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Cluster Headache Help and Support >> Cluster Headache Specific >> Verapamil Tolerance?
(Message started by: apace41 on Oct 5th, 2006, 10:31am)

Title: Verapamil Tolerance?
Post by apace41 on Oct 5th, 2006, 10:31am
Hi, to all.  Returning, unfortunately, to the board after 2+ PF years.  Been a CH sufferer for as long as I can remember (I'm 44 now).  Went on 480mg of Verapamil and it was like magic... for the past two years.  Demon is back with a vengeance.  Different this time.  Used to be like clockwork at 2 in the morning, suffer through between 1/2 hour and 2 hours, follow a perfect parabolic curve, then be over with for two days and cycle would repeat.

This time, much more random.  Several in a single day ranging from 1/2 hour to 5 or 6 hours.  After the first weekend it went away for the most part (that residual pain feeling hung around a bit).  Then, after about 8 days, another fierce return.  Longer bouts again (up last night from 2 and lasting until... well ... now).  

Specific question is whether people have experienced a tolerance to Verapamil.  I figure one approach is to up the Verapamil, but wanted some feedback before calling the doc.  Never had any side effects from it and have a family history of HBP (with one bad test of my own) which helped convince me it was a decent thing to try.  Of course, with CH, you never know if the drug did the trick or if you happened to have a remission period just to tease you.

Anyway, thoughts on this appreciated.

Andy

Title: Re: Verapamil Tolerance?
Post by lskilly on Oct 5th, 2006, 5:27pm
Caused me to have violent shaking of my hands similar to palsey. But then I seem to be very sensitive to any med. I was tying it for high blood pressure. Oddly enough it seem the CH came back about the time I stopped the verapamil.

Title: Re: Verapamil Tolerance?
Post by apace41 on Oct 5th, 2006, 5:39pm
Thanks.  What I was driving at was more the other way around.  For people who have tolerated Verapamil and then had a recurrence, did upping the level of the meds have some success?

Thanks,

Andy

Title: Re: Verapamil Tolerance?
Post by Jonny on Oct 5th, 2006, 6:38pm
Yes, raising the dose has helped many people.



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