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        Cluster Headache Help and Support >> Cluster Headache Specific >> Something to think about!
        
(Message started by: Dixiedelight on Jul 9^th, 2006, 4:57pm)

Title: Something to think about!
Post by Dixiedelight on Jul 9^th, 2006, 4:57pm

My Mother had Migraines all her life. Bad ones. I have had clusters. Well my Mom is close to 80 now and her headaches stopped a few years back. Well Moms eyes started having what I would call floaters. She went to the eye doctor about them and he told her she was having migraines and that instead of having pain in her head she was having floaters. That they mask themself the older people get. If thats true I wonder what clusters will mask as.

I feel like I am out growing clusters, or maybe I am just wishing, but I thought that could be possiable for clusters as well.

Elaine here just thought I would share that thought.

Title: Re: Something to think about!
Post by marlinsfan on Jul 9^th, 2006, 7:13pm

I don't think we'll outgrow them. I deal with them because I know what I have has no cure, and I have live life one day at a time, one hit at a time.

If we DO outgrow them, though, then that's one thing to look forward to in our old age.......

Title: Re: Something to think about!
Post by seasoned_vet. on Jul 9^th, 2006, 7:39pm

I am totally convinced that we outgrow them. At least I am outgrowing them. My ch patern started when I was 17, no change until I turned 37, then I actually skipped one entire summer!!!(total bliss!) The beast returned this summer, but he returned as a real weakling!! I firmly believe that I am outgrowing them. My mother also had migrains from her late teens till her early forties, she quit having them when she was diagnosed with highblood pressure, and put on medication. she is 80 now. AThink positive, WE ALL will outgrow them!!!!!! Tuck

Title: Re: Something to think about!
Post by Kris_in_SJ on Jul 9^th, 2006, 8:11pm

It sure would be nice if we outgrew them. Mine didn't start until I was 42 though ... wonder how old I'll have to be when I finally outgrow them?

Kris

Title: Re: Something to think about!
Post by georgej on Jul 9^th, 2006, 8:34pm

on 07/09/06 at 16:57:23, Dixiedelight wrote:

Well Moms eyes started having what I would call floaters. She went to the eye doctor about them and he told her she was having migraines and that instead of having pain in her head she was having floaters. That they mask themself the older people get. If thats true I wonder what clusters will mask as.

I think we'll probably end up extruding cabbages from our ears.
;;D ;;D

Geez, I don't know how old we have to get....I've had 'em for forty years, and I'm in my early fifties now. The cycles have been getting farther and farther apart, though.

What happens, happens I guess.

Best regards,

George

Title: Re: Something to think about!
Post by Dixiedelight on Jul 10^th, 2006, 6:56am

I should have wrote more, for the people who don't know me. I was chronic for 20 years. I worked and I raised four children. The doctors, meds I went though WAS UNREAL. I had my teeth pulled, I even had shock treatment because no one knew what they were. In the last few years my clusters have changed. I went from chronic to eposidic, from a cycle every six months then once a year and then every two years. The cycles is shorter now.
I rack my brain trying to figure out what changed to make all this happen. I had chemo that seem to change things. Then later I stopped taking all meds, except for o2. I wish I knew what happen so I could share it.
Knowing as many people as I do who had clusters and are now pain free for years. I am thinking that they do go away at some point. I am 52 and feeling better than I did at 20 !
I think a lot of you will find relieve in the middle ages and golden years.

Title: Re: Something to think about!
Post by floridian on Jul 10^th, 2006, 11:40am

Not buying what that doctor said. Floaters are totally different from migraines. Floaters are caused by debris inside the eye, and tend to increase with age. Blinking spots in the vision are associated with migraines and changes in the optical centers of the brain. But I have never seen anything suggesting that occular migraine morphs into floaters or are masked as floaters.

Title: Re: Something to think about!
Post by Sandy_C on Jul 10^th, 2006, 3:50pm

Well, I sure doubt if I'll be around long enough to "outgrow" my CH I didn't start this garbage until I was 53 years old!

Oh, and I've had "floaters" in my eyes for years and years - I get occasional classic ocular migranes - have for years, and still do. I agree with Flo - no connection.

Sandy

Title: Re: Something to think about!
Post by Margi on Jul 10^th, 2006, 3:56pm

on 07/10/06 at 11:40:41, floridian wrote:

Flo, I think this could just be a terminology confusion here. The visual disturbance in migraine is called, as you know, "phosphenes" and you're the one who taught me that it's actually happening in the brain and not in the eye - which is why it doesn't go away when you close your eyes. My mom, however, was a migrainer too in her younger years, but she always referred to the phosphene stage of migraine as 'having the floaters', or 'having the shimmeries'. I know what you're saying though. Technically, floaters is a different thing than phosphenes.

Hey, TS - sure nice to see you back here and I love your new screen name too! I thought that might be you over in the recipe thread. ;) :-*

Title: Re: Something to think about!
Post by Charlotte on Jul 10^th, 2006, 4:00pm

I hope to make it to my 90's, but I don't expect to outgrow clusters. Migraines, maybe.

Charlotte

ps I get floaters - little black lines & specs & the optometrist says they're normal. Gotten them since I was a teenager. I also get aura with migraine - visual disturbance where the upper left quarant of both eyes goes wacky, lights, & stuff. The two things don't resemble each other at all.

Title: Re: Something to think about!
Post by frizzle on Jul 11^th, 2006, 6:58am

Quote:

My mother also had migrains from her late teens till her early forties, she quit having them when she was diagnosed with highblood pressure, and put on medication. she is 80 now. AThink positive, WE ALL will outgrow them!!!!!! Tuck

Maybe because of the blood pressure meds she was on?

Title: Re: Something to think about!
Post by rocklobster on Jul 11^th, 2006, 3:26pm

I'm 55, had clusters since I was 15, and each episode, every 18 months, is worse than the one before, which was worse than the one before, etc.

Title: Re: Something to think about!
Post by ShaneM on Jul 11^th, 2006, 3:50pm

I am still hoping to find out that I am part of some super evolved part of the human gene pool that can shoot lasers out of there eyes and that CH is just a real bad side effect. Sorry, just felt like being a little wise today! [smiley=laugh.gif]

Hope you all have a PF one...

Shane

Title: Re: Something to think about!
Post by SophiaK on Jul 11^th, 2006, 5:38pm

It's my understanding that people that get floaters are usually myopic. I'm one of those people. Eventually they become opaque. At least that's my experience. I know a number of people that get floaters that don't have head pain.

Title: Re: Something to think about!
Post by sailpappy on Jul 11^th, 2006, 6:04pm

;;D ;;D I'm still waiting to out grow the clusters myself, doubt that will happen soon thought, started at age 17/18 and at 55 I am still having the same old chronic pattern, Floaters sounds like something that happens to me with regular headaches sith visual distortion from tearing and a feeling that my visual range is warpping out for 10-15 seconds at a time.
I will look it up and see!
Hi Margie!! Long time no hear!! Pappy

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