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        Cluster Headache Help and Support >> Cluster Headache Specific >> Shadows and Whistle in the Ear
        
(Message started by: Boris on Aug 26^th, 2006, 5:26pm)

Title: Shadows and Whistle in the Ear
Post by Boris on Aug 26^th, 2006, 5:26pm

Hello - I a an episodic cluster since the age of 19 (am 46 now). My eposides appear every 1-2 years and last between 2-4 months (have gotten longer since I found verapamil) , however these are trends and nothing that is consistant. I am really depressed currently since I am living far away (Fiji) and have long run out of Imitrex and have had a cluster episode lasting almost 5 moths, which is 2 months longer than any other one I have ever had in my life. I have in the past 4 days , after startign to reduce Verapamil to nil, gotten constant shadows with continuous pain (not the real pain, but continuouis as if a cluster will start) and continuous whistle inside my head. I don't know what to do and or if to start Verapamil again (have taken another pill of 120 mg since I am panicking). Anyone have had this before...? Is there anyone wuith advise or similar symptoms...?

Title: Re: Shadows and Whistle in the Ear
Post by BarbaraD on Aug 26^th, 2006, 6:10pm

Don't know about the whistling in the head, but have you got access to O2? That usually will help shadows. Coffee is also good to abort shadows.

check your e-mail...

Hugs BD

Title: Re: Shadows and Whistle in the Ear
Post by slhaas on Aug 28^th, 2006, 3:41pm

on 08/26/06 at 17:26:07, Boris wrote:

I had this too coming off of verapamil. It would acutally feel weird when I would walk, and it felt like I had a sinus infection. The hardest thing to do was avoid popping an imitrex because then that would cause a real rebound instead of the shadow. It eventually went away and I was CH free.... for a while. Good luck!

Title: Re: Shadows and Whistle in the Ear
Post by kevinpix on Aug 28^th, 2006, 5:56pm

Sorry to hear your pain. I'd try really strong coffee, that should help the shadows. Is there a doctor there that you can go to? Hope all goes well for ya! Oh, yea, I've heard the whistle too, kinda weird huh?

Title: Re: Shadows and Whistle in the Ear
Post by MJ on Aug 29^th, 2006, 2:00am

Hi Boris

Tinnitus!
Just a thought. I have heard of a relationship with CH before and dropping verapamil may be an instigator.

http://www.mayoclinic.com/health/tinnitus/DS00365/DSECTION=3

Title: Re: Shadows and Whistle in the Ear
Post by Barry_T_Coles on Aug 29^th, 2006, 2:58am

on 08/29/06 at 02:00:18, MJ wrote:

Hi Boris

Tinnitus!
Just a thought. I have heard of a relationship with CH before and dropping verapamil may be an instigator.

http://www.mayoclinic.com/health/tinnitus/DS00365/DSECTION=3

Could be that MJ is right on this.
I developed Tinnitus about four years ago and it could be as a result of the length of time I worked around compressed air driven machinery without ear protection.

I have noticed though that I can just about predict within a day or so that I will get hit as the ringing stops completely and returns when I get a PF period.
Coincidence maybe but with the logging of events no matter how trivial they seem usually gives some indicator if you are able to recognise them.

Tinnitus is annoying but I assure you that after a couple of years you become used to it.

Kind Regards
Barry