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        Cluster Headache Help and Support >> Cluster Headache Specific >> when u get hit
        
(Message started by: chopmyheadoff on Jul 12^th, 2006, 2:36pm)

Title: when u get hit
Post by chopmyheadoff on Jul 12^th, 2006, 2:36pm

iv just been reading through the other posts again and iv just realised how glad i am that there are others the same as me.

Not at all that im glad someone else is suffering, but before i was diagnosed 2 weeks ago and found this site i thought i was going mad or going to die.

im a big bloke at 6'2 and im always at the gym and i cant tell you how much it hurt me and made me feel like a freak when i would be "dancing" round my bedroom on my hands and knees screaming and drippling and squeezing my head night after night. i would occasionally have a few days off but not many.

i thought "you dont see anyone else doing this" - i thought i was being a girl thingy and was ashamed.

I felt like less of a man in front of my girlfriend and i felt guilty that she was "stuck" with me doing this.

i now have 2 saviours.

1. imigran - what a wonderful drug - i cried for 3 hours solid when i went to hospital having a 10+ and they gave me a shot of this stuff AND IT WORKED. I have suffered for 7 years with no need if id been diagnosed propperly.

2. THIS SITE - it is wonderful to share this nightmare with you wonderful people and my heart goes out to each and every one of you.

peace
Andrew

Title: Re: when u get hit
Post by E-Double on Jul 12^th, 2006, 2:48pm

You are dealing with what is known as one of the most painful afflictions known to medicine.

No need to feel weak or "girly"!!!!

Glad you are here and know that your experience is very similar to many

Title: Re: when u get hit
Post by Guiseppi on Jul 12^th, 2006, 2:55pm

Oh believe me, I understand! Finding this site was to say the least, a life changing event. Just not having to explain myself is an incredible experience. Welcome, hope you continue to find relief here.

Guiseppi

Title: Re: when u get hit
Post by Charlotte on Jul 12^th, 2006, 3:26pm

I agree. This site is a life saver.

Charlotte

Title: Re: when u get hit
Post by JeffB on Jul 12^th, 2006, 4:59pm

These are the best people on the the planet. I went years feeling the way you did. I was embarrased at first in front of my gf, but she was a rock for me. I would be balled up on the floor in my living room crying or dancin like a fool that was walking on a hot plate. Kinda funny now, knowing you're not alone with this dreaded disease, that there are so many others who suffer.
Sorry you had to find a place like this, but glad you did.
Jeff

Title: Re: when u get hit
Post by georgej on Jul 12^th, 2006, 5:22pm

No need to feel "girly" about taking hits and getting through them any way you can. You're dealing with something that's off the scale compared to what most human beings experience.

Next time you're in the gym, look around at all the meatwads whacking the metal around--those who talk about "working through the pain" or "no pain, no gain" or some such and think to yourself:

Could they take a hit?

Ha. It is to laugh. They'd whimper like whipped poodle puppies.

Regards,

George

Title: Re: when u get hit
Post by mynm156 on Jul 12^th, 2006, 6:30pm

Right on! I agree this site has saved me in sooooooooooo many ways I dont know where I would be today if it were not here!

MYNM156

Title: Re: when u get hit
Post by Charlotte on Jul 12^th, 2006, 6:39pm

...and what is wrong with being girly? I know according to myth, girls don't get this, but it is possible that we're tougher than you guys because we still have to do the laundry, deliver the kids to their practices, and get to work. Just kidding about being tough. No one is tough with these.

Besides, I like girly boys.

Charlotte

Title: Re: when u get hit
Post by chopmyheadoff on Jul 12^th, 2006, 6:48pm

on 07/12/06 at 18:39:11, Charlotte wrote:

..

Besides, I like girly boys.

Charlotte

:-* :-*

Title: Re: when u get hit
Post by LeLimey on Jul 12^th, 2006, 7:03pm

girly?
oh boy you're in the brown and tacky stuff now! LOL

Title: Re: when u get hit
Post by georgej on Jul 12^th, 2006, 7:43pm

on 07/12/06 at 19:03:33, LeLimey wrote:

girly?
oh boy you're in the brown and tacky stuff now! LOL

Yeah--haven't we already had this thread? ;;D

Title: Re: when u get hit
Post by chopmyheadoff on Jul 13^th, 2006, 2:23am

sorry - i missed a very important 3rd saviour from my list
that is DR.SILVER !!

he is the neurologist who saw me, diagnosed me in 5 minutes (after 7 years of misdiagnosis) and promptly introduced me to imigran which he TOLD my GP to prescribe in abundance.

I now have 12 jabs at home , waiting for my next cycle to start - and a repeat prescription for 12 refils that i can use whenever i like.

MY HERO :P 8) ;;D ;)

Title: Re: when u get hit
Post by BarbaraD on Jul 13^th, 2006, 7:27am

One word of advice. GET THE REFILL filled every time you can for the NEXT hit. If you're on insurance, it probably won't cover many, so most people stock up when out of cycle.

Glad you found some relief.

Hugs BD

Title: Re: when u get hit
Post by Summerbabe on Jul 13^th, 2006, 8:03am

:) Hello and welcome , this pain is the most debilitating ever...as far as feeling girly, good gracious, you will find the strongest of folks here , unbearable excruiating pain...we deal with it... we have too, stay strong, we are here...we understand, You are not alone and consider yourself a Hercules along with the rest of us...all my best ,Summer 8)

Title: Re: when u get hit
Post by MorePower on Jul 13^th, 2006, 8:54am

I know exactly how ya feel brother.....its ok to cry.....
I do it all the time during and after attacks and I always cry for everyone in the world whom has the disease. I cry for each and everyone of you guys out here and pray for everyone of you too.

BTW....I love your name...Chop My head Off...priceless,lmao......

Title: Re: when u get hit
Post by chopmyheadoff on Jul 14^th, 2006, 2:46am

on 07/13/06 at 08:03:09, Summerbabe wrote:

why thank you summerbabez !! ::)

Title: Re: when u get hit
Post by sandie99 on Jul 14^th, 2006, 6:13am

Andrew,

welcome! :)

I'm so sorry that you suffer from ch, though. But I'm glad that you got the diagnosis (I recall very well the relief after I got mine in 2003, I've suffered since 2001) and proper treatment and found your way here. :)

You will always find support, advices & information right here, 24/7. :)

Best wishes & PFdays,
Sanna