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Cluster Headache Help and Support >> Cluster Headache Specific >> BBs Post Got Me Thinking
(Message started by: starlight on Oct 25th, 2006, 3:13pm)

Title: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 3:13pm
This is a random thought that popped into my head.  Not trying to start a study or anything, just asking--I wonder if there are any similarities between CH sufferers in terms of A)  birth order and or B)  season born in.  Is that even worth exploring?  
I am firstborn.  Birthday--June

Don't have any theory behind this...well except for birth season seeing as how these are the "timeclock" headaches...could it matter maybe what month we CHs are born in?  
Hope all are doing well.  Star

Title: Re: BBs Post Got Me Thinking
Post by seasonalboomer on Oct 25th, 2006, 3:39pm
or maybe their astrological sign....... or color preference...... age of of first sexual experience..... prefer salty snacks or sweets.... or for the men, boxers or briefs..... or sleep bed that is pointed east, north, west or south.... or musical preference.....

might be fun to know but I can't imagine a commonality anymore than the whole heighth experiment turned out to be.

best regards,

grumpy gus

Title: Re: BBs Post Got Me Thinking
Post by tanner on Oct 25th, 2006, 4:01pm

on 10/25/06 at 15:39:50, seasonalboomer wrote:
grumpy gus

 Hey Scott, anything I can do? You know I am in your debt and I know that you are having a bad day!

....2 hours away Tim

Title: Re: BBs Post Got Me Thinking
Post by kcopelin on Oct 25th, 2006, 4:03pm
1st born...in December-Friday the 13th.  Death Valley.
was doomed from the start  ::)
kathy

Title: Re: BBs Post Got Me Thinking
Post by Richr8 on Oct 25th, 2006, 4:10pm

on 10/25/06 at 16:01:02, tanner wrote:
 Hey Scott, anything I can do?


Ditto that.  Hope things improve for you soon.

Title: Re: BBs Post Got Me Thinking
Post by BarbaraD on Oct 25th, 2006, 4:34pm
Scott cheer up kid -- it could get worse... :-/

Hell, I cheered up and sure nuff - it got worse ;;D

Hugs BD

Title: Re: BBs Post Got Me Thinking
Post by BikerBob on Oct 25th, 2006, 4:38pm

on 10/25/06 at 16:03:26, kcopelin wrote:
1st born...in December-Friday the 13th.  Death Valley.
was doomed from the start  ::)
kathy


But Kathy, you can't have CH. You're only 5' tall   ::)

BB

Title: Re: BBs Post Got Me Thinking
Post by seasonalboomer on Oct 25th, 2006, 4:39pm

on 10/25/06 at 16:01:02, tanner wrote:
 Hey Scott, anything I can do? You know I am in your debt and I know that you are having a bad day!

....2 hours away Tim


thought is appreciated. nothing wrong. i had just read my post and while it was what I wanted to say, I realized how grumpy it sounded.... so I thought it only appropriate that I adopt the appropriate alternate moniker.....
:-/

but the car repair guy and the contractor working on my house did help the tone of that post.....

scott

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 5:45pm
Hey Grumpy Gus,

Sorry you are feeling bad.  But I must say you did come up with some creative suggestions!  I hope you are feeling better.

Pure thought of curiosity--don't know where I was leading with it.  
I do know that other studies have been done trying to see if there are any clusters of births in certain season(s) for some other disorders out there, and I figured since these are the "timeclock" headaches it might (and I am only saying might) make sense to ask.

Anyway Kcopelin, thanks--my birthday is June 13 (Thursday).  Friday the 13th--now that is interesting!  If we get more there with that--well geez I don't know.

Anyway just a thought.


Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 6:26pm
Give it a chance...maybe...it would only take two seconds.  Might be an interesting diversion if nothing else?!?!

Title: Re: BBs Post Got Me Thinking
Post by SophiaK on Oct 25th, 2006, 6:52pm
March 18th, premature. Same day as Edgar Cayce different year.

Title: Re: BBs Post Got Me Thinking
Post by Barry_T_Coles on Oct 25th, 2006, 6:52pm
Number 7 of 8, 4 boys 4 girls' January 16.

The whole family's a nut case but I'm the only one with CH ;;D

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 7:05pm
You all, thank you for your info:

Here's the angle I am looking at:  is there a likelihood of cluster headache sufferers having been born close to either the solstices (times when day is at its longest and shortest) or near to the equinoxes (times when day and night are the same length)?
Solstices:  June 21 and December 22
Equinoxes:  March 21 and September 21

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 7:12pm
Solstices we have the extreme (imbalance of light).
Equinoxes are another extreme in that there is a perfect balance (perhaps too much consistency of light and dark).
Humor me.

Title: Re: BBs Post Got Me Thinking
Post by E-Double on Oct 25th, 2006, 8:05pm
When I was born evrything in the universe was alligned to perfection. A being came upon this earth that has been blessed with the utmost ability to come up with a wise ass response without being the least offensive.
There can be only one ;)

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 8:14pm
Ah, geez, I gotta love you E-Double.
.


Title: Re: BBs Post Got Me Thinking
Post by Kate in Oz on Oct 25th, 2006, 9:16pm
Born April 16, 1969 , 2nd child (of 2)
             

Title: Re: BBs Post Got Me Thinking
Post by HeadhurtinMama on Oct 25th, 2006, 9:27pm
Nov 3rd, 1976, 2nd of 2

Bridget

Title: Re: BBs Post Got Me Thinking
Post by Charlotte on Oct 25th, 2006, 9:33pm
Star, you're always thinking.  That's one of the things I like about you.

I'm 1st born kid, & grandkid.  July 31, 1949.  5:10 a.m.  I don't think it has much to do with ch, but it's always fun when you're around.

Charlotte

Title: Re: BBs Post Got Me Thinking
Post by Jonny on Oct 25th, 2006, 9:38pm
What!, are we not checking penis size at birth?

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 9:46pm
Johnny, gotta love you too!

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 25th, 2006, 9:55pm
Hey Charlotte,

Good to hear from you girl!  

Title: Re: BBs Post Got Me Thinking
Post by BB on Oct 25th, 2006, 10:18pm

Hi Starlight ,

Good to see you thinking and being brave enough to put your thoughts out there for public scrutiny.

Its heart warming to see you standing tall even while being ridiculed for your effort, gotta love you girl  :-*

Its human nature to be afraid of new thoughts though so be prepared to get flammed  8) No new frontier had been achieved without a fight.

Looking back at human history, everytime a person thinks outside the square he will get all sorts of attacks for doing so. Galileo was almost burnt by the church for thinking that the earth orbits the sun and not the other way round. Newton was considered nuts for sitting there watching an apple falling to the ground and comming up with the laws of gravity. Thomas Edison failed 1000 times while trying to invent the light bulb... They all got laughed at, sneered at , even threaten with death for following their hearts and their minds.

So my dear Starlight, soldier on and keep thinking aloud. I am with you on this journey, may turn out to be a very lonely one, but at least we are trying to DO something ..

HUGS


Annette

Title: Re: BBs Post Got Me Thinking
Post by jon019 on Oct 26th, 2006, 12:07am
Hi starlight,

Interesting questions well deserving of thought and exploration. No one knows what causes CH. You gotta just start asking the questions...

There was a recent discussion on Vitamin D deficiency in pregnant women leading to higher incidence of schizophrenia in the children. (A brain disorder, hmmm, sorta like CH is a brain disorder.). Lack of sunshine in the winter months can lead to a Vit D deficiency. Children born in the SPRING would have been deficient in utero. No astrology involved, but time of birth could have been critical.

Birth order is a little more ephemeral. Lots of studies showing LOTS of differences due to birth order. Nature or nurture is the big question here. But, who knows.

Keep questioning, I think it's great.

Regards

Jon

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 26th, 2006, 1:07pm
Annette,

I can't thank you enough for your words of support...wow...did it make me feel good what you wrote.  Just think we have to try to corner these headaches somehow--would love to see them cured one day--would absolutely love it.  I am happy for all the work you are doing--I really appreciate your time and effort and the careful thought you put into trying to get to the bottom of these headaches.

Jon,

I think that I had read about that study years ago but was not aware of what the study had found regarding the vitamin D intake by the mother and it being effected by sunlight she was exposed to during her pregnancy--it is a very interesting find.  And yes, in fact although the 2 disorders--schizophrenia and CH are quite hugely different-- they are both, in fact, brain disorders--I know I was a little shocked when my neuro phrased it to me that way, that I had a brain disorder, but it is the truth.

I think any small piece of the puzzle could help to maybe figure out how these things WORK.  That is what I hope for anyway.

Would love to hear any other birthdates if anyone wants to share.

Love to you all, Star

Title: Re: BBs Post Got Me Thinking
Post by jon019 on Oct 26th, 2006, 11:39pm
Hi Star,

Born in........March.

Jon

Title: Re: BBs Post Got Me Thinking
Post by Tata on Oct 27th, 2006, 1:13pm
February 29th, 1968, seventh of 7 kids. But I think you're on to something with the Friday the thriteenth thing--my parents were married on Friday the 13th. Coincidence? I think not.... ;)

Title: Re: BBs Post Got Me Thinking
Post by drivin_blind on Oct 27th, 2006, 1:32pm
March 19th, 1952. The first of 5 smartasses. Don't know what time I was born, but it was in a hospital because I wanted to be near my mother.   Dick

Title: Re: BBs Post Got Me Thinking
Post by Richr8 on Oct 27th, 2006, 1:36pm
May 30th, 53.  Episodic- Fall/Winter cycles

Title: Re: BBs Post Got Me Thinking
Post by seasonalboomer on Oct 27th, 2006, 2:09pm

on 10/25/06 at 22:18:18, BB wrote:
Hi Starlight ,

Good to see you thinking and being brave enough to put your thoughts out there for public scrutiny.

Its heart warming to see you standing tall even while being ridiculed for your effort, gotta love you girl  :-*

Its human nature to be afraid of new thoughts though so be prepared to get flammed  8) No new frontier had been achieved without a fight.

Looking back at human history, everytime a person thinks outside the square he will get all sorts of attacks for doing so. Galileo was almost burnt by the church for thinking that the earth orbits the sun and not the other way round. Newton was considered nuts for sitting there watching an apple falling to the ground and comming up with the laws of gravity. Thomas Edison failed 1000 times while trying to invent the light bulb... They all got laughed at, sneered at , even threaten with death for following their hearts and their minds.

So my dear Starlight, soldier on and keep thinking aloud. I am with you on this journey, may turn out to be a very lonely one, but at least we are trying to DO something ..

HUGS


Annette


I was okay with everything you said. Yes, I was ridiculing poor Starry. I was cynical and probably even a tad sarcastic.

But as George Bernard Shaw observed, "The power of accurate observation is commonly called cynicism by those who have not got it."

Scott



Title: Re: BBs Post Got Me Thinking
Post by Kevin_M on Oct 27th, 2006, 4:42pm
In an effort to just stay a bit grounded here, not as a point of criticism, and so as to not stray too far off in order to make a point, may I just keep things in perspective for myself here?



Quote:
Galileo was almost burnt by the church for thinking that the earth orbits the sun and not the other way round.


Being burned for thinking would have killed a lot of people.  Copernicus made the theoretical leap with the heliocentric model, Galileo was cautioned for advocating and teaching Copernican astronomy but allowed to write "Dialogue Concerning the Two Chief World Systems" by Cardinal Roberto Bellarmino, newly elected as Urban VIII.  However, the Thirty Years War changed the political and religious landscape, his book unpublished for a long while, and then Galileo's trial commenced.  There was once a threat of possible torture but he was dealt always with leniency and tolerance, never burning considered as a sentence, and was confined to house arrest after recanting.  At the time he knew the truth was dictated by reality and not the Inquisition anyway.  



Quote:
Newton was considered nuts for sitting there watching an apple falling to the ground and comming up with the laws of gravity.


If anything Newton came up with was ever predicated by the fall of an apple, that is yet to be found.  The obsessive genius "stood on the shoulders of giants", those that came before him, as science goes.



Quote:
Thomas Edison failed 1000 times while trying to invent the light bulb...


Thomas Edison did not invent the lightbulb, I've read as early as 1872, the Russian Alexandr Lodygin was able to glow platinum in a bulb for 12 hours.  Edison improved the vacuum "tulip bulb" and lengthened the glow time, getting good results from the much cheaper Madake bamboo, lasting 1500 hours.  He and his team began making so much new ground afterwards, they'd almost entirely stopped copying patents.

All three "stood on the shoulders of giants", not stood on the shoulders of


on 10/25/06 at 15:13:40, starlight wrote:
a random thought that popped into my head.



I understand the point you are making Annette and other examples are most welcome.

Title: Re: BBs Post Got Me Thinking
Post by Sandy_C on Oct 27th, 2006, 4:59pm
Star, don't let anybody shut you down.  I enjoy reading about your thoughts and idea of commonalities that we CH suffers may have.  Unfortunately, I don't believe height/weight/date of birth or birth order have anything to do with it.  But, as you said, it's a diversion, so why not?   So....

Born 5/7/46 - only child

But, the 13th is intersting, because my father was born on 12/13, and I was married on 9/13 (Saturday).

Keep on asking.  If nothing else, we learn more about each other, and who knows, maybe someday a link WILL be found.

Sandy

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 27th, 2006, 6:28pm
Kevin,

Point well taken.  But, in my "defense", yes I did write "random thought that popped into my head", BUT I have been pondering these things (as I know we ALL have) for quite a while because I have been getting them now for approximately 20 years.  So it is coming from a place of thoughtful consideration of cluster headache rather than completely frivolous mental drivel.

Just another "random thought" here, but I am not convinced that the birthdate thing is total crapola because when we are born, the daylight the mother has been exposed to as well as the daylight exposed to upon birth COULD play a factor.  BUT there may be many subtleties involved that would take a much more refined study.
When were chronics born?  When episodics?  And even things like age of  onset--this would not be astrological influence rather is it a "cumulative" thing where the daylight exposed to at birth--say this is only an example but at an equinox sets off a cumulative dysfunction--say I am born June 13--maybe LESS sunlight would have helped--maybe it has something to do why I am episodic and/or something to do with my age of onset.  And maybe NOT.  But I am only asking WHAT if it does?
Imagine if they could actually figure out why some are episodic and some chronic--at that point the beast will begin to be unmasked.  I think.
These ARE in fact nothing more than random thoughts but definitely I have been questioning these things for a long time and we all have and at some point you get mad and say screw it, and then sometimes an idea comes up.
While I do think my question may sound dumb, many things have to be asked of these headaches to figure out HOW they work.  Who better than you, me, or anybody on here to ask since we at least know ourselves and our own history or the history of someone we care about and can maybe one day extrapolate something useful from that.
Basically I have a big bone to pick with these headaches.  
Take care, Star





Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 27th, 2006, 6:37pm
Also, there are quite a few people who have posted bdays that fall incredibly close to solstices or equinoxes.  It is interesting if nothing more.  

Title: Re: BBs Post Got Me Thinking
Post by JeffB on Oct 27th, 2006, 7:20pm
July 29, 1966. Anchorage, Alaska.
Partly cloudy with winds from the south at 4 mph.  
I guess it doesn't matter what time I was born, the sun was most likely up anyway.

Title: Re: BBs Post Got Me Thinking
Post by kcopelin on Oct 27th, 2006, 7:35pm
This is really interesting.  However, Biker Bob, I was not 5' tall at birth.  That just happens to be the height that I was comfortable reaching later on in life.  Coulda made it to 6' but am afraid of high places. ;;D
kathy

Title: Re: BBs Post Got Me Thinking
Post by Charlotte on Oct 27th, 2006, 7:57pm
And Kathy, I'm sure your mother was very glad you were not 5' tall at birth.  My tallest was 23" at birth and that was plenty tall enough.

Charlotte

Title: Re: BBs Post Got Me Thinking
Post by alchemy on Oct 27th, 2006, 8:31pm
Star, interesting question.
born July 18th 1 pm in the middle of a major heat wave.

For Jonny on your question get the yard stick out ;;D

Title: Re: BBs Post Got Me Thinking
Post by Phil L on Oct 27th, 2006, 9:09pm
July 28th in time for lunch. Hungry at noon ever since.

Title: Re: BBs Post Got Me Thinking
Post by BB on Oct 27th, 2006, 9:25pm

on 10/27/06 at 16:42:36, Kevin_M wrote:
All three "stood on the shoulders of giants", not stood on the shoulders of

.



Hi Kevin,

Thanks for making my post more accurate , I can always count on you for doing so  :-*

One point I would like to make though, its not that easy to "stand on the shoulders of the giants", without the specific knowledge to even start to understand their work.

Unless we all go back to school and then to University to study and maybe aiming for a PhD, we are not really able to "stand on " any giants shoulders, cant climb up that high.

So we can only try to do what we can , within our ability. Its the effort that counts. Its not like these questions and surveys are costing anyones money, the most it will cost is a few mins of someone time. There is no harm in asking all sorts of questions, yet there maybe some goods achieved, so why not ask ?

Annette

Title: Re: BBs Post Got Me Thinking
Post by BB on Oct 27th, 2006, 9:40pm

Just wanna cite something else


Regarding SIDS ( Sudden Infant Death Syndrome ), for years no-one knew what caused them, there was no diagnosis, no risk factors identified, many parents were wrongly accused of infanticide even.

That was until someone(s) made the observation that

1- Many were boys
2- Many were premature
3- Many cases happened in winter
4- Many were born in fall/winter
5- Many were put to sleep on the tummy
6- Many were not breast fed
7- Many had too much beddings/toys in the cribs
8- It did seem to run in the family
etc

Now prior to these observations, it was recommended that babies be bottle fed as they gained weight more quickly and that babies be put to sleep on their tummy and that they should be rugged up in beds with clothes and blankets.

Nowsaday, new mothers are encouraged to breast feed for as long as possible, to always put their babies on the back or side to sleep, not to rug up too much and not to keep toys in the cribs. Also they are instructed to watch out more during the colder months and to pay closer attention to prematures. There are also monitors and alarms for those at high risk.

Since then the incidents of SIDS have dropped significantly. All these had been achieved just because someone paid attention to the non medical details, namely the parents and midwives. While the experts and specialists were busy researching lungs functions and sleep patterns and other breathing disorders ...



Starlight,

Keep going please, let the numbers speak for themselves.

Cheers

Annette

Title: Re: BBs Post Got Me Thinking
Post by Kevin_M on Oct 27th, 2006, 10:02pm

on 10/27/06 at 21:25:39, BB wrote:
Thanks for making my post more accurate

One point I would like to make though, its not that easy to "stand on the shoulders of the giants", without the specific knowledge to even start to understand their work.


I guess my point was that assimilating these three, who did stand on the shoulders of giants, as opposed to "a random thought that popped in my head" would be "outside the box" of this thread, as examples.  Interpretation may vary and I have not much otherwise here except to say OUCH is always looking for volunteers.   :-*

Title: Re: BBs Post Got Me Thinking
Post by Yorky on Oct 27th, 2006, 11:50pm
when i was born..the nurse smacked my arse, to make me cry :'(
probably my first taste of how lifes cruel.. ;;D

Title: Re: BBs Post Got Me Thinking
Post by AussieBrian on Oct 28th, 2006, 1:31am
All astrology is complete and total bunkum.  I'm a Scorpio (Dec 12) so I should know.

Title: Re: BBs Post Got Me Thinking
Post by LeLimey on Oct 28th, 2006, 5:08am

on 10/27/06 at 23:50:11, Yorky wrote:
when i was born..the nurse smacked my arse, to make me cry :'(
probably my first taste of how lifes cruel.. ;;D


Not true hon, she turned you over to see if you were twins!  :P

Me, Sept 10th. Jasper August 21st. Not close to anything really but I'll always try to help!

Kev I love reading your posts hon and I know you well enough to know you'd never try to upset anyone ('cept me and I don't count!) I also know that about Annette and Star. Keep thinking the lot of you, its a shame more don't!
Helen

Title: Re: BBs Post Got Me Thinking
Post by maffumatt on Oct 28th, 2006, 5:56am
Oct 30th.

Title: Re: BBs Post Got Me Thinking
Post by Kevin_M on Oct 28th, 2006, 8:23am

on 10/28/06 at 05:08:11, LeLimey wrote:
Kev I love reading your posts hon and I know you well enough to know you'd never try to upset anyone ('cept me and I don't count!) I also know that about Annette and Star. Keep thinking the lot of you, its a shame more don't!
Helen



Thank you Helen.  I was just hoping, for this thread, that it would be good to toss in a female named example from science, like a Jane Goodall or Henrietta Leavitt.   ;)

The discoveries leading to the SIDS decline in Britain in '89 and moreso in '97 is more compatible too.    :-*

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 28th, 2006, 12:00pm
You all, thanks for the continuing responses with the birthdates.  Helen, your birthdate jumped out at me as falling quite close to the autumnal equinox--9/21.
Down the road it would be interesting to do a study looking at if there are any patterns with birthdates, chronic or episodic (although I do realize some can switch generally they could be grouped as one or the other), age of onset, and also which month/season a person goes into cycle (I do know also this can switch but sometimes it doesn't and there is certainly a FIRST month/season everyone experiences).  
Anyway, it is cool reading the discussion going on and all the ideas being thrown around.  Starlight

Title: Re: BBs Post Got Me Thinking
Post by Mrs_R on Oct 28th, 2006, 12:58pm
Born 24th September after very difficult delivery, I still bear the scar on my head 53 years later!!

Don't mean to confuse the issue, but do not have a definitive diagnosis yet!!!

Title: Re: BBs Post Got Me Thinking
Post by nohandgunsallowed on Oct 28th, 2006, 2:07pm
i was the firstborn , Dec. 1, 4:33 p.m.  

I read a profile in medical text recently describing what a 'typical' CHer looks like (or how they might 'present').
 
Strangely, there were points of correspondence.  What it said and what i am:  male, 6' tall, slender, athletic, ex-druggie (though not Drinker) - book said 'rugged' looking - i think they meant acne-scars - which i confess i have...

Sun in Sag, Gemini rising, Venus in Scorpio -- how/why do I know this?  15 years on Venice Beach!

pf wishes[/i][i]

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 28th, 2006, 6:01pm
Can't thank you all enough for the continuing responses.  And we continue to have people posting birthdates which do fall quite near the equinoxes or solstices (which is interesting).  
I will tally them but will wait for more to come in for now.

Also, I wanted to post an example of what I think a future study could look at:

I will use my stats:

Born June 13--began cycling November 9 (and would begin cycling on that date for MANY years, then switched to summer), episodic, age of onset 14.

What would be interesting to find is if there are ANY PATTERNS particularly between certain birthdates, months, etc. belonging to episodics and certain belonging to chronics--does birthdate/month effect status as episodic or chronic?  And also does it effect the initial month of going into cycle (your first cycle)?  And age of onset--wow that would be interesting if some kind of pattern could be found with that.

But we can save that more detailed one for later.
Star

Title: Re: BBs Post Got Me Thinking
Post by BB on Oct 28th, 2006, 7:18pm

Hi Starlight,

There have been quite a few people posting their details now, do you think you can summarise it into something more succinct and easier to look at ?

Thanks

Painfree wishes to you

Annette

Title: Re: BBs Post Got Me Thinking
Post by kayarr on Oct 28th, 2006, 7:51pm
I am the one in our house that does the "what if".  I think between hits he is trying to just forget about it.

I do believe that you cluster suffers have all the right things lined up.  I think it has to do with hypothalamus, melatonin levels, calcium and magnesium levels etc.........You need all of the above to produce your symptoms. What I think needs to happen is to find out the few things that can be changed to balance things enough to make them quit or at least tone down.
(it is probably different for everyone.)
Realistically it is an inflammation of that line of nerves.  What is causing the inflammation? What is the switch in the body that makes it happen at night?  Is the waking up just pre-attack an automatic response or is it a conditioned response?  So many questions......
I know my honey has enough to do making his life as normal as possible without dwelling on these things.  I, on the other hand, can dwell:)

Kimberly

Title: Re: BBs Post Got Me Thinking
Post by kayarr on Oct 28th, 2006, 8:01pm
Jeff-  10-09-55

last born

5'11"

(Charming Libra who likes things fair and balanced.  Happens to have a little problem with some headaches)

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 28th, 2006, 11:29pm
Annette,

Thank you for giving me a little push to organize this birthdate soup! :)

Between my 2 threads I have 58 birthdates--Margi's list as well as any new respondents now included.

Here are the birthdates.  What I have decided to do is place a (*) next to the dates that fall within 3 weeks of an equinox or solstice (since the equinoxes and solstices can vary a day or two each year this will be factored in).  Just to start getting things organized.  I have placed a (#) next to birthdates that fall within 1 month of a solstice or equinox.



 #1/14
 #1/16 (Australia birth, therefore summer)
    1/31
 #2/25
 #2/29
 *3/7
*3/13
*3/14
* 3/18
*3/19
* 3/19
* 3/20
*3/30
* 3/? (no date in March specified)
*4/8  (Australia birth, autumn)
# 4/14
#4/15
 #4/16 (Australia birth, autumn)
 #4/20
   5/2
   5/7
 *5/30
 *6/1
* 6/10
* 6/13
 *6/13
 *6/29
 *7/2
 #7/16
 #7/18
# 7/21
   7/28
   7/31
   8/2
   8/16
 #8/21
 #8/23
* 9/2
*9/4
 *9/10
 *9/13
* 9/24
 *10/9
 *10/9
 *10/12
 #10/17
   10/25
   10/25
   10/30
   11/3
   11/15
 #11/20
 #11/26
 *12/1
 *12/4 (born 2-3 weeks premature)
 *12/12 (Australia birthday, spring)-----
 *12/13
 *12/27

*Please note on this list that there is a strong clustering of clusterheadache sufferers surrounding the spring equinox on March 21.


52%  or  30 of the 58 respondents' birthdates fall within 3 weeks of a solstice or     equinox (this percentage has gone down a bit with the new respondents info)
   Statistically, this number should be more like 45%.
79%  or 46 of the 58 respondents' birthdates fall within 1 month of an equinox or solstice (this percentage has stayed fairly stable going from 80-79).  Statistically, this number should be more like 65%.

There is also still a majority of people born in the second half of the year between 7/1 and 12/31--31 of 58 or (53%)  respondents were born in the second half of the year.

Additionally, MARCH takes 1st place with the MOST birthdates of cluster headache sufferers --with 9 birthdays.  OCTOBER is in 2ND place with 7 birthdays.

A MAJORITY of respondents DO have birthdates within 3 weeks of an equinox or solstice.  And, within this framework, the SPRING EQUINOX event seems to be attracting the most birthdates with 10 falling within 3 weeks of this solstice.  The SUMMER SOLSTICE comes next with 7 birthdates falling within 3 weeks of this solstice.

spring equionix-- 10 respondents within 3 weeks
summer solstice--7 respondents within 3 weeks
autumnal equinox--8 respondents within 3 weeks
winter solstice--5 respondents within 3 weeks

Also, please notice that many of the birthdates that fall around the equinoxes and solstices are falling WITHIN DAYS of the equinox or solstice date.  One falls directly on spring solstice.  THIS IS WORTH NOTING.

One more item of interest:  
The list provided by Margi along with the new respondents have REINFORCED something from my last list that may be very important:  The majority of cluster heads are born in AUTUMN and SUMMER with 17 born in Autumn and 16 born in summer.  WINTER has 13 (I have included the ambiguous March birthdate in with winter for clarity's sake.)  Spring has 11. 

I believe that normally most births occur in the spring.  In this list we have spring being an unpopular season to be born for clusterheads, but ironically many are born CLOSE TO the spring equinox.

So, to summarize:  

1)  Being born within 3 weeks of the spring equinox IS a popular time to be born for clusterheads but the spring as a whole is NOT.

2)  Statistically from our pool of respondents, a MAJORITY of clusterheads are born in AUTUMN followed by SUMMER.


So, hopefully this organizes things a little.  And I hope this can be interesting and maybe a spring board for further studies or ideas.  

Love, Star



Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 29th, 2006, 12:00am
PS.  If I have overlooked anyone's birthdate in the two threads PLEASE PLEASE let me know--just shoot through a quick email to this thread.  I don't think I overlooked any--but I would not want to have made that error.  So let me know.  Thanks, Star

And anyone, please add your birthday if you would like to and you haven't already!

Title: Re: BBs Post Got Me Thinking
Post by davyp on Oct 29th, 2006, 12:28am
Hi Starlight,

I posted on the other thread but i posted it in english ;;D not American ;;D
I was born on the 2nd of july 1977

Sorry about that ;)

Dape

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 29th, 2006, 12:45am
Hey Dave, thanks!  I will edit the list/info with your b-day in there!  Star

Title: Re: BBs Post Got Me Thinking
Post by Kate in Oz on Oct 29th, 2006, 9:46am

on 10/28/06 at 01:31:25, AussieBrian wrote:
All astrology is complete and total bunkum.  I'm a Scorpio (Dec 12) so I should know.



Ha ha Brian.... scorpio my a$$




Hey Star,

This is great!!  I have wondered the same myself... but too afraid to ask the question.

GOOD WORK !!!

Kate

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 29th, 2006, 12:48pm
My post compiling the birthdate information has been edited by me today to fix one error and to add some more information.  Star

And Kate,  thanks for the kind words!

Title: Re: BBs Post Got Me Thinking
Post by alchemy on Oct 29th, 2006, 2:00pm
Star, interesting thread. Keep up the good work.

jim

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 29th, 2006, 3:05pm
Hey Jim,

Thanks for the encouragement!  

Annette, am editing this post very briefly in one second to factor in 4 Australia birthdays from the list (one your husband's) and the different seasons down there--sorry, was late when I got this together last night!  Note--this will not effect solstice/equinox percentages. 

Star

Title: Re: BBs Post Got Me Thinking
Post by allets on Oct 30th, 2006, 6:09am
Born Nov 26  8 am  6th of 6.  First  cluster started in Aug,  age approximately 33.  Have had them spring, winter, summer and fall .  No pattern to seasons. They lasted 3 months.  Continued every 1 1/2 to 3 years until around 55- 60.  Then went  10-15 years without any.   Now at age 72  they started up about 3 weeks ago.  Antihistamine and hot compesses help decrease the pain .  So far this time they are not as hard as when I was younger.  They always got the worst in the last month of the cycle.   Haven't been to a doctor with this round but plan to if they continue or get any harder.  There is a lot more information out there now with the Internet than when mine first started.  

Title: Re: BBs Post Got Me Thinking
Post by AussieBrian on Oct 30th, 2006, 6:13am
That really stinks, alletts.  Let us know if we can help at all.

Title: Re: BBs Post Got Me Thinking
Post by Margi on Oct 30th, 2006, 11:23am

on 10/28/06 at 23:29:43, starlight wrote:
(I did not include Margi's list in order to avoid duplicates that might have occurred with people using screen names).


None of the people on the list I posted use other screen names.  In fact, Elaine, Donna, Jonny, DJ and BobP are the only ones of that list who post here anymore, so the data I gave you is worthwhile.  

Title: Re: BBs Post Got Me Thinking
Post by stpp77 on Oct 30th, 2006, 12:20pm
Hi, born March 13th, the firstborn of 2.


Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 30th, 2006, 12:32pm
Margi,

Thanks for the information and for letting me know that there would not be any duplicates--I am going to wait just a little while to see if some others post birthdays and then will update the list and percentages/numbers with the birthdates you gave--that will actually be very helpful--thank you--I didn't want to assume that there could be no screen names--thanks.  Star

Title: Re: BBs Post Got Me Thinking
Post by maffumatt on Oct 30th, 2006, 1:46pm

on 10/30/06 at 06:09:48, allets wrote:
Born Nov 26  8 am  6th of 6.  First  cluster started in Aug,  age approximately 33.  Have had them spring, winter, summer and fall .  No pattern to seasons. They lasted 3 months.  Continued every 1 1/2 to 3 years until around 55- 60.  Then went  10-15 years without any.   Now at age 72  they started up about 3 weeks ago.  Antihistamine and hot compesses help decrease the pain .  So far this time they are not as hard as when I was younger.  They always got the worst in the last month of the cycle.   Haven't been to a doctor with this round but plan to if they continue or get any harder.  There is a lot more information out there now with the Internet than when mine first started.  


That does suck, glad you found us though. Alot of really good and helpful people here.

Title: Re: BBs Post Got Me Thinking
Post by aubmari on Oct 30th, 2006, 2:11pm
DOB ~  April  15th  first born of 2. started CH in March and only other cycles have been march as well.

very interesting!  ;)

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 30th, 2006, 2:18pm
Allets,

Glad you found us also.  Have you tried using oxygen?  You can ask your doctor for a prescription for it--you may find that it helps you a lot.  Star

Title: Re: BBs Post Got Me Thinking
Post by allets on Oct 30th, 2006, 2:30pm

on 10/30/06 at 06:13:54, AussieBrian wrote:
That really stinks, alletts.  Let us know if we can help at all.


Thanks, you all have helped so much already with this forum. I have a lot of reading to do.  Something unavailable 40 years ago when all mine started.  And I love your line at the bottom of your post.  I too feel I have a lot of experience and no right answers.  

Title: Re: BBs Post Got Me Thinking
Post by allets on Oct 30th, 2006, 2:34pm

on 10/30/06 at 13:46:47, maffumatt wrote:
That does suck, glad you found us though. Alot of really good and helpful people here.



Yes I can feel the warmth and  sincerity of everyone.  Glad I found this forum also, a lot of information to process.

Title: Re: BBs Post Got Me Thinking
Post by allets on Oct 30th, 2006, 2:55pm

on 10/30/06 at 14:18:35, starlight wrote:
Allets,

Glad you found us also.  Have you tried using oxygen?  You can ask your doctor for a prescription for it--you may find that it helps you a lot.  Star


No Starlight I have not tried oxygen but will certainly ask my doctor about it.  It will be interesting to see how much the doctors have moved forward in the past 40 years.   I did go to a neurologist back then and he diagnosed them right away as clusters but  most of the others looked at me like I had 2 heads.  The neurologist gave me some prescription for meds but I don't remember what it was now.  I only took one and I thought my heart would beat out of my chest so they got flushed!  I went to another well know clinic and they wanted to put me on the same meds so that didn't help.  After that I just lived with it and tried my own reliefs.   I tried acupuncture and I will say that helped with the intensity of the pain.   Then during one cluster event I had a cold and my doctor gave me antihistamines and that also helped, even though he didn't believe me.  The other thing I use is a heat pack.  Cold packs made mine worse.   One incident I will never forget was when I was in a cycle and we had a hard earthquake just as I was getting out of bed to  get some heat on it.  We were on the second story of an old motel and I could feel myself meeting my maker.  Guess what, that was the end of my cluster and the cycle!

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 30th, 2006, 3:30pm
Everybody, I have updated my old list.  I have edited my old post with the new information.  Please scroll up to see it--it was just much easier for me to edit the post I already had up because I am NOT very computer savvy!  Love to you all, Star

Title: Re: BBs Post Got Me Thinking
Post by Barry_T_Coles on Oct 30th, 2006, 8:16pm

on 10/30/06 at 14:55:06, allets wrote:
Cold packs made mine worse.  


Hi allets & welcome.
It's a strange beast this one, I'm the opposite with heat packs making mine worse & cold packs being the goodie.

Cheers
Barry

Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 30th, 2006, 9:37pm
Allets,

Benadryl does help certain people--I used it at the peak of my cycle till the end, and it can throw a wrench in and help you get some sleep.
But if I had to give someone my choice of weapons against the beast it would be oxygen--ask your doctor about it and make sure you check out the oxygen information on the left and show it to your doctor.  You gotta get the right level of O2 and the right mask.  Star

Title: Re: BBs Post Got Me Thinking
Post by Kirk on Oct 31st, 2006, 1:02am
If you want to add it at this late date Dec. 2 5:30 PM on a Sunday, 2nd child of 4.
One of the finest heavy weather sailers born North of the 45th Lattitude. 2nd best King Crab Fisherman in the Bering Sea.

http://img.photobucket.com/albums/v285/Kirk511/Kirkatthepack.jpg
32 days till crab season.  [smiley=smokin.gif]

Title: Re: BBs Post Got Me Thinking
Post by Turts on Oct 31st, 2006, 1:07am
first born of twins, 1 boy (me) and 1 girl (her)

10 sept 1975

I got the looks personality and the Ch
;;D

Turts


Title: Re: BBs Post Got Me Thinking
Post by starlight on Oct 31st, 2006, 12:04pm
Kirk and Turts, Thank you for your info.  I hope that people do continue submitting birthdates, and I will update after some more come in.  
Kirt, I love the picture!
Turts, that is interesting that you are a twin and that your twin does not have CH.
That could make for a whole other study!

Thanks for your info everyone!  Star

Title: Re: BBs Post Got Me Thinking
Post by Giovanni on Nov 1st, 2006, 7:40am
March 9th about 2:00 A.M. Tupelo, MS 1st of 2 boys.  Developed CH at age 47.  Am now in cycle that started July 1st.   :(

John

Title: Re: BBs Post Got Me Thinking
Post by mynm156 on Nov 4th, 2006, 9:07pm
One and Only born February 14 1968

Title: Re: BBs Post Got Me Thinking
Post by keithr1024 on Nov 5th, 2006, 10:18am
ok i'll tell you .youngest of four born oct 24th 1973 and tallest of family at 5'11"   [smiley=hammer.gif]

Title: Re: BBs Post Got Me Thinking
Post by G on Nov 5th, 2006, 10:42pm
Hi all, Interesting subject ,june18 1971 ,6:45am here,ever look in the mirror when your eye is swollen and see your pupil mirging with your iris,there is a little ring in the iris that was definatly different(smaller)than my righteye(non effected side),and since i'm off the subject ....ever notice difference in light ,between bulbs and the sun ,some bulbs seem to sooth me others irritate me like a dark room [smiley=twocents.gif]

Title: Re: BBs Post Got Me Thinking
Post by emeraldgirl56 on Nov 12th, 2006, 8:23am
I have been reading all the posts all weekend, and finally got to this one... I know it is late, but my husband was born Feb 14 1953.  The fourth of seven. He is a twin. He and his brother were numbers three and four.  His twin does not suffer from CH. Modified to add his episodes have always started in the fall, Oct to Nov, and generally last til March.

Title: Re: BBs Post Got Me Thinking
Post by starlight on Nov 12th, 2006, 9:39pm
Thanks for your responses!  I am just kind of letting them trickle in--each and every one important--hoping to get a few more so that when I refigure the percentages we will have a little larger response pool than the previoius to look at.  
Thank you for all responses!  They are much appreciated!  Star

Title: Re: BBs Post Got Me Thinking
Post by Melvyn on Nov 13th, 2006, 8:58am
Hi Star,

born 27th December 1949 - 2nd of three - episodic - three so far always start in April.



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