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        Cluster Headache Help and Support >> Cluster Headache Specific >> Question On Cluster Cycles
        
(Message started by: Superirish2005 on Aug 18^th, 2006, 1:58pm)

Title: Question On Cluster Cycles
Post by Superirish2005 on Aug 18^th, 2006, 1:58pm

I posted this elsewhere but I guess this is the place to post my question.

I get my cycles at various times during the year. I only get them once for 4-6 weeks but they come at different months of the year. I am in a cycle now but sometimes the cycle comes in June or July.

Is this normal?

Title: Re: Question On Cluster Cycles
Post by seasonalboomer on Aug 18^th, 2006, 2:02pm

on 08/18/06 at 13:58:13, Superirish2005 wrote:

Normal is as normal does... or something like that.... with regard to clusters.
Just when you think you've got them figured they sometimes change, either the timing of the cycle, the length of the cycle, whether you get in the morning and it changes to evenings, or when you wake up versus when you just get to sleep. 4-6 weeks is pretty typical. The timing of my cycles used to be like clockwork in Oct and March every year. Now, they've jumped around a little.

Scott

Title: Re: Question On Cluster Cycles
Post by Bob_Johnson on Aug 18^th, 2006, 2:08pm

Too many folks understand both the idea of cycles and the symptoms (of CH or any disorder) as rigid, universal, unchanging.

The problems docs have making a diagnosis often arise because the symptom picture we present does not fit into a neat picture in the diagnostic manual. Variation is the norm, in other words!

In the manual for psychiatric disorders, for example, you may find a list of 8 symptoms for a particular problem, along with a note that the diagnosis applies if 5 of 8 symtoms are present. Making an accurate Dx requires skillful judgment.

Title: Re: Question On Cluster Cycles
Post by Bond007 on Aug 18^th, 2006, 2:12pm

Yeah, just when I thought I had my HA's all figured out (the attacks were like clockwork every 2 hours on the even hour and lasted 1 hour) all of a sudden for no apparent reason, they just switched and had no real "schedule". They just became random. Oh well! I just learned to keep my meds with me wherever I go. It's all part of the "game" we play with the Beast. Ugh...

Title: Re: Question On Cluster Cycles
Post by Sandy_C on Aug 18^th, 2006, 3:12pm

I have started cycles in May, October, February, and September, each cycle lasting anywhere from 8 to 16 weeks. But it looks as though the beast is trying to knock at my door now, in August (so far, I haven't opened the door - it's locked with rc seeds).

So, in my case, starting a cycle at any month at any time, is normal - for me.

Sandy

Title: Re: Question On Cluster Cycles
Post by Bob P on Aug 18^th, 2006, 7:11pm

I think there is a whole lot more to the start of a cluster cycle than the time of year.

In my younger years I would get hit every 8-9 months. Now it's every 3 1/2 years.

Title: Re: Question On Cluster Cycles
Post by Tattoo on Aug 22^nd, 2006, 5:05am

This cycle started for me in late june and it was like clockwork for the first week or so , every 3 hours then I went one day without anything . Then it switched to noon ,2 pm midnight and 2-3 am for most of july .now it august and I have been getting 1 a night at 8 pm and thats fine because I dont go to bed till around 10 pm and by then my melatonin is helping me sleep all night .

My first cycle hit me in june too so I dont know if this is just the way mine works for now .

Title: Re: Question On Cluster Cycles
Post by BarbaraD on Aug 22^nd, 2006, 5:32am

Mine have never had a definite pattern. They just start when they start. Now that I'm chronic it's more up and down with high cycles and low cycles. I've quit trying to figure them out and just go with the flow....

Hugs BD