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Title: New guy with question.... Post by Fredmyyster on Jul 14th, 2006, 11:33pm [b][/b]I have been getting what i found out yesterday at the Dr's office as Clusters and all along i thought was sinus probs since i was 20 and i am now 46 but they only occur every 3 to 4 years and in between i get nothing at all. Is this what happens to ya'll ? When they do happen i get 3 to 4 a day and can occur in my sleep as well. The doc gave me Fioricet and it helps a great deal so far today and gave me Replax if needed. I feel as though someone is yanking the veins behind my eyeball out when it is at its worst...Thanx for having me on your site. Fredrixburg |
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Title: Re: New guy with question.... Post by E-Double on Jul 14th, 2006, 11:56pm u betcha fioricet will be like eating candy and relpax will take too long This is a great resource to know like the back of your hand...print it out and give it to the doc http://www.brightok.net/~mnjday/chtherapy.pdf It will present the appropriate treatments that you should seek and your doctor should know!!! If you want an abortive with the least amount of side-effects O2 should not only be requested but demanded from your doctor!!! http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm I have used Zyprexa as an abortive and have found it to work (for me) as fast as Imitrex and without the "hangover" http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=medsarchive2005;action=display;num=1120904753 If you do have the "typical" wake you up in the middle of the night horrors then.... Melatonin might be very helpful Many of us (myself included) have found that taking 6-9mg (some take more) about a 1/2 hour to 45minutes prior to bed have Knocked out the night visits and can finally get sleep. With the exception of 10-12 times.....I have slept through the night since August '04 (went chronic in March 05).....Still get hit during the day but my overall quality of life is better because I am not as exhausted all the time. Some people report that it seems to make them worse....The fact is that we are all different and respond differently to everything therefore it may or may not... The one thing I will tell you as far as my experience was that I had to stick with it...The first night I took melatonin, I was awoken with a doozy only I was too groggy to find my O2 .....It got a lot better for me....I then slept through the night but would get slammed about 1/2 hour after waking up....kinda like knocking the beast off schedule.....then again I was peaking and this cycle has been all over the place with no real pattern. I stayed with melatonin and have had decent sleep overall. (Maybe I should start folowing my own advice again hahahaha!) It may help and it is natural with not too many sideeffects....also ask your doctor b/c if there are any side effects or contraindications...I think they have to do with mild depression..... Like I said we are all different. Best wishes, good luck & stay as positive as you can!!!! Eric |
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Title: Re: New guy with question.... Post by Fredmyyster on Jul 15th, 2006, 12:15am [b][/b]Thanx for the words Eric and i will follow up ! I thought i was the only one who banged his fists into his head. The pain is horrible. Dont get alot of night pain only occaisionally. Usually right wround 2:24 pm...like clock work. Ok bro thanx again and get this. Every 1nce in a while i skate with a guy named E Double out of Houston, the guy shreds!..inground concrete pools mostly..ok, im out as i have a work related class at 6 am.... latuh ^ 5 |
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Title: Re: New guy with question.... Post by kevinpix on Aug 1st, 2006, 12:01pm Ever skate in the Woodlands? That's where me and my brother jon go. I'm the OLD dude in the blue gym shorts, ride a old school wide board. Like the half pipe, fewer people can see me when I wipe out! Lots of fun though! |
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Title: Re: New guy with question.... Post by sandie99 on Aug 2nd, 2006, 5:38am Welcome to the family! :) Best wishes & PFdays, Sanna |
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Title: Re: New guy with question.... Post by chopmyheadoff on Aug 2nd, 2006, 6:02am welcome aboard mate, good to have u here (even if it is in bad circumstances). your story is so famailiar to me after having read through loads of the posts on here !! I was not diagnosed for 7 years so had to put up with this agony for all that time as you did. they key is that youve been diagnosed now , so now your doc can start to do things to helop you. im sure you will find the right combination of drugs to help you get pain free and we are all here for the moral support ;;D |
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Title: Re: New guy with question.... Post by Fredmyyster on Aug 6th, 2006, 7:16pm [b][/b]No Kevin, never skated at the Woodlands however, i did attend a killer Blues Festival there back in the early 90's. I am building an Egg in my backyard as we type. Gonna be wicked as it will be 5 in the shallow and 8 in the deep. http://groups.msn.com/SkateSouthTexas/Homepage is my site if any of you ever get bored ( or between head slams ) Hope your all pain free today and thanx again for the welcome. ^ 5 |
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Title: Re: New guy with question.... Post by chewy on Aug 7th, 2006, 7:14am Quote:
In the early days I was RXed Fioricet. Didn't touch the CH and developed an addiction. Careful. Quote:
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