Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
Cluster Headache Help and Support >> Cluster Headache Specific >> Whiney whiney whiney......
(Message started by: BarbaraD on Oct 9th, 2006, 3:04pm)

Title: Whiney whiney whiney......
Post by BarbaraD on Oct 9th, 2006, 3:04pm
I need to whine a little. Most of you know I'm chronic and chronics have high cycles and low cycles. Right now I'm in the midst of a HIGH cycle and ready to KILL something.....

I wake up with a shadow and hit the coffee or Red Bull (whichever one I get to first) and usually abort (for a while). Then, just when I think it's safe to go out again - Wham!!!! here we go again!!!!!

I HATE to take meds, but lately I've been hitting the cafergot pretty regularly. Right now, I've got some "serious" shadows that don't seem to want to leave me alone. Done the Red Bull. O2  and the coffee too, but it's just hanging on ....  About another 2 rungs on the Kip scale and it's back to the cafergot.

Melatonin is helping at night (along with the cafergot) but between shadows and ice pick hits, I'm a nervous wreck.

The damn barometer is changing hourly and my head right along with it. When it settles down, so will I, but right now I'm a mess.

Right now I'm trying to cook dinner for my little Caleb (about time to pick him up at school -- guess I'll wear the sunglasses AGAIN!) and his parents (it's a late night for them at work so Granny cooks dinner). I can't even think "how" to put a dinner together right now -- That's BAD! Got a chicken boiling and I think I was planning to make some dumplins but really don't give a damn if anyone eats or not.

I just HATE to be like this and know I will get over it, but just don't have any patience.

Ok, whiney time is over. I'm going to get Caleb at school now and get my s*(() together. Just needed to blow off some steam.

Thanks for listening...

Hugs BD

Title: Re: Whiney whiney whiney......
Post by LeLimey on Oct 9th, 2006, 3:12pm
Oh Barb
I'm sorry. I had one of those hits that will not die yesterday and it was hateful. So far today, two hits both aborted easily with o2. Thats the good news, high cycles DO end, I hope yours is soon. Boil some rice to go with that chicken, chuck in a can of mushroom soup and call it risotto. It won't kill em and it isn't too much work for you.
Hang in there, you can do it (and that was a KILLER comment on the other thread! I'm in AWE!)
love
Helen

Title: Re: Whiney whiney whiney......
Post by roy21302 on Oct 9th, 2006, 3:17pm
Barbara, I am thinking of you, hang in there darling things will get better, go kick the beast a few times wishing you PF times                                       Cheers Roy :D

Title: Re: Whiney whiney whiney......
Post by Mattrf on Oct 9th, 2006, 6:03pm
Sure hope your day gets better, just hit the drive through or call out for pizza and take it easy, I am sure the little one wont mind fast food.
Take care hope you get some PF time to recover.

Matt

Title: Re: Whiney whiney whiney......
Post by prcole18 on Oct 9th, 2006, 6:11pm
I know exactly what its like to be in a high cylce being a chronic, hope things get better for ya.

Title: Re: Whiney whiney whiney......
Post by burnt-toast on Oct 9th, 2006, 6:55pm
You're not whining - just letting out some of the frustration of dealing with this nightmare.

All I can say is that I understand.  I ran at the high end of my cycles all spring and summer and was ready to explode.  Now into the lower end of them - not perfect but more liveable.  

I can only wish you a rapid trip back to the low side of your cycles.  Hang in there and be well.  

Best wishes,

Tom  

Title: Re: Whiney whiney whiney......
Post by lskilly on Oct 9th, 2006, 7:52pm
From another chronic. Hang in there we all are pulling for you!!!!!!!!
My wife says she understands whiney, Me.
Lskilly

Title: Re: Whiney whiney whiney......
Post by Charlotte on Oct 9th, 2006, 10:29pm
If need be, set the chicken in the back corner of the stove to cool off and use later in some sort of dish, use the plastic to call in a deliver or pick up order of some kind of food, concentrate and getting through the high cycle hits and loving your grandkid, and to hell with preconceived obligations.  Your only obligation here is what you choose - to be there for the kiddo and to feed him, and to get through it.

Love, Charlotte

ps this is useless for today as it is my late day, so I'll add "for future referrence".

ppss i apologize - i missed that you had to leave to pick him up.

...and there's always peanut butter & jelly.

Title: Re: Whiney whiney whiney......
Post by Richr8 on Oct 9th, 2006, 10:42pm
No whiners here.  Only friends.  

I hope you get some pf time soon.

Title: Re: Whiney whiney whiney......
Post by sandie99 on Oct 10th, 2006, 3:25am
Barb... [smiley=hug.gif]

Venting is allowed in here! :) I hope everything went fine after all.

Best wishes,
Sanna

Title: Re: Whiney whiney whiney......
Post by rbmb on Oct 10th, 2006, 2:14pm
Barbara,
       I'm not chronic, but I know about the pain and I know that it's ok to vent sometimes and this is the right place because people here really do "feel your pain". I hope things get better for you.
                            Rich

Title: Re: Whiney whiney whiney......
Post by kcopelin on Oct 10th, 2006, 3:57pm
Barbara,
From another chronic in high cycle-my husband actually complained that he was tired of pizza-I had to leave the room to not say the very first words that came to mind-when I cooled down-the next day-I explained to him that I am not on vacation, but in pain-and if he would like something other than pizza when I'm getting hit-he can get creative in the kitchen and fix something-and I don't give a rats' fanny what it is as long as he and Mikey (9 yrs old-doesn't mind pizza-gotta love him) get at least two of the food groups-not counting sugar and fat.
Am not expecting a big card for mothers day-by the way-
::) :-/
hang in there, my friend, this really will pass-
kathy

Title: Re: Whiney whiney whiney......
Post by Margi on Oct 10th, 2006, 4:02pm
hell, Kathy, I'LL send you a mothers day card!  I think you were well within your rights to say what you did.

Need us to sign him up for Supporters 101 class?  :)

Title: Re: Whiney whiney whiney......
Post by clusterwife on Oct 10th, 2006, 4:40pm
Sorry to hear things are bad for ya.  Hang in there, You can vent all you want!  Give me a call, atleast have a laugh or two.  I heard laughing cures everything, even baldness.

Title: Re: Whiney whiney whiney......
Post by E-Double on Oct 10th, 2006, 6:23pm
Who's this person posing as granny D?

J/K

Welcome Autumn.........I'm with ya my dear.

Do whatcha do best :-*

Title: Re: Whiney whiney whiney......
Post by Jobette on Oct 10th, 2006, 9:20pm
BarbaraD ;;D, I admire you for trying to be the good granny, but you can't leave yourself out. Be good to you, because as you know, only we know what you are really going through. Take care of yourself as only YOU can and here's praying for PFD's for you!!! :-*

Title: Re: Whiney whiney whiney......
Post by BB on Oct 10th, 2006, 9:56pm


Sorry havent posted in here, still trying to figure out how to send a roast chicken from Australia to US ... [smiley=huh.gif]

You should see the Posties face when I asked that question  :P

Hang in there Barbara, roast chicken comming somehow ...

Annette



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.