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Title: After Cluster Pain Post by rosiej on Sep 2nd, 2006, 10:49am Do any of you feel a residual pain after the CH is gone. For instance, when I've had a really bad CH, for the rest of the day I feel as is I've been kicked in the head. Anyone else? |
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Title: Re: After Cluster Pain Post by Charlotte on Sep 2nd, 2006, 11:29am Sort of like you've been beaten to a pulp, from the inside. yep. Not right now, though. |
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Title: Re: After Cluster Pain Post by SophiaK on Sep 2nd, 2006, 11:43am Yes, some days worse then others. The whole side of my head is so sore, don't like anything to touch it. |
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Title: Re: After Cluster Pain Post by georgej on Sep 2nd, 2006, 11:47am Oh yes. Particularly after a bad or extended one. big_guy compared to same sensation to a cheap wine hangover. I think that's pretty accurate. Best, George |
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Title: Re: After Cluster Pain Post by Bob_Johnson on Sep 2nd, 2006, 12:14pm Oh, yes! We have run this question around before and there was a broad reporting of residual pain/irritation. For a time, my pain was focused on my L-temple. After an attack, even a wisp of moving air on the hair over the area would trigger pain. Quite amazing! |
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Title: Re: After Cluster Pain Post by rosiej on Sep 2nd, 2006, 12:18pm Thanks everyone! I finally went to go see a neurologist for the first time in 15 years. I went to this Headache Treatment Center. The doctor was telling me that after a cluster headache I should be totally pain free until the next headache. As much as tried to explain, he just didn't agree. I started to doubt myselft. Also, Has anyone ever been prescribed anti-inflamatories? I'm really questioning whether this is the right doctor for me. |
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Title: Re: After Cluster Pain Post by Charlotte on Sep 2nd, 2006, 12:56pm If it was Indocin or Indomethamin, that is used as a test to confirm ha similar to chronic paroxysmal hemicrania or hemicrania continua. If it works, that indicates something ike this is involved and helps with a med plan. Did he give you good instructions? Is it 50 mg 3 times a day or 75 mg time release twice a day, or what? I don't know about other nsaids Indocin didn't help me in 2000. The neuro prescribed 25 mg & that dosage was too low. It is helping now, at 75 mg twice a day. Not pf, but much improved. Also, I don't think neuros know everything, but like Indocin, they can be helpful tools. You can discuss what they say with your regular doc, and make a more expanded plan. It was the doc that prescribed the indocin for me, not the neuro, but it was based on what I understood the neuro to be saying. |
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Title: Re: After Cluster Pain Post by starlight on Sep 2nd, 2006, 1:04pm I did not used to get lingering pain between HAs but last cycle that started to happen to me very dramatically--mostly it was what my doc calls a "hangover" from the headache--a sensation of pretty strong pain behind my left eye exacerbated by light. So I just worse sunglasses everywhere. This cycle was way better regarding lingering pain but after/during my night from hell there was both the pulling pain sensation behind my eye and a feeling like a balloon was painfully still pushing inside of my head on left side--this comes when there are extended attacks. Some this happens to. Some it doesn't. Docs can't generalize. Cause I think even though some docs have had cluster patients have they been able to track the patient's symptoms for many years or throughout a lifetime? No--most haven't had that opportunity. Take care, Star |
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Title: Re: After Cluster Pain Post by Chonas on Sep 2nd, 2006, 4:19pm Yes, specially after a very bad CH attack. |
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Title: Re: After Cluster Pain Post by BB on Sep 2nd, 2006, 5:02pm My DH always has some residual pain either in a form of pressure or burning sensation, occasionally with a sensation like something is still tickling behind his eye for a couple of hours, sometimes longer, after a bad attack. He has tried various NSAID, didnt do anything for him. Annette |
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Title: Re: After Cluster Pain Post by BigCoffinHunter on Sep 2nd, 2006, 7:07pm I always get "hangover' headaches after the cluster pain subisdes. I can usually deal with them with some ibuprofin or something. I consider them a minor annoyance, and almost refreshing after a cluster hit. The hangovers are painful, but I can actually function with them. |
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Title: Re: After Cluster Pain Post by Tattoo on Sep 4th, 2006, 6:30am I get the "hang over" feeling too and I have also had alot of pain in my neck . Im not sure if the neck pain isnt from the way I rock.twitch & bang around during a bad hit or if its just leftover from the HA . |
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Title: Re: After Cluster Pain Post by chopmyheadoff on Sep 4th, 2006, 9:18am i get the hangover and neck pain too - i think the neck pain is the way i "stretch my neck" when im being hit. it seems to distract from the pain a little. i sometimes think i may be damaging my neck stretching it so much !! for an hour or so after a hit i tend to mumble and feel really groggy too !! |
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Title: Re: After Cluster Pain Post by vig on Sep 4th, 2006, 7:28pm I've often felt 'bruised' in post-CH periods. |
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Title: Re: After Cluster Pain Post by frizzle on Sep 5th, 2006, 9:15pm Yup, bruised is the way I'd describe it too. Bruised and beat up. |
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Title: Re: After Cluster Pain Post by Jobette on Sep 5th, 2006, 10:13pm :o yes,yes,yes,pain in my right half of my head behind eye.. down into my neck, and even my hair and scalp. I am spent! :P |
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Title: Re: After Cluster Pain Post by jon019 on Sep 5th, 2006, 10:37pm Hi Rosie, Shadows, shadows, shadows. And my hair hurts! (even tho I don't have much more than DJ. ) Compared to the hit it is blessed relief and only cause for concern that another hit may be on the way. BTW, during cycles my appetite is nonexistant EXCEPT after a hit. Then insatiable. Reminds me of younger days after herbals. Regards Jon |
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