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        Cluster Headache Help and Support >> Cluster Headache Specific >> cluster headache video
        
(Message started by: chopmyheadoff on Jul 11^th, 2006, 3:45am)

Title: cluster headache video
Post by chopmyheadoff on Jul 11^th, 2006, 3:45am

hi, sorry to waste a thread but i read somewhere a link to a site/video of someone experiencing a ch attack.

I would like to see this to see how it compares to how stupid i feel when im having one./

but i cant find the link for the life of me . .

does anyone know ?? i think he was called cluster chuck or something [smiley=huh.gif]

thanks in advance

Title: Re: cluster headache video
Post by LeLimey on Jul 11^th, 2006, 3:55am

Hiya Chop its here - about halfway down the page to the link http://www.clusterbusters.com

Title: Re: cluster headache video
Post by georgej on Jul 11^th, 2006, 10:11am

Gotta warn you, though--it's pretty hard to watch. It's enough to cause an "empathy-shadow".

George

Title: Re: cluster headache video
Post by chopmyheadoff on Jul 12^th, 2006, 2:11am

It sent shivers down my spine watching this.
Its the first time iv seen with my own eyes someone going through what i go through.
I must say, he does handle it quite well compared to me.
Do you know if this was a kip10 or not ??

If i made a video like that it would be like something out of a horror movie !!!

perhaps im just a pu$$y though !! :'(

Title: Re: cluster headache video
Post by jenrob2006 on Jul 12^th, 2006, 3:03pm

I almost threw up when I watch it. I think it is more that I could understand the pain and hated seeing someone else in the same pain.

Title: Re: cluster headache video
Post by E-Double on Jul 12^th, 2006, 3:11pm

on 07/12/06 at 15:03:10, jenrob2006 wrote:

I almost threw up when I watch it. I think it is more that I could understand the pain and hated seeing someone else in the same pain.

Yup!

Believe me it is harder in person, however we all kinda got used to it.
Just help those who want to be helped and leave the ones who like isolation alone!

Much Love!

Title: Re: cluster headache video
Post by JeffB on Jul 12^th, 2006, 7:13pm

God bless that guy who was helping him. I showed that to my co-workers, they've seen me in the begining, then I usually run to my van to suffer there. They all just looked at me with this look of sadness. How can a human take so much pain and not die?

Title: Re: cluster headache video
Post by rhino on Jul 12^th, 2006, 10:54pm

That video blew me away,, I got all misty eyed. I have never met another person who has Cluster Headaches,,
then to see that guy and know his pain.
Randy :'(

Title: Re: cluster headache video
Post by unsolved1 on Jul 12^th, 2006, 11:04pm

I'm sure that Chuck said it was about a KIP 7 that he experienced during the filming of that attack.

Chuck, correct me if I'm wrong :-X

UNsolved

Damn shame he can't use Imitrex jabs. I feel for him. May the beast have mercy on his soul !!
Goodluck Chuck - Hang in there ! :)

Title: Re: cluster headache video
Post by Weatherman on Jul 13^th, 2006, 1:16am

I too was deeply moved by the video. I decided to show it to some of my coworkers at my TV station and they completely freeked out. They knew I had bad headaches and they have heard me describe them but I've always run and hid when I got hit at work.

Now they've seen for themselves what ch is all about and it has affected some of them in a major way. They treat me different now and ask how I'm doing often. Our health reporter has even expressed some interest in doing a ch story. I'm pushing her hard to do it. More awareness is always a good thing!

Who would I need to talk to to get permission to use that video if indeed we do a story?

Thanks
Doug

Title: Re: cluster headache video
Post by chopmyheadoff on Jul 13^th, 2006, 2:20am

does anybody know if a tv program/documentry has ever been made on CH.

If not - why not ?

i think it would do the world of good to open peoples eyes to this frightening pain and hopefully help doctors diagnose the ailment more easily.

thus helping other people who are being fobbed off by their doctors

Title: Re: cluster headache video
Post by Summerbabe on Jul 13^th, 2006, 8:08am

Warning.... I cried for chuck, as far as looking stupid , no not possible...acceptance with this disease is a haul...trust us here, we know and we are here...please dont be down on yourself , its an extreme ordeal. The worst pain ever. :-/ its a battle

Title: Re: cluster headache video
Post by unsolved1 on Jul 13^th, 2006, 3:21pm

on 07/13/06 at 01:16:27, Weatherman wrote:

Who would I need to talk to to get permission to use that video if indeed we do a story?

Justin D Ott

Not sure how to get ahold of him now. I believe he has taken down or moved his website. PinkFloyd (Bob W) from ClusterBusters would probably know how to contact him since they do have the video on their site.

UNsolved

Title: Re: cluster headache video
Post by JeffB on Jul 13^th, 2006, 3:44pm

Weatherman, thats a great idea about doing a segment on ch's.
I wonder how most people would act after viewing it?

Title: Re: cluster headache video
Post by Weatherman on Jul 13^th, 2006, 7:51pm

My hope would be that maybe some undiagnosed people would see the story and finally be able to find a good doc and get help. We would of course direct people to sites like this one as well for all the info they need.

Also hope that those that don't have ch would develop a better understanding of not just the disease but how it affects those of us that suffer from it....physcally, mentally and emotionally.

Thanks for the info unsolved. I'll try to get in touch with him!

Well See
Doug