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        Cluster Headache Help and Support >> Cluster Headache Specific >> No CH's
        
(Message started by: Patrick_A on Aug 2^nd, 2006, 8:10am)

Title: No CH's
Post by Patrick_A on Aug 2^nd, 2006, 8:10am

Hey, My name is Patrick Alexander to those here who don't know me. I suffered with Episodic Ch's since the age of 16, I am now 47. The 1st 22 years of this dreadful disease, I suffered it in silence. Wasn't much I could do other than the home remedies. Then Imitrex came out. Originally I thought this was my saviour. It allowed me to function during my episodes, but, I soon realized that Imitrex causes "Rebounds", and Rebounds can cause headaches that can be worse than the CH's.
I am sorry, I regress.
This site probably saved my life. I was suicidal when I found it. I was in a cycle that was absolutely brutal. After it was over, I soon quit coming here. Then about 1 year later I started a new cycle, and made a quick move back here. I soon started reading of remedies that had worked for people here and then persuaded my Neurologist to put me on a verapamil and prednisone cocktail. It immediuately stopped my CH's and with my fingers crossed I am here to tell you.
I am painfree for 3 years

Thank you to everyone here. You know who you are. Without some of you, I would probably be taking a dirtnap now!
Good luck to all of you that are searching for the answer.

Patrick R. Alexander

Title: Re: No CH's
Post by sandie99 on Aug 2^nd, 2006, 8:28am

Patrick,

first of all: congratulations! :)
It's always exciting to hear that a fellow clusterhead is PF. And 3 years, wow! I do hope that you'll be PF for years to come. :)

I also do hope that we'll see you here, just hanging out... ;)

Best wishes & PFdays,
Sanna

Title: Re: No CH's
Post by chopmyheadoff on Aug 2^nd, 2006, 8:32am

CONGRATS !!

I have just been diagnosed after suffering chronic for 7 years >:(

My neuro has put me on verapamil and same as you i have now not had a CH for 4 weeks !!!

your post has given me the encouragement i needed coz i thought that this verapamil was too good to be true and it was gonna stop working :P

Title: Re: No CH's
Post by vig on Aug 2^nd, 2006, 9:09am

cooooooooool!

Title: Re: No CH's
Post by LeLimey on Aug 2^nd, 2006, 10:42am

Thats lovely news Patrick, thanks for sharing it. It always gives hope to others to hear of some of us getting good times
Helen

Title: Re: No CH's
Post by kevinpix on Aug 2^nd, 2006, 5:45pm

It's great to hear!! Hope it lasts forever!!!

Title: Re: No CH's
Post by Bond007 on Aug 2^nd, 2006, 5:50pm

Congrats man! Perhaps there's hope out there for the rest of us, too. Here's to hoping!!! ;;D

Title: Re: No CH's
Post by Ladybug314 on Aug 2^nd, 2006, 9:41pm

Way 2 go,

Hey Patrick what is the dose you are taking on Verapamil? I'm on 240mg a day. I'm not sure if that is enough because was getting them from 8 CH's a day down to about six since I started last Friday on Verap.
Thanks and again Congrats [smiley=sayyes.gif]

Title: Re: No CH's
Post by Patrick_A on Aug 2^nd, 2006, 11:26pm

I no longer take the Verapamil or the Prednisone. They tapered me up and then back down. I was originally taking 960mg's of Verapamil and 80mgs of Prednisone, and they tapered that down to none.

Patrick