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Title: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 6th, 2006, 1:52pm I realize I have been a pest here the last 2 or 3 weeks going through a very rough cycle,,,maybe my worst ever. I admit I have been a pest and after reading many responses to my threads especially those from Brewcrew I realize I need to stop bothering others with my problems. I have 3 Maxalts (of the 18 erscriped) thats all my insurance covers and that will last me another day or 2 max. Not sure what to do but I will not bother everyone here again. thanks for everything........ |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by brewcrew on Sep 6th, 2006, 2:01pm One you decide to grow up, admit your pigheadedness to yourself, and start taking some sound advice from people who have been dealing with this beast for much longer than you, c'mon back. We really don't want you to suffer. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by starlight on Sep 6th, 2006, 2:07pm Superirish, I am sorry if you are deciding the leave. Keep in mind though (and I am not trying to be a wiseass) the beast is a stubborn bastard and your best weapon (while you're trying to figure out what works) is O2. Cause some people don't find meds that totally work and some even choose to fight the HA with O2 alone. Not trying to be a wise guy at all--if I had to send someone into a battle with the beast and I could only give them one weapon it would be O2. In other words, take anything from me that I use to fight the beast--but not my O2. Take care, STar |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Margi on Sep 6th, 2006, 2:22pm I don't understand, either, why you refuse to try oxygen when so many people HAVE told you that it's the best thing out there. You never really have answered that question and I'm just really curious as to why....? How old are you, Superirish? Are you young? |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Charlotte on Sep 6th, 2006, 3:19pm If your cycle is 4 weeks, you only have another week before it's over. What have you learned that you can use next cycle? Do you have the ability to read instant messages on your computer? Charlotte ps If your cycle is over now, you dont' need us anymore. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by seasonalboomer on Sep 6th, 2006, 3:30pm Hey Superirish, Quit being a drama queen. You've had weeks of sound advice provided to you to just about every question you've posted. I've yet to see anyone really tell you that many of the questions you've asked have been addressed on the website links or in previous or other threads, sometimes at the same time you were posting your specific question. Why, because these folks provide info to you on as needed basis. Ask it and they're going to give you HONEST and experienced advice. Sometime better than you might get from a neuro. But we're not your doctors. We're not with you to make the decisions you choose to make for your care. We aren't with you when you are getting hit. But we get hit too, and we've experienced the confusing times, the scary times, the psised off times. And, many of us, have found a way to emerge after each cycle, or after each hit, to find sanity and direction. Give us a bit of a break maybe. You haven't been attacked. You just got a reply that you didn't like. Get over it and get on with listening to the advice you're getting. The time you have spent trying to find other answers than the ones you've been given could easily have been used to make arrangements for an Oxygen prescription and delivery. And, then you wouldn't have to worry about your Maxalt's running out. you've still got time. Scott |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 6th, 2006, 5:05pm unbelievable, the attacks just keep coming. You guys amaze me. I came to get help and this happens. MAN as for my cycle ending, it started AUGUST 18TH, it has not even been THREE WEEKS. My cycle lasts between 4-8 weeks. Thanks anyway everyone! I am outta here. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Margi on Sep 6th, 2006, 5:13pm seriously....you are NOT being attacked. But you are avoiding direction questions. Why WON'T you try oxygen? It's probably the safest, effective and most affordable treatment out there. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by BB on Sep 6th, 2006, 6:18pm SuperIrish, I am sorry you felt that you are not being supported. You are and the people here do care that you are suffering. I have seen my DH going through similar things. He was only diagnosed with CH on 03rd August and his cycle is still going. Looking back he had had cycles previously but they werent bad then, he could cope with them and used OTC meds for the pain. But not this cycle, the pain was horrific and the number of attacks were up to 8 a day. I saw how he panicked, how he became scared of the pain/the attack itself. I saw the desperate look in his eyes when the pain was at the peak and he felt he couldnt go on anymore. The thoughts of seriously quitting life itself as in suicide was there almost daily during the worst 2 weeks. And we tried everything! Prednisone taper didnt work, Deseril didnt work, Red Bull didnt work, hot/cold showers didnt work, Valproic didnt work, Imigran works but occasionally doesnt , 02 works most of the time but not all, he had needed morphine injections several times then ended up with horrible rebound headaches and dependency which took a whole week to wean off. Every time he tried something new he got all excited, hoping that this would be the magic bullet that will stop the beast. And every time it failed it crushed him and his spirit. We had to try so so so very hard to not give up and to keep going, keep searching, keep trying. So I can understand how you frantically looked for the one thing that would simply stop the attacks. The only thing that you know works consistently is Imitrex, while everything else you tried didnt seem to do much. Its most important though that you realise that things like redbull, hot cold showers, melatonin etc are not first line treatments. They are there as compliments to the mainline medication. They dont work the same for everyone. The only things that are most likely to work are tried and proven medications such as Imitrex, 02, Verapamil, Lithium, Valproate, Topamax etc, even then you need to try various ones at various doses to see what works for you. Please dont be dishearten that most of the things you have tried didnt work. I am sure that there are things out there that will help you but you need to keep looking and keep trying. The people here are not doctors. We can only share with you our own unique experience and what works for us, in the hope that it may work for you. So its up to you to discuss the various options with your doctor and to decide whether or not to try each and everyone method. You are welcome here and you can continue to ask as many questions as you need to, we are only trying to help. Sometimes the best love is tough love where things are said simply as they are, no sugar coating, that way the real message can get through. I wish you all the best and that your cycle will end soon and you will enjoy many many painfree days and nights. God bless. Annette |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by MJ on Sep 6th, 2006, 8:31pm Some good questions were presented Irish. Hope you got some good answers all the same. Sounds like the CH is making you a little withdrawn and irritable. Its a part of the battle we all fight. Aint no big deal and what Brewcrew said "c'mon back. We really don't want you to suffer" What works for one doesnt allways work for another and nothing worked for me untill recently. It only took 30 years to find it. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Katherinecm on Sep 6th, 2006, 10:29pm Superirish, I'm sorry you don't feel you're being supported. When I first started here I didn't feel very supported either. But I'm glad I stuck with it- I have gotten more knowledge here than from my neuro. Keep in mind that many of the senior members of the board are chronic, and constant hits can leave anyone with a bad temper. Give everyone some grace, and don't take anything personally. You might find, like I did, that the people who you feel are criticizing you most now become some of your strongest allies later. There's something I suspect you don't understand. There are no magic pills with CH. I thought, when I first went back to my family doctor a few years after my first cycle, that I could take something and it would end the cycle for me. That's what the doctor seemed to think. But that's not the case. It's very important to understand that. The point of preventative medicines are to reduce the number of hits you have, not to get rid of them completely. If verapamil is a preventative that works for you (and it's the one you should try first because it's the one that helps over 90% of CH sufferers, if you believe Mayo Clinic studies), then it will knock out maybe half of your hits. This may mean your hits will be less severe, or it may mean that you will have less of them. Hopefully both. There are things to help manage the hits, and there are trade offs to everything. Maxalt is a triptan, a drug that no one here wants to see you overuse. There are several reasons for this- in the short term, while it will make one hit go away, it may cause rebound headaches later. MANY of us have made our CH worse by overusing medications, and none of us want that to happen to you. In the long run, triptans have not been studied for long term safety but it is suspected that they cause heart, liver, and kidney damage. Risking your long term health is ONLY wise if you are getting hit so hard and so many times that you have to overuse triptans to preserve your mental health. Also, they are expensive. The reason brewcrew and others have been encouraging you to try oxygen is that you can take it instead of the maxalt when you get hit. For most people it works well and fast. It is cheap, natural, not addictive, and poses no long-term risk to your health (except for possibly looking like a dork if you become one of us who totes a portable tank with you everywhere). It may take care of another 40% of your hits. For the really stubborn, awful ones that oxygen doesn't help for, that's when you take something like Maxalt. You still might be left with shadows or a time when you are away from your oxygen tank or can't get to your maxalt. That's when things like red bull or applying heat or cold to your head (whichever works for you), help a little. No, they may not relieve an attack completely, but if they knock a KIP-8 down to a KIP-6, or delay your attack for 20 minutes while you get to your oxygen, it is worth it. You can also combine the ice, redbull, oxygen, maxalt, etc for the really bad hits. Nothing is going to work 100%, at least not yet. Maybe in 20 years some new research will be done that will be the cure for everyone, but at this point, no such thing exists. We are here to support you. Don't forget that. Katy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 6th, 2006, 10:38pm "Farewell, sweet prince!"-Shakespeare |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by georgej on Sep 7th, 2006, 12:42am on 09/06/06 at 17:05:17, Superirish2005 wrote:
OMG. What attacks? We've specifically told you many times that you--are--not--being--attacked. Questions are not attacks. There's been plenty of good advice given here. We'd like to help you, but we're not going to wring our hands over your situation and play patty-cake and make nice-nice. If we think you're listening, we'll give it everything we have. If we think you're not listening, we'll tell you that as well. EVERYBODY here knows what it's like to get hit. I'm not sure you comprehend that. This isn't the outside world where you're trying to explain this to "normals". You're talking to real people who really understand what you're talking about. Some of us have been fighting these things for twice as long as you've been alive. What's offered here is better than tea and sympathy. It's REAL HELP with these horrible things. We can offer that. But we ain't your mother. You've got to make decisions on your own, based on the most complete information you can get. We can help provide that information. As has been said already, if you came expecting a magic bullet to end these, you won't find it. I don't care how many things you try. It doesn't exist. Deal with it. We've had to. You can too. As I've said before, as far as I'm concerned, you are welcome here. Come back if you wish. Again, YOU ARE NOT BEING ATTACKED. I'm not sure how much clearer we can be. If you leave, I'll regret your decision. But it's yours to make. George |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 7th, 2006, 12:59am "Methinks the (lad) doth protest too much!"-Shakespeare |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Bob P on Sep 7th, 2006, 7:15am Been reading these Irish threads. Seems to me, Super pushed every button: laying down, light' vomiting, etc. Me thinks your Irish is the dogman. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chopmyheadoff on Sep 7th, 2006, 7:43am i think your taking the p1ss if i may be so blunt. the people who you are criticising are not paid to be here for you. they are sufferers same as yourself.they do not owe you anything. i am truly sorry for you that you are in pain and will help in any way i can. same as everyone else here though all i can do is let you know what has worked for me and suggest some things that maybe you havent heard of. if they dont work for you then tuff. try the next thing. what i am greatly offended by is the way that you seem to belittle everybody else. You are moaning that you still have a week or so left in your cycle. BIG F#CKING DEAL TRY A SEVEN YEAR CYCLE MATE - remember - there are always others worse off than yourself. be grateful that people on here actually care enough to ignore their own pain for a moment and offer you help.# you ungrateful idiot. good riddance to you i say. you obviously only here to take and not give. byeeeeee [smiley=wave.gif] |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by BigCoffinHunter on Sep 7th, 2006, 10:09am It's definitely hard to accept that in this age that there just is no 'cure'. Most people just don't get it and say 'why don't they give you something for that?' You basically have to learn to deal with the fact that you are going to have to try a variety of different preventatives and abortives until you find combination that lets you live a decent life through your cycle. I haven't followed the whole thread, but an abortive like Maxalt is a very tiny part of the equation. You and your doc will need to argue with insurance companies, and try a lot of options. If you are at the end of your rope, a simple run of steroids may provide you with a week or two of relief while Verapamil or another preventative builds in your system. Trust me when I say that a week or so of being pain free will allow you to regain your sanity. Again, not a cure, but a temporary break can make a big difference. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by JeffB on Sep 7th, 2006, 11:31am Sorry for this, but this person needs to look to the left and do some research rather than asking a million fucking questions. Obviously this person just wants to waste everyones time and reject their advise then ask more stupid fucking questions. Again, sorry for the rant! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 7th, 2006, 1:35pm HEY, I HAVE BEEN READING THE RESPONSES AND I AM NOT VERY HAPPY WITH WHAT I HAVE SEEN, ONE GUY CALLING ME AN IDIOT ANOTHER GUY WAVING GOODBYE TO ME ANOTHER GUY TELLING ME I AM WASTING EVERYONE'S TIME ANOTHER TELLING ME I ASK TOO MANY "FUCKING QUESTIONS" thanks for the support guys and if anyone cares I had a kip9 last night because I refused to take my last Maxalt and am home from work today in major pain!!!!!!!!!! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Charlotte on Sep 7th, 2006, 1:40pm Irish, call your doctor. It is not anyone here's fault that you had a kip 9. You need to talk to your dr. You only responded to 1 of my emails and that was to blame someone else for your trouble. You have not responded to me, personally. You have a script for Verapamil. Fill it. Use it. Ask your doctor about O2. Charlotte People care about you. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by brewcrew on Sep 7th, 2006, 1:44pm The help is here if you're willing to accept it. I have had you in my thoughts and prayers since we had our little run-in. I'm not taking back anything I wrote, because I believe it to be sound, experienced advice. The negative vibes you are sensing from others is their frustration with your refusal to heed what we're telling you. If you a hell-bent on leaving, then leave. If you really want to do something to address the pain in your head, then stay. Stay or go. Those are your choices. But soon people will just stop responding to the drama. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by seasonalboomer on Sep 7th, 2006, 1:57pm on 09/07/06 at 13:35:41, Superirish2005 wrote:
we do care dude. believe me, more than anyone other place in the world, the people here care. but, we're not here to make you happy --- we're here, volunteering input that can help you experience less pain from cluster headache. and maybe give you a little empathy. and some times, in this case, a little kick in the ass to get going. scott |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by StressFree on Sep 7th, 2006, 3:44pm Superirish, I hope you can get more Maxalt. It worked well for me too. As for feeling put off by some here, you should have seen my first few posts. I got called all kinds of names and given some very unpleasant remarks. (Of course I had intentionally irritated some folks). My point being, don't be put off. Have thick skin and stay around. I got through, and now I try to help others occasionally while out of cycle. This is the best place for it. And I know you can take some abuse, afterall you are a cluster sufferer! Best pain free wishes and prayers for you, Rich |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by BigCoffinHunter on Sep 7th, 2006, 5:04pm Just calm down and start taking advice from people who all go through the same thing you do. GET THE VERAPAMIL. It helps a lot of people. It takes time to build up in your system, so every day you don't take it is another day of CH. Keep in contact with your doctor, let him know what is working and what is not. Ask your doc about oxygen. Stock up on coffee and red bull. There are things you can do to improve your situation, but if you don't do them, there's nothing any of us here can do. All we can do is tell you what works for us and how we cope. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Sandy_C on Sep 7th, 2006, 5:15pm on 09/07/06 at 13:35:41, Superirish2005 wrote:
Irish - yes, we do care that you had a kip 9. We've all experienced the lovely Kip 9 hits, so don't for one minute think that you are alone there. I see from your post, quoted above, that you are unhappy with several people for what they posted to you. What about all the others who have done nothing but post helpful information, suggestions of things you could try to ease your pain, posted just plain old caring support? What about those people? Do you not understand that we are here only to help each other, as well as to possibly learn something new that might help ourselves? Do you not understand that we suffer just as much as you do with this disease/affliction, whatever you want to call it. Do you not understand that many here have had a lifetime of experience dealing with CH. Do you not understand that there is no cure - no magic bullet, and that all you, or any of us can do is get through it using whatever weapons are available to us, and whatever weapons work for us. We don't want to see you suffer if you don't have to. We want pain free days and nights for you, just as we want them for ourselves. All we're trying to do is share our weapons with you, but you don't seem very enthusiastic about trying any of them. That is frustrating to us. So, after a period of time, and many posts, we get the impression that you are not really here to learn about CH and find ways to help yourself, but that you are only here looking for that magic bullet, and here to bemoan your plight in life. Only you can help you! All we can do is offer our suggestions and experiences. You can take it, or you can leave it. The decision is yours to make. I sincerely hope you decide to stick around and really try to help yourself. Sandy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by BB on Sep 7th, 2006, 5:54pm I have to say that I am rather disappointed in your reactions, SuperIrish. I have repeatedly offered you help, both here and via PM and emails. You have chosen not to respond to any of them. You did not have the decency to respond or to say one thank you word to the many posts that offered you compassion and advices. Yet as soon as someone posts something you dont like reading, you jumped in complaining, as if they are the one causing you to run out of Maxalt or giving you the KIP9. Thats not polite nor smart behaviours. It appears that you have chosen ( your own choice ) to not use 02, to not start on preventives, to not listen to advices from people with years and years of experience dealing with this very difficult to control condition, then its your choice therefore to continue to suffer with the pain and attacks of CH. If that is your choice, I respect it and I wont be responding to your posts anymore, and I dont think others will bother soon. Every action brings a consequence. Choose your actions wisely. One last thing though, CH is a tough teacher, ignore its lessons and it will continue to bash you until you learn how to deal with it the right way. It will not go away, not for long anyway. Good luck with it all. I sincerely pray that the pain will stop, that your mind will clear and that you will see the light. Annette |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by starlight on Sep 7th, 2006, 9:17pm Irish-- This is only women's intuition. Could be wrong. But are you recoiling at the thought of having an O2 tank? I thought about it after these posts. I remembered that when I was probably 21 or 22 I had a fight with my Dad which I admit probably sounded a lot like what was going on here. He had told me that he had read on the computer at his work that O2 really helped people with cluster headaches. I said "Hmmm...sounds good" until I went into cycle and my Dad told me I should get oxygen. At that point, though in immense pain, I yelled at him and told him "NOOOOO!!!! I'm NOT getting oxygen!!!! I'm just NOT OOOOKKKKKKK!!!!!" Why did i do that? I was young. I was in pain. I too have a lot of Irish in me LOL. Well, what others are saying is true. You gotta hunker down and get the oxygen. You just need a prescription from your doctor. Then a place will come and drop it off at your house. Then I promise you you will not be in the place mentally that you are right now. You'll feel better. You'll be glad you got it. Gee, I sound like my Dad. Anyway, superirish, don't be too stubborn to listen. You should get the O2 no matter how long you have left in cycle so that you will be familiar with it and you will have the peace of mind of knowing that the there is something that helps. Imitrex and all that is great but it's not the same as knowing there is something that you can get that you can keep stocked cause it's cheap. OK???? Starlight |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 7th, 2006, 9:49pm While I realize that CH sufferers are good hearted people who want to help others with our condition, I do not understand why this thread continues as all "Superirish" has continued to do is insult everyone. Many have asked him to try oxygen, a simple matter, but he doesn't respond to that, only writes that everyone is against him. I think that it is time that we end this thread. I believe that "Superirish" just loves to stir the pot and get the good people on this site to continue to "try" to persuade him to try to help himself or get some help-though I think that the help that he needs is mental Let us end it, folks and spend our time on people who want our help and not on those who just want to jerk our chains. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jonny on Sep 7th, 2006, 10:02pm on 09/07/06 at 07:15:15, Bob P wrote:
Ditto......and Paulc is CHTom!!!!! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 7th, 2006, 10:04pm on 09/07/06 at 22:02:04, Jonny wrote:
...and Burt and Superirish and JONNY! [smiley=laugh.gif] |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jonny on Sep 7th, 2006, 10:29pm on 09/07/06 at 13:35:41, Superirish2005 wrote:
Yep, its Burt.......tell me its not E-double? |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 7th, 2006, 10:47pm Yup, it is...got the answer after smoking some catnip-sorry jonny to have to break the news to you. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Charlotte on Sep 7th, 2006, 10:51pm What's that saying again... We got screwed & we didn't even get kissed. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 7th, 2006, 10:58pm on 09/07/06 at 22:51:27, Charlotte wrote:
And ain't that a bitch! >:( |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 8th, 2006, 10:00am wow, all I have done is insult people right Paul? I came here for help and information and I get slammed like some kind of outsider. I am accused of being a man named dogmen? Then I am called names and told people are done helping me because I will not take their advice. That is rediculous. I thoght this was a place for help. I NEED HELP AS I GOT SLMAMED AGAIN LAST NIGHT BUT ALL I GET IS INSULTED AND ACCUSED OF INSULTING OTHERS. I never started the insults and I am FURIOUS someone PAULC would say I started trouble when it was brewcrew all along. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by seasonalboomer on Sep 8th, 2006, 10:16am hey there super, what are you? like 13 years old or something, playing with Dad's computer. if you're not, you need to get back on the meds you were taking before you stopped taking them to take of the growing sense of paranoia, the wild mood swings, and victim complex. geez. maybe take a little break from us for awhile. we ain't your momma and don't need to baby you through your process. scott |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by brewcrew on Sep 8th, 2006, 10:26am on 09/08/06 at 10:00:40, Superirish2005 wrote:
Now I'm done with you. There have been dozens and dozens of really good pieces of advice given to you by people who are my brothers and sisters, and all you can do is crank up the band at your pity party. Get lost. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by LeLimey on Sep 8th, 2006, 11:13am superirish I've never responded to any of your posts before but I've read them all. It seems to me you have two choices - either go - and don't let the door hit you on the arse on your way out. Or stay. STFU and settle down and listen to what people are saying. If you don't want advice then its simple, don't post. If you don't like the answers you have then do your own research instead of posting thread after thread after thread of questions. We all love helping people, we all genuinely truly want to help people be as pain free as they possibly can. Posts full of venom such as yours merely detract from those genuinely seeking help. You deter people from offering advice and your juvenile behaviour repels other sufferers who are repulsed by your spite. Please actually stop for a moment and think about what you want from us and also what maybe you could offer. Knee jerk posts aren't needed or wanted. Either listen and learn or go away. We don't need your disruptive behaviour here. Helen |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by MJ on Sep 8th, 2006, 11:17am Brewcrew your addy speaks volumes. Quote "It is useless to attempt to reason a man out of a thing he was never reasoned into" |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by brewcrew on Sep 8th, 2006, 11:23am on 09/08/06 at 11:17:50, MJ wrote:
I should probably heed Mr. Swift's advice myself. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Chonas on Sep 8th, 2006, 11:37am Did you consider for a moment that maybe this person is having fun with all of us?. If I'm wrong a Psychiatrist is urgently needed. [smiley=huh.gif] |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by georgej on Sep 8th, 2006, 11:38am on 09/08/06 at 10:00:40, Superirish2005 wrote:
Oh, waaa. Just bite me. I'm done. George |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jimi on Sep 8th, 2006, 11:43am Yes he is. We get them all the time. Immature, attention seekers who would argue with a lamppost. I hope he does leave. He doesn't want help. He just wants to whine (and he has been here before) First and last post on this thread. I gotta go win a football game. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Sandy_C on Sep 8th, 2006, 3:53pm I do believe that he is in pain with headaches - whether CH or something else? - the jury is still out. I also believe, as Jimi pointed out, he is immature, and hasn't learned, or won't learn, that there is help out there. All he has to do is embrace it. I'm sorry for him, because he could really benefit from the information he's gotten from these boards. He has just chosen to ignore it, looking for the magic "something". If he leaves, he leaves. But I hope, after he continues to suffer with no help, that he will return to these boards, realizing that we are only here to offer him support, information, and possibly something that will help him become pain free. Sandy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 8th, 2006, 4:25pm Thank you Sandy, I have since posted an apology on the board. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Sandy_C on Sep 8th, 2006, 4:50pm Superirish Do not thank me for anything. I am not your mommy, I am not your friend. I have said, time and time again, that you will get what you need from these boards, if YOU are willing to to embrace the information. If you are here only to gain sympathy for your pain, and not to gain knowledge about how you might reduce your pain, then begone. Sandy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 8th, 2006, 5:38pm wow that was harsh, not sure what to do, thank people, apologize and still get attacked. you people got issues and seem to attac everyone and eevrything here. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by kissmyglass on Sep 8th, 2006, 5:42pm on 09/07/06 at 13:35:41, Superirish2005 wrote:
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jobette on Sep 9th, 2006, 6:06am on 09/08/06 at 17:38:43, Superirish2005 wrote:
:o We do have issues, and you are not the only one being attacked. Some of us are really seeking help. Where else do we have to go when even the docs can't seem to help us. Please don't try to destroy OUR PLACE called Clusterville. This is the place that we call home. :-* |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jobette on Sep 9th, 2006, 6:13am ;;D ;;D Oh yeah I forgot to say that I have been up for a couple of hours going through but thank God that I don't have to go to work. and just maybe the rest of the day will be better. :'( I have been in THIS cycle since the last of June and I am not going to even guess when it is going to end. I jsut hope that it is soon. :P I know that it is hard to deal with this at times but you cannot bite the hand that feeds you. This can be a great place if you let, lots of help here. :P 8) |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by paulc on Sep 9th, 2006, 7:27am [quote author=Chonas If I'm wrong a Psycatrist is urgently needed. [smiley=huh.gif] [/quote] A "PsyCATrist" is urgently needed! [smiley=laugh.gif] Beautiful, Chonas as I don't think that we are dealing with a human here-are their hospitals for mentally ill dogs and cats? [smiley=huh.gif] Maybe a special diet of "9 Lives" is needed, because if Super communicates with other people (or animals) the way that he does here, someone will want to clock him and he'll need the extra lives. Maybe therapy sessions in cat talk will help, as Superirish obviously doesn't understand English-meow, meow, meow! :P |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by brewcrew on Sep 9th, 2006, 8:11am on 09/09/06 at 07:27:03, paulc wrote:
Get some sleep. [smiley=bag.gif] |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chewy on Sep 9th, 2006, 10:51am http://rds.yahoo.com/_ylt=A9gnMijB1AJFLwsAiFCjzbkF;_ylu=X3oDMTA4NDgyNWN0BHNlYwNwcm9m/SIG=12d8pgqjg/EXP=1157899841/**http%3a//www.villagehatshop.com/media/Elope-Drama_Queen.jpg |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chopmyheadoff on Sep 11th, 2006, 6:44am is there not a mod that can just ban superirish ?? jesus |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Bond007 on Sep 11th, 2006, 10:42am Aren't the rest of us in enough pain already? Why are we dragging this on and on and on and on and on........why am I even replying to this thread????? [smiley=huh.gif] Really, SI we're all suffering from the same ailment and we're all a compassionate group. However, our compassion can only go so far. Our advice will only help so much. The rest is up to you. I'm sure there's something that you're exceptional at, right? Now, how do you feel when trying time after time to offer your expertise to someone who just doesn't seem to listen or act on your advice, but continues to ask inane questions or get frustrated with you because you're not doing enough for them? There's no need to answer that question. It's rhetorical. Just think about it. Let it sink in. It's my guess that's how some of the veteran posters of this board are feeling towards you. Just my [smiley=twocents.gif] |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by kcopelin on Sep 11th, 2006, 12:00pm Chewy, I like the picture you posted. kathy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by JeffB on Sep 11th, 2006, 3:36pm If only a big thumb would fall from the sky and squish this idiot! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 11th, 2006, 5:02pm keep on insulting me guys, I have used all my Maxalts and had three clusters this past weekend. Wow, you guys are so compasionate and free of throwing out attacks and insults. You guys should be ashamed of yourselves. you want to reach me...... superirish2005@yahoo.com |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by LeLimey on Sep 11th, 2006, 5:06pm Here we go, Grab your partners for the "post hokey cokey" everyone! You know how it goes.. You put your left post in Your left post out Stir a little shit and then you turn about.. and so on ::) Don't knock it folks, hopefully the next song'll be "Far, far away"..... |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by nani on Sep 11th, 2006, 5:21pm on 09/11/06 at 17:02:37, Superirish2005 wrote:
You're kidding, right? >:( The title of this thread is... Goodbye Everyone... you must a fan of long goodbyes. Get over yourself. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Sandy_C on Sep 11th, 2006, 5:41pm on 09/11/06 at 17:02:37, Superirish2005 wrote:
As I've said before, I will be the advocate for any newbie who truely wants to know what is causing so much pain in their life. Who truely wants to learn about CH. Who truely wants information, and who will truely try to act on the valuable information they have gained from this website. I will not be an advocate for anyone who continuously posts about his/her pain, and how life sucks, and how nobody understands them, unless they are willing to become proactive in their own care, willing to read, willing to listen, and willing to learn. If you feel we are insulting you because we have offered information to you on how you can help relieve your pain, so be it. I'm sorry you had three clusters over the weekend. I'm sorry you are out of your Maxalts. Neither of things that happened to you are the cause of anything anyone said on these boards. If you really want help, call your doc. We are NOT DOCTORS, we cannot prescribe, we cannot make your pain go away. What we can do is offer our experience and what works or does not work for us, our support in advising you to seek medical attention, and our compassion. Our compassion, information and advice is freely given. It is taken back only when we realize that the beneficiary of our knowledge and experience, will not/does not/ or cannot, accept what he reads and learns from many people who have suffered with CH for year - probably longer than you have been alive. Irish, if you really want help from us, to learn from us, to find out how to help your own pain - get the chip off your shoulder and pick up your oar and start rowing this boat - just like the rest of us. Otherwise, it''s sink or swim. Sandy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by BigCoffinHunter on Sep 11th, 2006, 6:07pm on 09/11/06 at 17:02:37, Superirish2005 wrote:
Seriously this has to be a joke. Assuming this is a person with a real problem, and not a troll: Did you start taking the Verapamil you were prescribed? Did you ask you doctor about oxygen? Unless you answer yes to both those questions, you can only blame youself. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 11th, 2006, 8:37pm coffinhunter, because you did not swear at me or call me a name I will respond to you. Yes I started taking verpamil and I see my doctor next Thursday where I will ask him about the oxygen. I JUST NEED HELP AND I AM SORRY FOR OFFENDING PEOPLE.... HOW MANY TIMES DO I NEED TO APOLOGIZE TO BE ACCEPTED HERE? |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by vietvet2tours on Sep 11th, 2006, 8:43pm on 09/11/06 at 20:37:22, Superirish2005 wrote:
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by kissmyglass on Sep 11th, 2006, 8:44pm This dickheads still here eh? ::) |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jonny on Sep 11th, 2006, 8:57pm on 09/11/06 at 20:44:46, kissmyglass wrote:
Not for long my brother ;).....;;D |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by big guy on Sep 12th, 2006, 4:12am Please get rid of Irish. Put him out of our misery Big Guy |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Chonas on Sep 12th, 2006, 10:07am on 09/08/06 at 11:43:05, Jimi wrote:
Nothing but the best!. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by headbanger45 on Sep 12th, 2006, 2:14pm Superirish2005 is a fake. 34 Topic Posts on the last 5 pages alone. Most just attention getting BS. Dude needs to find a dating service or life hack somewhere else. The people here are in a battle and need to be spending thier time and efforts helping real folks and themselves, not playing with some lifeless loser with nothing else to do but troll. Your out of here - freakshow !!! >:( |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by angiee on Sep 12th, 2006, 3:18pm WOW!!! I just read the past 3 pages of posts... why dont you just take their advice, listen, and help yourself. If they tell you something works then it must because they have been dealing with this a long time. I understand your frusterated with the pain of the headaches but your only hurting yourself. Now that everyone is pissed off at you, what are you going to do?...make another screen name and start over? :-/ |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by wysper on Sep 12th, 2006, 3:24pm You know, that's not a bad idea...making a new screen name and starting over. Try to not be so defensive this time too. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chewy on Sep 12th, 2006, 4:50pm Quote:
Changing a screen name doesn't change the person. A hemoroid is a hemoroid by any other name and still a pain in the ass. http://rds.yahoo.com/_ylt=A9ibyGWBHgdFOOAAg1OjzbkF;_ylu=X3oDMTA4NDgyNWN0BHNlYwNwcm9m/SIG=12bd6esgr/EXP=1158180865/**http%3a//www.funny-base.com/pictures/thumbs/attention.jpg |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 12th, 2006, 5:22pm I admit I have made mistakes and said things I should not have said. I apologize to everyone on this board and realzie I am wrong in many ways. Please please can we forget this. I had a kip8 this afternoon at work and had to leave. My doctor cannot see me til next thursday at which time I will talk to him about the OXYGEN....anything I can do from now til then....maxalts gone, redbull does not work and just started taking verpapmil. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Chonas on Sep 12th, 2006, 5:43pm I had a KIP 0 at work this afternoon, and I also had to leave, it was too beautiful outside. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Kevin_M on Sep 12th, 2006, 6:48pm Have you tried reading any of the replies to the 38 threads of questions you previously had? Can you make ice? |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jonny on Sep 12th, 2006, 7:23pm on 09/12/06 at 18:48:00, Kevin_M wrote:
Why would he?.....Burt has you all to play with in this thread ;;D |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chewy on Sep 12th, 2006, 7:28pm Quote:
ROFLMAO! Thats one big ATTABOY to Chonas! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by ti_beach on Sep 13th, 2006, 12:10am Ok, SuperIrish!! I am married to a ClusterHead!!! I AM ALSO A RECOVERING DRUG ADDICT, Being Clean for Over 10 yrs. NOW!!! I never knew anything about Clusters, until I met my husband 2 yrs ago. We have now been married for close to a yr. I am my husband's biggest fan! We will overcome this....ONE way or another! I have been on this site for less than 3 weeks, and I don't see how you can talk so bad about it!!! So many ppl have reached out to YOU!!! For me, this site has opened up new horizons for me....and my husband! I am a "supporter" of my Husband!!! Do you have a "supporter"? I will tell you this!!! If you really want help, You will find it. NO one can find it for you! As an addict....I knew I needed help, and I found it!!! I knew I needed help to deal with my feelings and understanding my "clusterhead", and I found it!!! [smiley=sayyes.gif] All You have to do is accept the support that is offered to you! I went into a 4 wk program. I checked myself out a week earlier! The night that I decided to do this, I told the nurse that I felt like I had all the info that I needed to stay clean from drugs! She looked at me, and told me that she knew that "I would be a winner!!"......knowing that I would stay clean!!!...... This is like a "program".....Superirish!!....Stay here!! There are better things to come into your life!! Open your right hand......fell the palm of your hand with your left hand...there is your "life"....close your right hand.....YOUR life is in YOUR hands!!! Much love, and Hugs. ti_beach (Robin)...a newbie here.... [smiley=hug.gif] |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 13th, 2006, 2:22pm I have decided to stay here and just read...NOT POST. I received a very nice PM from brew Crew and we have agreed to be friends again. I agree with her that I offended waaay too many people and can never post here again! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by georgej on Sep 13th, 2006, 11:03pm on 09/13/06 at 14:22:43, Superirish2005 wrote:
That's nice. In the other thread "Apology to the Board" posted at 1:36 PM today (later than this), you said you were going away for good because a number of people called you pathetic and a loser. I'm still not clear on what you're going to do--stay, go, lurk--what? You keep asking for "support", and you tell us you're not getting it. I'm very unclear about what you mean by "support". What precisely do you mean by "support"? Sympathy? You got plenty of that early on. Advice? You don't seem to want it. You haven't replied to well-intended efforts to intervene on your behalf with your doctor. You haven't responded to any other well-intended efforts on your behalf. One idee' fixe that seems to run through this morass, however, is the continuing report on the number of hits you're taking, vis a vis the number of Maxalts you have left, and the difficulties that you're having securing more. This seems to come up a lot. It makes me wonder whether getting more Maxalts in order to cope with your hits might be what you mean by "support". You haven't said this, but considering the foregoing, it's difficult to conclude that "support" could mean anything else. Correct me if I'm wrong. And no need to be dramatic or to act out a crucifixion--it's a simple question, simply answered. Yes or no. And don't, for cry-yi, accuse me of attacking you. It won't wash. If having some kind, empathetic, "supportive" soul send you some free prescription Maxalt through the mail is, indeed, what you meant by "support", please spell out in detail how, exactly, that might be accomplished. If that is what you mean, there must be a reason that you have not asked outright. What might that be? By the way, for the fourth or fifth time, Brewcrew is a guy. Last post here. George |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Charlotte on Sep 13th, 2006, 11:40pm georgej, s. i. asked some good questions but seemed to never read any of the thoughtful helpfull posts, and only wants to antagonize. Please don't waste anymore time on trying to help him. He either will take the time to read what we have all offered, or he will miss it & wallow in self-pity. We have nothing more to offer him. Others can benefit from the thoughtful answers, but let's not waste any more time with s. i. love to all my helpful, caring friends Charlotte ps SuperIrish, please do as you said & just read. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by MJ on Sep 14th, 2006, 12:14am Sheesh talk about long goodbyes only 80 replies. Reminds me of an old girlfriend, started saying goodbye when the sun went down and never left untill the sun came up. Only to return when the sun set low again in the sky. After a while I just locked the door and hid. Carry on. |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chopmyheadoff on Sep 14th, 2006, 4:31am on 09/13/06 at 14:22:43, Superirish2005 wrote:
for the love of god is this thread still going ?? just go already - or stay - im not @ssed you need to do a lot of growing up before i personally post in any of your threads ever ever again. brewcrew is a guy - but im sure you already know this and are just behaving like the TROLL YOU ARE |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by chewy on Sep 14th, 2006, 6:49am Quote:
http://home.wi.rr.com/pmitchell/postedimages/brew.jpg DYKE ! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by brewcrew on Sep 14th, 2006, 7:15am Now I officially get to play from the ladies' tees. ;;D |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by maffumatt on Sep 14th, 2006, 7:27am die thread die |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Mosaicwench on Sep 14th, 2006, 9:07am I'm the "HER" on the brewcrew team . . . |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by sugarlandsooner72 on Sep 15th, 2006, 1:12am on 09/07/06 at 13:35:41, Superirish2005 wrote:
you don't work... and you have NO pain. you are a freak and a troll and need to leave these people who have tried and offered to help you with something you are not even dealing with.. you absolute LOSER! I can understand going and messing with people on a sports board.. but this is so beyond anything I can imagine. GET A SHRINK and leave these folks alone you stinking troll! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by georgej on Sep 15th, 2006, 1:23am on 09/15/06 at 01:12:34, sugarlandsooner72 wrote:
See the "Apology" thread for more information from Sugarlandsooner. I'd say it about wraps things up. Get lost, Superirish. George |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by georgej on Sep 15th, 2006, 1:28am on 09/14/06 at 07:27:47, maffumatt wrote:
I think it just died, Matt. George |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by mynm156 on Sep 20th, 2006, 9:33pm Dude, Just about EVERYBODY who is new here gets a little fried at first until you read and learn more. This site WILL help you but you have to go with it! Good Vibes MYNM156 |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Superirish2005 on Sep 22nd, 2006, 3:25pm i guess I wore out my welcome. I thought you guys were my friends but I have learned otherwise. thanks again!!!!! |
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Title: Re: Goodbye Everyone--Sorry For Being A Pest Post by Jobette on Sep 25th, 2006, 9:22pm Superirish, I guess you did wear out your welcome. To have a friend you must first show yourself friendly, and that is not how you have been acting. You have deprived some people like me of their time with these beautiful yet suffering people who are full of advice to people like me. I have stayed away for a few days in hopes that you would have seen the light, but i guess not. You keep saying that you are going to just read and not post but you are still here. If don't have clusters you probably should stay away from Clusterville because I think that some of us need a place like this to call home. I have never wished this condition on anyone one, but... I figure if you ever do have to go through what we go through you would never treat ALL of us as you have this month. Please, please, please do better. We are all adults here trying to help each other, and if you can't help please don't hinder. This is from a TRUE sufferer. The mind and our time is a terrible thing to waste. |
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