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        Cluster Headache Help and Support >> Cluster Headache Specific >> Still Averaging 2 Maxalts A Day
        
(Message started by: Superirish2005 on Sep 6^th, 2006, 9:57am)

Title: Still Averaging 2 Maxalts A Day
Post by Superirish2005 on Sep 6^th, 2006, 9:57am

Talked to my doctor and told him I get 1 cluster around 10:00am and 1 in middle of night and even sometimes I get one around 6:00 or 7:00pm.

Some days I take 1 maxalt and some days up to 3 but I have averaged 2 maxalts a day and am down to my last few pills.....

Title: Re: Still Averaging 2 Maxalts A Day
Post by JeffB on Sep 6^th, 2006, 11:54am

What are you taking as a preventitive?

Title: Re: Still Averaging 2 Maxalts A Day
Post by brewcrew on Sep 6^th, 2006, 12:39pm

And STILL no talk of getting ahold of some oxygen....

You know something? God helps those who help themselves, and until you stop all this nonsensical jabber about "will this work, what about this, I'm running low on this, blah, blah, blah..." I'm about done trying to help you.

Here's what you need to do:

1. Get your doc to write a prescription for oxygen through a non-rebreather mask at the rate of 10-12 liters per minute. If he won't or your insurance won't pay for it, get welder's oxygen and PM Jonny here on this board on how to set it up so you can use it.

2. Get the Rx for verapamil filled and start taking it.

3. Talk to your doc about possibly getting a high dose Rx (60-80mg/day) of prednisone that tapers off when the verapamil has built up to theraputic levels.

4. Did I mention getting your hands on some oxygen?

Title: Re: Still Averaging 2 Maxalts A Day
Post by Superirish2005 on Sep 6^th, 2006, 1:35pm

WOW, sorry brewcrew I did not relazie I was such a pest here. see you guys.

I am sure I will figure something out but this cycle is driving me in sane....

Title: Re: Still Averaging 2 Maxalts A Day
Post by brewcrew on Sep 6^th, 2006, 1:55pm

on 09/06/06 at 13:35:58, Superirish2005 wrote:

WOW, sorry brewcrew I did not relazie I was such a pest here. see you guys.

I am sure I will figure something out but this cycle is driving me in sane....

It's just that you refuse to take sound advice from experienced veterans.

I hope your Maxalts last for the rest of the year.

Title: Re: Still Averaging 2 Maxalts A Day
Post by Superirish2005 on Sep 6^th, 2006, 2:37pm

brewcrew I have 3 maxalts left bud and they will be gone by friday. I am not in the best of moods and driving myself crazy but I am outta here because I have been a major pest. I am sorry!

Title: Re: Still Averaging 2 Maxalts A Day
Post by brewcrew on Sep 6^th, 2006, 3:00pm

Here's what I don't get - you cling to this notion that rizatriptan (Maxalt) is the only thing that will combat the beast. Until you start listening to what everyone else is telling you (in case you forgot, it's OXYGEN and Verapamil), it's like talking to a brick wall for us.

Blow up all your previous notions about how to fight this war, then go back and reread the things people have told you. We don't think you're a pest - we think you're ignoring us, and there's no quicker way to turn your audience against you.

From the bottom of my heart, please believe me when I say we want to help you with your suffering. Every single one of us has been down the road you're on right now. Don't let your pride stand in the way of feeling better.

Title: Re: Still Averaging 2 Maxalts A Day
Post by Charlotte on Sep 6^th, 2006, 3:32pm

Is your cycle over & you no longer need this site?

Did you learn anything you can use for your next cycle?

Charlotte

Title: Re: Still Averaging 2 Maxalts A Day
Post by Cathi04 on Sep 6^th, 2006, 3:45pm

Irish,
Brewcrew is giving you great advice, but he is wearing down, Irish!
Sometimes, you need to clear your head of all that is "normal' to you........ie: the stuff you've BEEN doing, and listen to the ideas presented here.
Noone here is attacking you, but just like you might be a bit on edge, THEY could be too...after all, they are trying to help you .
Noone is a pest here. Noone posts too much or asks too many questions, or foolish questions. CH, in itself, is a trial and error sport
:-/.
Please don't leave, please open up to the suggestions here, and please find a way to be PF!
Charlotte's question...are you suddenly out of cycle.I doubt it, and I suspect you are exhausted, depressed, in dire need of sleep and quite frustrated....oh, and, not to forget, in pain! I dont want to see you that way.....I want you to find your magic amulet.something that TRULY helps you abort.
Please don't leave, and please let CH.com give you all the suggestions they have....till you find YOUR right one!

One of the most famous phrases around here,
"Take what you need, and leave the rest".very important right now that you understand, and you get the help you need!

BYW-Verap will take awhile to build up in your system, hence, the pred.....which will give you relief till the Verap kicks in.follow the directions, then let us all know how you're doing.
I hope you have far better days ahead, Irish!
Wishing you PF
Cathi

Title: Re: Still Averaging 2 Maxalts A Day
Post by marlinsfan on Sep 7^th, 2006, 1:39pm

on 09/06/06 at 15:00:41, brewcrew wrote:

Until you start listening to what everyone else is telling you (in case you forgot, it's OXYGEN and Verapamil), it's like talking to a brick wall for us.

Brew,

Just my 2cents here.

Just because O2, Verap & Pred work for you, stop shoving it down people's throats. What works for you may or may not work for someone else.

I for one believe Verap extends a cycle. Prednisone did squat for me. Oxygen, on the other hand, is a lifesaver.

Yes, Superirish asks a lot but doesn't do much. I remember my resistance to O2. I battled the beast with imitrex for many years and it worked great. Do you know how much courage it took that first time I decided NOT to take trex and instead suck on O2, hoping it would work? I had read about plenty of people for whom O2 did nothing. Irish is not there yet, but he may get there on his own time.

Don't feel compelled to respond to every thread. If you want to stop helping this dude, just ignore his posts.

And by the way, my Fish just did a double sweep of your Crew ;)

Title: Re: Still Averaging 2 Maxalts A Day
Post by seasonalboomer on Sep 7^th, 2006, 1:52pm

on 09/07/06 at 13:39:11, marlinsfan wrote:

I had read about plenty of people for whom O2 did nothing.

I've also read about people for whom O2 did not work, that when given the right equipment (non-rebreather, or even a clustermasx and 10-15 lpm reg) that they found "religion" too.
Yes, there are still those that O2 doesn't do anything.

scott

Title: Re: Still Averaging 2 Maxalts A Day
Post by BlueMeanie on Sep 7^th, 2006, 2:22pm

on 09/07/06 at 13:39:11, marlinsfan wrote:

Just because O2, Verap & Pred work for you, stop shoving it down people's throats.

Just because it doesn't work for you, you think people shouldn't suggest it as a possible way to deal. Oh... 02 works so it's o.k. to suggest that one. We all use different meds that work. Hell, there's even people drinking colon cleaner out there. [smiley=laugh.gif] (Not that I would suggest trying it.)

Trex rocks !!!

Title: Re: Still Averaging 2 Maxalts A Day
Post by Katherinecm on Sep 7^th, 2006, 11:49pm

I think verapamil made me chronic. O2 doesn't work for me either. Imitrex at a full dose makes me worse, at 2mg helps a little but the rebounds are worse than the first attack.

But that doesn't mean it's not what I'm going to encourage someone to try first- because even though they don't work for me (or for lots of us, for that matter), they are what seems to have the best chance of helping for everyone.