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Cluster Headache Help and Support >> Cluster Headache Specific >> Ding Dong the Witch is Dead
(Message started by: georgej on Jul 4th, 2006, 12:55am)

Title: Ding Dong the Witch is Dead
Post by georgej on Jul 4th, 2006, 12:55am
Please excuse the newbie a little euphoria....

My latest CH cycle officially ended.  I've gone seven days without a hit or a shadow, and I just passed the beer test.  More significantly, I can FEEL that the &*%^& thing is gone now.  

I calculate that this is my 75th cluster headache cycle for a lifetime total of 2250 headaches.  Give or take.  Sheesh.  Is that depressing or what?

Makes no nevermind, though.  I'm always really, really up when the cycle's over.  If the pattern continues, I should be in remission for three years.  Maybe longer, since I'm older.  We'll see.

In any case, no more cluster rituals for a while.  I've got a whole coping mechanism I've developed over time.  Maybe I'll talk about it another time.  As a side benefit, I've learned a lot of weird skills over the years--for example, I can increase or decrease the blood flow to my hands, voluntarily, either right or left or both.  As a result of micromanaging the movement of muscles in my face and scalp, I can flare one nostril or both, and wriggle each ear independently.  Not much use, of course, but it's endlessly amusing to small children.

Last couple of times I had a cycle, I monitored this site and lurked, but then stayed away when I was out of cycle.  This time I might stick around for a while unless everybody gets sick of me.  Could be I might be able to help someone.  I've sure had plenty of experience with the CH.  Forty years episodic.

Regards,

George

Title: Re: Ding Dong the Witch is Dead
Post by unsolved1 on Jul 4th, 2006, 1:09am

on 07/04/06 at 00:55:09, georgej wrote:
I calculate that this is my 75th cluster headache cycle for a lifetime total of 2250 headaches.



on 07/04/06 at 00:55:09, georgej wrote:
If the pattern continues, I should be in remission for three years.  Maybe longer, since I'm older.


That means .... if you started having them at birth, you'd be about 150 years old now. Right ??  [smiley=huh.gif] ;;D

Glad to hear that your cycle has ended. Hopefully it's over for good !

Goodluck & PF Wishes

UNsolved

Title: Re: Ding Dong the Witch is Dead
Post by georgej on Jul 4th, 2006, 1:12am
Hi Unsolved,

Naw, it means they came closer together when I was younger.  Every six months for twenty years, then every year for about ten.   :D :D

Best,

George

Title: Re: Ding Dong the Witch is Dead
Post by chopmyheadoff on Jul 12th, 2006, 2:43am

on 07/04/06 at 01:12:58, georgej wrote:
a beer , no thanks just set my head on fire


pmsl  [smiley=laugh.gif]

lol
lol


Title: Re: Ding Dong the Witch is Dead
Post by sandie99 on Jul 12th, 2006, 9:47am
Cheesh, that's a lot of headaches you've had, George! :o I've had loads of HAs during my life, but I haven't counted them that clearly.

Wishing you PF time,
Sanna

Title: Re: Ding Dong the Witch is Dead
Post by georgej on Jul 12th, 2006, 11:24am
Thanks for your replies, everyone.

Still going strong here, so it's really over.  Not a blip.

The ganglion lump that forms at the base of my neck near the spine has disappeared too--that usually doesn't go away until the cycle's been over for two weeks or more.

Yeah, I'm good.  Now all I've got to worry about is the fact that my daughter just got her freshly-minted learner's permit to drive yesterday...  

:o

Best,

George

Title: Re: Ding Dong the Witch is Dead
Post by Guiseppi on Jul 12th, 2006, 2:58pm
Cluster headaches......teen aged driver............damn, tough call! Mine are both grown up now, still have fond memories of the white knuckle learners permit days! Congrats on the cycle end!

Guiseppi



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