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        Cluster Headache Help and Support >> Cluster Headache Specific >> follow-up at nuerologist in 2 hours
        
(Message started by: Charlotte on Oct 5^th, 2006, 9:44am)

Title: follow-up at nuerologist in 2 hours
Post by Charlotte on Oct 5^th, 2006, 9:44am

Going for follow-up, this morning.

Will check back in later.

Charlotte

Title: Re: follow-up at nuerologist in 2 hours
Post by clusterwife on Oct 5^th, 2006, 10:03am

Sending good vibes that the doctor has his/her healing gloves on! Hope all goes well, keep us updated!

Title: Re: follow-up at nuerologist in 2 hours
Post by HeadhurtinMama on Oct 5^th, 2006, 10:09am

Best of luck to you Charlotte!

Title: Re: follow-up at nuerologist in 2 hours
Post by Guiseppi on Oct 5^th, 2006, 10:28am

Charlotte, just tell him to fix the damned thing!!! Good thoughts your way.

Guiseppi

Title: Re: follow-up at nuerologist in 2 hours
Post by prcole18 on Oct 5^th, 2006, 12:33pm

Good luck to ya Charlotte

Title: Re: follow-up at nuerologist in 2 hours
Post by Charlotte on Oct 5^th, 2006, 4:05pm

The neuro visit went ok. Thanks to all the peeps here and all the info available here, I could actually speak for myself.

I specificially asked the neuro if I had a non-specific trigiminal autonomous neuralgia or some other type of headache.

He said it is either CH or SUNCT, but he can't determine which right now because my doc & I added Indocin. (If he had told me his plan, I wouldn't have screwed it up.)

So, I will be using 600 mg neurontin a day (not 900 mg which was too much for me), and trying Verapamil, again, with good instructions on escalation.

He said to try to use Indomethacin during the high cycles and see if I can go without it during the low cycles. He would like me to not use kudzu, but I need to look up the interactions before I decide that.

And I went to members services and requested a copy of my initial visit and follow up, which I should have done right aftre the first visit.

Charlotte

ps Went to the pharmacy, & it's temporarily out of verapamil.

nothing bad happened today, but nothing went smoothly.

Title: Re: follow-up at nuerologist in 2 hours
Post by Charlotte on Oct 6^th, 2006, 1:47pm

So yesterday I skipped the indocin and kudzu, and haven't started the verapamil. I was an angry mess this morning. My husband asked me to please take my indocin & kudzu.

Title: Re: follow-up at nuerologist in 2 hours
Post by lskilly on Oct 6^th, 2006, 7:22pm

When I am an angry mess my wife hands me my fly rod and points to the door. Sometimes alone is best for me. and for those around me.