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        Cluster Headache Help and Support >> Cluster Headache Specific >> Went to ryan Headache clinic
        
(Message started by: She-ra_mommy on Jun 20^th, 2006, 4:45pm)

Title: Went to ryan Headache clinic
Post by She-ra_mommy on Jun 20^th, 2006, 4:45pm

I am starting IV histamin (sorry world wordiest speller) 3 days a week. I will start O2 thearpy as soon a y tank can be delivered. I tried dhe nothing happened, Indomicacin did nothing have same headache for 14 weeks. They feel it a form of cluster. I should notice some majoir change in 2 week from first treatment if it is going to work that was Monday.

If this does not work They are doing A spinal tap.

Title: Re: Went to ryan Headache clinic
Post by Linda_Howell on Jun 20^th, 2006, 5:05pm

Quote:

If this does not work They are doing A spinal tap.

I've got to ask. What would they be doing a spinal tap for?

Linda

Title: Re: Went to ryan Headache clinic
Post by She-ra_mommy on Jun 20^th, 2006, 6:46pm

THey feel there might be to much spinal fluid and might need a shunt but not sure. but normal are not working.

Title: Re: Went to ryan Headache clinic
Post by BarbaraD on Jun 20^th, 2006, 8:41pm

Linda -- they did a spinal tap on me before I was diagnosed -- to rule out something else. Along with about 2 million other tests before they gave me to "good" news that it was CH!

Get the O2 going She-r . It's been a lifesaver for so many of us. You might also want to pick up a few cans of Red Bull. Quick fix along with the O2.

Hope something works soon....

Hugs BD

Title: Re: Went to ryan Headache clinic
Post by wip5150 on Jun 20^th, 2006, 8:59pm

Yikes - a Spinal tap (not the band) sounds horrible and painful. I'm keeping my fingers crossed that when the 02 is delivered, it will in turn deliver you from pain.

Title: Re: Went to ryan Headache clinic
Post by MJ on Jun 21^st, 2006, 1:51am

Spinal headaches present differently than CH and a spinal tap may cause spinal headaches.

http://www.mayoclinic.com/health/spinal-headaches/DS00643

If a spinal tap is being used they would be looking for something else not clusters. I havent been here lately and must have missed something.

http://www.mayoclinic.com/health/lumbar-puncture/HQ01414

Title: Re: Went to ryan Headache clinic
Post by chewy on Jun 21^st, 2006, 6:26am

Sounds like they know their stuff.

http://headaches.about.com/library/profiles/bl-ryan-re.htm?terms=executive+center