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        Cluster Headache Help and Support >> Cluster Headache Specific >> WHERE'S THE LOVE?
        
(Message started by: kevinpix on Jul 27^th, 2006, 9:41am)

Title: WHERE'S THE LOVE?
Post by kevinpix on Jul 27^th, 2006, 9:41am

we are here for support. We need to come together and stand as one to rid ourselves of this aweful pain. I came here to make friends, to share treatments, and to learn all I can. I wish all of the nay-sayers would turn over a new leaf. We all have stress. Why contribute more here? I'm a lover, not a fighter! blessings to all to be painfree today!!!

Title: Re: WHERE'S THE LOVE?
Post by CHTom on Jul 27^th, 2006, 9:51am

I don't think that anyone on the site really hates anyone else-at least I don't. Sometimes we have disagreements that get a bit strong, but it all evens out in the (peppermint scented) end. Hate is a very strong emotion and biologically is only structured to last a short time (in most cases) as a defense to a particular threatening (used to be life threatening) situation. Hang around and you'll find that the overwhelming majority of the postings are positive and encouraging and supportive. Thanks for your message.

Title: Re: WHERE'S THE LOVE?
Post by seasonalboomer on Jul 27^th, 2006, 9:55am

Kevin,

I would like to just be someone who "comes together" and be "about the love" here but there are times when folks come here and upon arrival throw a treatment using their single anectdotal experience and use words like "i found a cure". And, whether it was snorting Jabanero's, wearing a magical magnetic headband, or chanting to the full moon at exactly midnight, I find that to be offensive to the members of this community. For those who put extensive time in trying to understand the medical nature, and finding productive means of fighting, this affliction, and offering CONSISTENT support to those seeking to understand and better manage their CH problem it is plain offensive.

This is an open minded forum inspite of your feeling that the naysayers need to turn over a new leaf. Some folks who will respond to a post about a treatment that has been either previously determined to be of no relevance to CH have actually spent the time here to learn why and how many have tried it. Have you seen Clusterbusters? Kudzu? Dr. Wrights Circulatory Technique? TENS? These are all treatements with their supporters and protractors. And each has a reason for their feeling -- mostly well thought out.

If you think its all about the love go to Matchmaker.com, but here we're fighting a battle over CH.

Scott

Title: Re: WHERE'S THE LOVE?
Post by Mattrf on Jul 27^th, 2006, 11:31am

I have seen a few posters that seem to cyberslap people more then others but these may also be people that are deep in a cycle and as a lot of do at times have a difficult time controlling the anger that comes with the pain. I don’t think any of us can say we have never snapped at some one when they really didn’t deserve it. All I can say is try not to take it personal when someone cyberslaps you, hard to do sometimes I know but we all are here to support each other and the person that ticked you off may be the first one to post support for you when you need it most.
[smiley=twocents.gif]
Matt

Title: Re: WHERE'S THE LOVE?
Post by TxBasslady on Jul 27^th, 2006, 12:01pm

Always feel free to pass over a thread or subject.

We are of many personalities...no way this many can come together and agree all the time.

Jean

Title: Re: WHERE'S THE LOVE?
Post by Charlotte on Jul 27^th, 2006, 1:38pm

We are a passionate bunch. We are all different kinds of personalities. The one thing we have in common is ch - our or our loved one's.

It's best to read the info before trying something, and what works once may not work the next time, and what works for one may not work for another.

Mostly, I come here for the moral support. Thank you, everyone.

Charlotte

Title: Re: WHERE'S THE LOVE?
Post by Tom K on Jul 27^th, 2006, 1:58pm

Seems like mostly CH hits people who are Type A personalities. Therefor you have a lot of people with very set opinions. Not an excuse but a reason. Many of the people who have the strongest opinions are the most well versed on CH. YMMV

Title: Re: WHERE'S THE LOVE?
Post by Kevin_M on Jul 27^th, 2006, 2:03pm

Thank you for the chunk of realistic drift in your post, Scott. :)

Title: Re: WHERE'S THE LOVE?
Post by sandie99 on Jul 27^th, 2006, 3:01pm

I just love the diversity we have in here.... ;;D like a real family should. :)

PF days & nights to all!

Sanna

Title: Re: WHERE'S THE LOVE?
Post by BarbaraD on Jul 27^th, 2006, 6:52pm

Since the beginning, we've always had "spats".

But we tend to forget that what is one's "miracle" tonic - may not work for the next guy. (And trust me - I've tried about everything from magnets, to sinus spray, to Paco's tobasco under the tongue to banana peels worn around the head).

Some of us have been here so long we tend to forget that others haven't and say things (in a joking way) from experience that comes out wrong in the eyes of a lot of people.

I grab a headband at the first sign of a hit and I think most would agree that this does nothing for the headache, but it gives me something to do, so I would get my nose out of joint if someone told me I was an idiot for doing it.

I'm for giving everyone the benefit of the doubt and if they've found something that works for them - let everyone know about it - who knows - it might just work for someone else. (Years ago Drummer had a little problem with the capisasan cream, but the guys learned to wear "underware" when applying it ;) ).

I'd suggest everyone check out the archives and see some of the things that have been posted on here. Go back to the "early days". We were all desperate and willing to try about anything to get out of pain.

And I'm with Kevin -- I'm a lover, but get into politics and we can have a good "discussion".

Hugs BD

Title: Re: WHERE'S THE LOVE?
Post by maffumatt on Jul 27^th, 2006, 8:29pm

on 07/27/06 at 09:55:02, seasonalboomer wrote:

Well said Scott.
CH transends all political, religous, racial, and economic boundries. We are who we are, family. I have the pictures to prove it.
Matt

Title: Re: WHERE'S THE LOVE?
Post by georgej on Jul 27^th, 2006, 8:45pm

I'm with Sanna on this one. I like the diversity of the people on this list--it's filled with actual human beings, who do not normally flutter about on feathered wings.

I like the interplay of ideas and personalities.

That's what I think of as supportive--people you may not always agree with who will help you out when your back's to the wall. Strong people with strong ideas--remarkably strong, I think, since they have been tempered by fire.

'Course we're all different types--we have nothing in common, really, but a strange kind of head.

I like that. I don't think I'd stick around if everyone just played happy-happy nice-nice all the time.

If it helps, think of the little squabbles (and they are pretty wee, really, since you can't b*&tchslap someone through a computer) as being like dogfights.

You know--if you wait it out instead of wading in, most dogfights are over pretty quickly and don't mean much. If you interfere, you might get bitten.

That's why we have DJ--if a dogfight ever gets too bad, he can turn the hose on them.

Regards,

George

Title: Re: WHERE'S THE LOVE?
Post by mr.c on Jul 29^th, 2006, 10:32pm

Yes, some of the spats can be a little unsettling to us newcomers.

However, if you purposely read (and re-read) with a bit of comedic timing the posting are rather humorous.

When you read aloud, use accents from the country or region. That helps too.

The drama/theatre teacher in me is coming out. [smiley=JAW_DROP.gif]

Michael
aka mr.c

Title: Re: WHERE'S THE LOVE?
Post by kevinpix on Jul 30^th, 2006, 8:17am

Hey Michael, Good to see someone with a low posts number like myself. I can't imagine having two thousand posts like the others. I came to this site, told my story about surgery, and got my head bit off, so to say. I know we are all different, but we all have the same "disease". That alone should bring "the love" to ones eyes. I hope you have a pain free day,!!!

Title: Re: WHERE'S THE LOVE?
Post by Linda_Howell on Jul 30^th, 2006, 12:12pm

Quote:

I can't imagine having two thousand posts like the others.

That's because those with 2000-plus posts have been here a very long time,

done their homework,

seen the spammers come and go,

tried this or that with some results or no results,

done the research that most Dr.s won't do,

and started alternative option treatment information,

done everything in their power to help others

AND....put in a lot of hard work.

In my opinion "the Love" is right there.

Title: Re: WHERE'S THE LOVE?
Post by kcopelin on Jul 31^st, 2006, 11:21am

Kevin,
Love comes in many forms-the fact that there are people who care enough to continue posting and supporting others even after their cycle ends, that's love. It also drives up those post numbers. This isn't some friggin contest to see how many posts we can get, it is a very supportive community of CH survivors. We just happen to put the "fun" back in dysfunctional ;;D.
I am very glad that your treatment worked, and pray that it continues to work for you. If you want to know where the love is...go to the supporters corner, or read through the archieves, or consider that one man, joined now by his lovely wife, put together this website-paid for out of his own pocket mind you, just so that we clusterheads would have a place to find hope, sanity, community, support, jokes and yes Kevin, love.
PFDAN y'all,
kathy