Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Cluster Headache Specific >> worst pain ???
        
(Message started by: chopmyheadoff on Jul 14^th, 2006, 5:40am)

Title: worst pain ???
Post by chopmyheadoff on Jul 14^th, 2006, 5:40am

Hi, just wondering if anyone had ever experienced pain WORSE than a kip 10 ?
Does it exist ?

this time last year i caught my thumb in my motorbike chain and chopped it completely off right at the base.

needless to say this stung a bit but it was NO WHERE NEAR the pain i get off these headaches

Title: Re: worst pain ???
Post by frizzle on Jul 14^th, 2006, 6:24am

Ummm let's see....

12 hours of unmedicated labor and delivery? Nope
Stitched to repair said delivery "issues"? Nope

At this point in my life I think the only thing I'd find more painful than these headaches are the thoughts that I'd pass them on to my 2 sons.

Title: Re: worst pain ???
Post by E-Double on Jul 14^th, 2006, 6:25am

broken bones......
dislocated joints......
human bites........
burns.......
gashes..........
rips........
tears........

Piece of cake

Title: Re: worst pain ???
Post by unsolved1 on Jul 14^th, 2006, 7:50am

Broken bones & kidney stones were a 'walk in the park' compared to a CH attack for me

UNsolved

I'd rather break my leg everyday !

Title: Re: worst pain ???
Post by sandie99 on Jul 14^th, 2006, 8:39am

It's the worst pain I've ever felt. No question about it. And I can tolerate a lot.

PF days to all,
Sanna

Title: Re: worst pain ???
Post by georgej on Jul 14^th, 2006, 10:37am

Hmm.

Physical pain, mind you....

Dislocated shoulder? Nope.
Full facial hit of pepper spray? Nope.
Compound fracture of arm? Nope.

Not even close.

If there's anything over a 10 during a CH, I don't think anyone who's ever gotten one could tell us about it. They're dead.

Regards,

George

Title: Re: worst pain ???
Post by Weatherman on Jul 14^th, 2006, 12:11pm

Well I have to disagree with unsolved. I have suffered from CH for 15 years and have had several kip 10's. I've also had bouts with kidney stones.

Most of the kidney stone attacks have been quick and relatively easy. But once, the stone became lodged in the "tube" between the kidney and the bladder. I've got to tell you, that pain made a CH seem like a walk in the park. I never screamed so loud in my life! I collapsed from the pain. They had to come take me away in an ambulance. They had to hold me down the whole way to the hospital as I thrashed about screaming!

I spent the next 3 days in the hospital on some of the best drugs ever ;;D When the stone move into the bladder the pain was instantly gone. That's the only time I ever got hit like that from a stone but it was by far the worst pain I have ever felt in my life!

The bad thing about CH is the pain is almost as bad and it comes a whole lot more often. I havn't had a stone in 3 years and the real bad stone was 6 years ago.

Doug

Title: Re: worst pain ???
Post by georgej on Jul 14^th, 2006, 12:36pm

on 07/14/06 at 12:11:08, Weatherman wrote:

But once, the stone became lodged in the "tube" between the kidney and the bladder. I've got to tell you, that pain made a CH seem like a walk in the park. I never screamed so loud in my life!

I've always lacked an analogy when I've tried to explain what it feels like to have a CH to people who don't have them. I think I'll use this one now.

"Imagine you're trying to pass a great big kidney stone through your head....."

Best,

George

Title: Re: worst pain ???
Post by JeffB on Jul 14^th, 2006, 2:00pm

I've done so many stupid things and was even mauled by a German Shepard that almost ripped my left arm off but I have to say the pain in the brain was/is the worst so far.

Title: Re: worst pain ???
Post by walkertexasranger on Jul 14^th, 2006, 4:32pm

Nope, nothing worse.

I must have had 100 stitches in my life, broken arm, lit cigarette shoved into the back of my hand, cut the tip of my finger off in a running lawnmower (dont ask), and CH pain is by far the worst.

People who have never had one simply do not understand.

Mark

Title: Re: worst pain ???
Post by brady713 on Jul 14^th, 2006, 7:42pm

I agree that anyone who hasn't had a CH cannot relate to the level of pain. I had a 10 a couple of weeks ago. The pain was so intense it blacked out memories of being taken to the hospital. No wait in the ER after ramming my head into the concrete wall a couple of times. I was given oxygen which was a joke. Then 5mg IV morphine on the 5th morphine shot several ER docs had to see for themselves that I was still completely sober and hurting. Then came the Dilaudid 3mg IV/hr. Stayed in the hospital 2 days on a Dilaudid PCA pump.

Title: Re: worst pain ???
Post by Charlotte on Jul 14^th, 2006, 8:30pm

As a young adult, I disolved the lining of my intestines by taking aspirin with orange juice. It was bad, but it only happened once. When I healed, it was over. Any other pain may have hurt but was a one time deal. These are the worst for me because they keep coming back.

Title: Re: worst pain ???
Post by unsolved1 on Jul 15^th, 2006, 12:05am

on 07/14/06 at 12:11:08, Weatherman wrote:

Well I have to disagree with unsolved. I have suffered from CH for 15 years and have had several kip 10's. I've also had bouts with kidney stones.

I had stones twice while taking Topomax. The first time I required an immediate Lithotripsy surgery with a stent left in for over for a week. The second time I passed them. It was a painful experience ... but clusters go on and on and on. That's where the torture is.

UNsolved

Title: Re: worst pain ???
Post by MJ on Jul 15^th, 2006, 1:26am

Pain is relative to the moment but I have yet to find another pain relative to CH.

Title: Re: worst pain ???
Post by Thomas_Martin on Jul 15^th, 2006, 5:01pm

hmmm.. I have had one that was close.

Around ten years ago, I broke my nose by accident. The accident being having one of my friends saying "hi" to a complete stranger who was kicking a lamp post. That greating and me having no chance in hell passing a sobriety test earned me a new nose.
Anyways, that didn't hurt that much as I was drunk as hell. What hurt was getting it rebroken a week later using local anaesthetic, as the good doctor didn't use enough of it. around a kip 7-8. The kip 9-10 happened when I got home from the hospital and the anaesthetic stopped working. I remember walking around our living room crying while saying "someone kill me... please" for about 2 hours .

Title: Re: worst pain ???
Post by paul2006 on Jul 15^th, 2006, 11:07pm

I fell over and landed on my elbow and head on concrete about 4 feet lower down the driveway. When I woke up a few minutes later after knocking myself out, I got up and walked into the house.

I obviously looked a bit of a mess and my girlfriend's son asked me was I OK?

Telling him I was, I went to bed, with what I described as 'a bit of a sore elbow'.

The next morning I woke and after a few coffees, went outside and drilled about 30 holes in 1/4 inch cast iron pillars to attach a fence in the barn.

I complained about a 'sore elbow' again that afternoon. My good lady looked at it and said that my elbow had a cricket ball attched to it!!! She insisted I went to the ER. After X-rays, they found I had fractured my elbow and knocked a chip right off a bone.

Did it compare to a CH?

Not at all.

Nothing compares to a full blown K10... absolutely NOTHING!!! And I'm no 'hero'!!!

Title: Re: worst pain ???
Post by JeffB on Jul 17^th, 2006, 3:32pm

Damn,
we do some stupid stuff to ourselves don't we?
Sorry for everyones pain but I had to smile at some of these!

P.S.
Brick walls do not help HA's, nor do dashboards,trees,counter tops,doors.......... :-/

Title: Re: worst pain ???
Post by thomas on Jul 17^th, 2006, 5:15pm

I've never had anything even compare to an 8 much less the few 10's I've had.

Title: Re: worst pain ???
Post by BobG on Jul 17^th, 2006, 6:19pm

The pain examples mentioned above are all physical.

Cluster pain is unique to itself. There is no other pain like it. Excruciating. Exquisite and pure.

But, there are also mental and/or psychological pain that can be absolutely devastating. The pain of losing a spouse of 50, 60 or 70 years. Or, the pain of having your 11 year old child suffering through chemo-therapy only to die from cancer.

No, I have not personally experienced those loses but do know of those that have. It can be a horrible, nasty, long term pain deep in the heart and soul.

There is no scale to measure that type of pain.

Title: Re: worst pain ???
Post by Mattrf on Jul 18^th, 2006, 4:01pm

Only one thing that has ever happened to me can compare and that was having my neck fused. They say about 50% have a rough time and just my luck that was me. I can only really go by what my family told me since I have no recollection of the first five hours after the surgery except severe pain and wanting to die. I had no idea of my surroundings or the fact that my wife and father-in-law where trying to pin me to the bed, it seems I was trying to lift my entire body with my neck and trying to rip the collar off my neck as well. I had no idea how much time had passed when I was finally able to notice my surroundings and that there where people standing around me but it was 5:00 in the evening and the surgery was at 9:00 AM.
So for that five hour period I would have to say it was worse, but, that pain went away. :(

Matt

Title: Re: worst pain ???
Post by Jonny on Jul 18^th, 2006, 4:07pm

Nope!

Imagine having a Kip 10 with every CH that you could not put down.

Title: Re: worst pain ???
Post by thomas on Jul 18^th, 2006, 4:40pm

on 07/18/06 at 16:07:42, Jonny wrote:

Imagine having a Kip 10 with every CH that you could not put down.

That's not a pretty picture. :(

Title: Re: worst pain ???
Post by mr.c on Jul 19^th, 2006, 2:08am

Okay...

Um... Let's see, two herniated discs in the neck.
Nope.

As far as emotional pain that compares to a Kip 10... I lost my sister to suicide a few years back... They say "Time heals all wounds..." Well, for the most part that is true.

Yet, CHs don't let you forget for too long...

But, would I want to go through chronic Kip 10s to have my sister back...? No. I believe in a life after death; I'll see her again. AND she would not want me to be in the kind of pain that would make me choose to commit (or contemplate) suicide.

Title: Re: worst pain ???
Post by Derrick on Jul 21^st, 2006, 11:17pm

back in 1996 we flipped 3 times in my buddies jeep and I was left a SHATTERED left shoulder. It was was a humeral head break w/ multiple fractures. the ER doctor mis-diagnosed it and I was stuck w/ no real pain medicine for 3 days after until I saw the orthopeidic surgeons my mother works for. I was finally given morphine, tylenol 3 and vicoden and scheduled for emergency surgery at 6:30am the following day. When they finally operated, the Dr. said the shattered bone and torn muscle looked like a puzzle! I was left w/ and still have 2 screws and 2 washers wrapped in wire to hold my shoulder together. post op I had a morphine drip...

A bad CH in the middle of the night makes that stretch of days and the resulting physical therapy seem like a day at the beach, and given the opportunity I would trade to do it over....

-Derrick

Title: Re: worst pain ???
Post by Sandy_C on Jul 22^nd, 2006, 12:01pm

Let's see.....

Two natural childbirths - nope
Three abdominal surgeries - nope
Four knee surgeries including one replacement - nope
One broken vertebrae & 7 compressed vertebrae - nope

Absolutely nothing in my life so far beats the pain of CH.

Sandy

Title: Re: worst pain ???
Post by kcopelin on Jul 22^nd, 2006, 11:39pm

Broken nose-collision with glass door....not even close
18 hours of labor (1st child)...nope
2 other deliveries...nope
ruptured appendicts...nope
armed robber sprayed me full on in face with pepper spray...nope
beaten severely by ex-boyfriend...nope

just nothing compares....and, yes, we do seem to be a bit accident prone, hmmm.
kathy

Title: Re: worst pain ???
Post by kevinpix on Jul 23^rd, 2006, 5:21pm

I have great news for you! I'm a 36 yr old male. I have been a clusterhead for over 4 yrs. now. Last year, I had trigenial noralsia, excuse my spelling, surgery. My doctor, Dr. Wayne Hurt, killed all of the nerves on my left side of my head, my cluster side. I'm a chronic clusterhead. Now, no pain, pills, or terror filled nights of agony. He is a Godsend! I do have fantom itches on my nose, though not bothsome. Half of my tongue, inside of mouth, and my eye are also numb. No big deal. I keep my eye moist with lubes over-the-counter. Very easy compared to the hell I was having to deal with. email me back and I'll answer any and all questions you may have. Good luck and Godbless!