Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Cluster Headache Specific >> Are you in cycle right now?
        
(Message started by: sandie99 on Jul 15^th, 2006, 2:38am)

Title: Are you in cycle right now?
Post by sandie99 on Jul 15^th, 2006, 2:38am

I was just wondering that who is in cycle now? Who is in remission? How are our chronics taking take summertime?

I'll start. I'm back being episodic (yahoo!) and I consider myself to be PF. The heat did bring little shadows with it, but it's okay. I did get hit two weeks ago, but luckily for me, it didn't last long (I'm grateful about that because I was in a car during the hit and no Red Bull/any other ch meds around). I keep caffeine tablets with me now and a can of energy drink in my fridge, just in case.

Wishing PF summerdays to all,
Sanna

Title: Re: Are you in cycle right now?
Post by georgej on Jul 15^th, 2006, 3:02am

Very glad you're doing well now, Sanna.

I'm episodic, recently finished a cycle, and am in full remission right now.

Best,

George

Title: Re: Are you in cycle right now?
Post by unsolved1 on Jul 15^th, 2006, 3:30am

I'm chronic :-/ October will make it 6 years straight >:(

Enjoy your pain free times.

UNsolved

Title: Re: Are you in cycle right now?
Post by frizzle on Jul 15^th, 2006, 6:35am

6 weeks into a cycle I'm trying to be as med free as possible.

I'm at the just-shoot-me-in-the-face stage.

Title: Re: Are you in cycle right now?
Post by alchemy on Jul 15^th, 2006, 7:15am

I'm chronic. The last few days have been 115-116 definate head banging weather

Title: Re: Are you in cycle right now?
Post by jenrob2006 on Jul 15^th, 2006, 8:50am

I am in a cycle that according to previos ones, should be ending in two to three weeks. No telling. We just moved from FLorida to SC and it started. I would not think there would be too much difference in the summer weather between the two states.
My heart breaks for the chronics. :'( Much love you guys! [smiley=hug.gif]

Title: Re: Are you in cycle right now?
Post by E-Double on Jul 15^th, 2006, 9:08am

Since March 2004.
I have high and low cycles within that are even more defined since off meds.
I feel better about it that I atleast get a clear cut few days off here

Life's good

Title: Re: Are you in cycle right now?
Post by Guiseppi on Jul 15^th, 2006, 11:37am

I THINK I'm still episodic since by definition I have to go 4 more months without a break before I am officially chronic. My cycles usually go for two to three months, this one should have left me by January. Every time I go pain free for 4 weeks I am supposed to go off my lithium. Everytime I've gone off my lithium I get SLAMMED! I don't know if it's the weird weather this year, me getting older, or the Chinese sending radio waves into my brain. But for now I am the comfortable resting place for his royal pain in the ass, the beast!

Guiseppi

Title: Re: Are you in cycle right now?
Post by walkertexasranger on Jul 15^th, 2006, 12:31pm

Episodic, cycle began 8 days ago. :(

Title: Re: Are you in cycle right now?
Post by ShaneM on Jul 15^th, 2006, 3:03pm

Episodic. Following Drs orders to the letter for the first time ever (Meds that is) and starting to think that it is just dragging the cycle out. I am in the duration of year for the cycle but it usually only last 6 wks. I am on my 10th wk. The only reason I am PF at the moment is because of a high taper of prednisone. I should be off of that next wk and we will know for sure. Still shadowy though, not really pain, but there is a pressure of sorts in the HA temporal area. Any thoughts?

Shane

Title: Re: Are you in cycle right now?
Post by kcopelin on Jul 15^th, 2006, 3:09pm

Episodic from 1981 until March 2005-chronic daily since March. On the positive side, I don't have to be anxious about the next cycle or hit-they come every day. Fortunately, melatonin and benadryl have knocked off the night time hits-otherwise I would not be posting.
Hope everyone get a break, for goodness sake!
PFDAN,
Kathy

Title: Re: Are you in cycle right now?
Post by kcopelin on Jul 15^th, 2006, 3:13pm

Guiseppi,
thought you were out of cycle-did the beast return? I'm so sorry to hear that my friend. PF wishes for you, bro.
Kathy

Title: Re: Are you in cycle right now?
Post by Guiseppi on Jul 15^th, 2006, 5:56pm

Went 8 days pain free and started doing my end zone, life is good, happy dance!^%$^$&%$&$##^% Apparently I was only on the 5 yard line. On the plus side, the lithium is still mostly holding it at bay so relative to many on this board I can't bitch. But it is starting to look like I may be turning the chronic corner.

Guiseppi

Title: Re: Are you in cycle right now?
Post by Thomas_Martin on Jul 15^th, 2006, 6:12pm

Chronic and been hit hard these last few days.

Had 3 kip 8's within a space of 4 hours in the night. I blame it one the weather and my allergies.For some reason I usually get hit harder while my hayfever rages.

That was one of does days where you actually feel more tired when you wake up then when you went to bed.

Title: Re: Are you in cycle right now?
Post by rhino on Jul 15^th, 2006, 11:05pm

Episodic for thirty years, now I am four months into a cycle and no end in site.
My Neurologist put me in the hospital for three days saying that would knock it out, No luck with that.
I have taken about every med I have read about on this site, no luck.
The thought of being chronic makes me sick to my stomach,, how do you deal with this shit on a full time basis.
Randy [smiley=huh.gif]

Title: Re: Are you in cycle right now?
Post by FRANKYT1963 on Jul 15^th, 2006, 11:45pm

[smiley=hammer.gif] [smiley=hammer.gif] [smiley=hammer.gif] ABOUT 2 WEEKS INTO CYCLE. I GET 1 CH IN AM, 1 IN AFTERNOON, AND USUALLY 1 OR 2 AT NIGTH, :-[ :-[ :-[. I' VE BANGED MY HEAD AGAINST THE WALLS SO MANY TIMES, I RAN OUT OF SPACKLE [smiley=mad.gif]. DAMN HEAT SEEMS TO BRING ON MORE CH'S, AND IT SEEMS LIKE IT'S ONLY GOIN TO GET WORST :( :(.

Title: Re: Are you in cycle right now?
Post by TimJohnson on Jul 17^th, 2006, 12:02am

Randy, where are you located?

Title: Re: Are you in cycle right now?
Post by TxBasslady on Jul 17^th, 2006, 1:13am

Episodic

No definite cycle. My hits are random....can come anytime...but most always at night. I use Excedrin Migraine for shadows....that has worked very well for me. Also a cup of hot tea will kick a shadow for me.

Always happy to hear that one is pf, Sanna. :-*

Jean

Title: Re: Are you in cycle right now?
Post by Melissa on Jul 17^th, 2006, 9:04am

Episodic. Unexpected cycle was Dec.05'-Jan06'. Used to get my cycle every 18 months or so, now I'm worried it'll be every year or completely sporadic.

Guess I'll just have to wait and see! :-/

Title: Re: Are you in cycle right now?
Post by BobG on Jul 17^th, 2006, 11:53am

No.

Title: Re: Are you in cycle right now?
Post by Dissident on Jul 18^th, 2006, 1:02am

Episodic for bout 13 years (since age 16). Use to come every year for 8 to 10 weeks until a 4th of July celebration where I ate some shrooms to brighten the fireworks show. Ever since my cycles have been every 2 years.

unsolved1, alchemy, E-Double, kcopelin, Thomas_Martin, rhino and all you other chronics out there...I don't know how you do it. You guys and gals are some really strong people...much stronger than me!

BJ

Title: Re: Are you in cycle right now?
Post by toonzboss on Jul 18^th, 2006, 1:11am

Definitely Sanna, I had been PF from 02 to about 10 weeks ago and I think I am coming out of a cycle simply because they are coming at noon, late afternoon and into the late nights, at least I'm hoping that is indicating the END of the cycle.

I didn't keep any journal on ch when they started in 86/87 and went for a long time between 2002 and this year so I really don't have a written history to establish frequency and time of day/night etc.....

Title: Re: Are you in cycle right now?
Post by pattik on Jul 18^th, 2006, 9:48am

Sanna, I'm episodic, and finished up a cycle in May. Hope that's it for a while. :-/

Title: Re: Are you in cycle right now?
Post by danm on Jul 18^th, 2006, 10:36am

Episodic.....had my worst cycle ever earlier this year. It lasted about 4 months, ended in May. PF since then, thank god. PF wishes to all.

Dan

Title: Re: Are you in cycle right now?
Post by Charlotte on Jul 18^th, 2006, 8:23pm

chronic. I'm doing very well on kudzu & a red bull or 2 a day and an occasional 1/4 tab of maxalt mlt. I would so like not to be chronic. What is the criteria. I'm all the way down to shadows. If I keep this up for a month, do I graduate out of chronic?

Charlotte

Title: Re: Are you in cycle right now?
Post by Summerbabe on Jul 18^th, 2006, 10:31pm

:D Hey there, just like frizzle , 6th week for me as well. I am episodic, had remission period for a year and a hlf then BAM!!! :o :'(. Heavy heat seems to bring on the shadows, I do my best to stay cool. I am still getting hit 2 times a night but better than what it was 3-4 a night :'(. I have ice packs handy , a/c blasting..red bull handy with the o2 of course,.so I am trying here, at witts end to be honest, but grateful hits are somewhat tapering. Thanks for the concern and glad you are doing ok, All my best, Summer 8)

Title: Re: Are you in cycle right now?
Post by StressFree on Jul 21^st, 2006, 4:23pm

Out of cycle, thank God. Praying for all of you who are still suffering, Rich

Title: Re: Are you in cycle right now?
Post by FRANKYT1963 on Jul 21^st, 2006, 5:58pm

:-[ :-[ HI! IN CYCLE RIGHT NOW, 2-3 PER DAY, DRINKIN RED BULL ;;D ;;D, SEEMS TO HOLD THEM OFF ;;D ;;D.

Title: Re: Are you in cycle right now?
Post by NONI on Jul 22^nd, 2006, 12:20pm

Hi Guys and Gals

Started cycle in mid June now at 4 wks it started as i was healing from headcold ,peaked within a week or so
I went with reg meds like extra strength tylenol mixed with advil ,sometimes 4 of each at a time,,took a bottle of each within a day and a half,,that seemed to bring them on more ,also as I noticed cause I had not been diagnosed yet alcohol also brought them on almost immediately ,,Terrible ,,,now have jabs througout the day and almost an all day headache,but night hits have been gone for 2 days except small ones before bed

Wishes also of pf days for everyone .Does anyone get winter hits?

Noni xoxox