT SAY THE "C" WORD!!!!

kathy