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        Cluster Headache Help and Support >> Cluster Headache Specific >> Can I vent?
        
(Message started by: wildhaus on Jul 31^st, 2006, 2:25pm)

Title: Can I vent?
Post by wildhaus on Jul 31^st, 2006, 2:25pm

Can I vent………?
I hop you all excuse me, if it was NO…….. but I will…. I have to….
Its now for the longest time that I have a very hard time with this …. what ever you call it….
a very unorganized cycle….. at times it comes like a Swiss watch and at times it’s just
very sporadic….. or just very strong shadows…. in and out all day long….. sort of sporadic,
just to keep me on my toes….. in short I have had it for this round……. just need a brake
But I should not complain… after seeing some of you….. getting hit….. I have still a long way to go before I am allowed to even open my mouth….. so you know what: I will just stop! :-X

Michael

Title: Re: Can I vent?
Post by E-Double on Jul 31^st, 2006, 2:38pm

That's how mine was brother!
I only got under control when I went on Regular verapamil.
Then it became like clockwork.

It became even moreso when I detoxed.

Good luck

Title: Re: Can I vent?
Post by Jasmyn on Jul 31^st, 2006, 4:00pm

Hang in there Michael [smiley=hug.gif]

Title: Re: Can I vent?
Post by pattik on Jul 31^st, 2006, 4:49pm

Vent all you want... [smiley=hug.gif] Unorganized cycles aren't all that unusual and just as frustrating as the ones that are on the clock.

Title: Re: Can I vent?
Post by mr.c on Jul 31^st, 2006, 5:26pm

...sometime even more exasperating because you never know what will happen, how hard, or when things will knock you down...

uncertainty is scary... [smiley=huh.gif]

Hoping things get better.

Title: Re: Can I vent?
Post by Pinkfloyd on Jul 31^st, 2006, 5:41pm

If you fill out one of the headache charts, you may find your cycle is more organized than it appears.
As an example you may find that on every7th and 8th days, you have a regular day of three attacks, one morning, evening and late night. 3rd, 4th and 5th days may look more jumbled but EVERY 3rd, 4th and 5th day might be jumbled nearly the same way. etc.
if you are on something other than a 7 day schedule, its difficult to notice a cycle's pattern without things like...every monday I have an attack at 10 am.

Most of my cycles included a "weird" day of strong shadows and constant headpain all day from early morning until I'd fall sleep at night. This would happen every 3rd day. That night's REM sleep hit would start the 3 day pattern over again.

Bobw

Bobw

Title: Re: Can I vent?
Post by maffumatt on Jul 31^st, 2006, 5:52pm

You have earned the right to bitch Micheal...........I think its like that for most of us.
Matt

Title: Re: Can I vent?
Post by Richr8 on Jul 31^st, 2006, 6:29pm

on 07/31/06 at 14:25:39, wildhaus wrote:

Can I vent………? YEP!
just need a brake And you deserve one.

But I should not complain… after seeing some of you….. getting hit….. Still okay!

Hope you feel better soon Michael.

Title: Re: Can I vent?
Post by Sandy_C on Jul 31^st, 2006, 7:29pm

Michael, of course you can vent. I'm so sorry you are having a hard time right now. And, you do not have a long way to go before opening your mouth. You and I both saw our first Clusterhead hits at Milcon. Witnessing someone else getting hit was the most heartbreaking thing I've ever seen, because it made me feel so helpless to make their pain go away. I feel helpless right now, Michael, because I cannot make your pain go away. All any of us can do is allow each of us to "vent" when we need to, and be there for each other to offer support.

Vent away, my friend.

Wishing you PF forever.

Sandy

Title: Re: Can I vent?
Post by kevinpix on Jul 31^st, 2006, 10:03pm

Vent away! Eat junkfood, have a sit, and scream if it helps.

Title: Re: Can I vent?
Post by sandie99 on Aug 1^st, 2006, 10:15am

Venting is allowed in here!

The beast loves to torture; sometimes like clockwork, sometimes sporadic. I wish that you'll get a break very soon.

Best wishes & PF days,
Sanna

Title: Re: Can I vent?
Post by wildhaus on Aug 2^nd, 2006, 11:31am

Tks so much you all...........
can not get my self to "vent" on line.... again my wife told me to try and vent on line.....

TKS SO MUCH FOR YOU'R UNDERSTANDING..... :-[

Michael