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        Cluster Headache Help and Support >> Cluster Headache Specific >> Life goes on
        
(Message started by: sailpappy on May 21^st, 2006, 4:27am)

Title: Life goes on
Post by sailpappy on May 21^st, 2006, 4:27am

Here I sit after the 4th cluster tonight, as usual I have given up on sleep and come to check and see who else is still with me?
I made a trip to Florida to pick up my Daughter and the newest Grandson, only to have fate step in and ruin it all again. After a grueling 12 hour drive with my trusty Ice Bag and 6 visits from Mr. Cluster we were preparing to order some diner and out of no where my daughter had a GrandMall seizure, fell dropping Baby John and stopped breathing for 5 minutes.
I would live in constant pain if only she didn't have to go through this now in her life.
John Michael is fine, but I will never get ovr thinking she had passed away on that floor.
After so much Drama with the clusters in our lives, a reality check snaps you right out of self pity mode when its presented like this was!
She's OK now, a one time event so far, I just started breathing normally again myself. OMG---back to the shower for #5
http://home.comcast.net/~jhallahan2/wsb/media/299782/site1254_t.JPG

Title: Re: Life goes on
Post by Jasmyn on May 21^st, 2006, 5:08am

Pappy, firstly what a precious and beautiful grandson you have and I am so glad that he is fine after the fall.

My sister also has GrandMall epilepsy and it is very scary because after years and years she now usually end up in a coma for 2 - 3 days at a time after a seizure. What I know is that my CH cannot compare to a life like that and that I am the lucky one. If I could I would also rather have constant pain than have her go through this condition. Any excitement or stress out of the norm results in a seizure for her.

I'm sorry your daughter had to go through this and you as a parent.

Hang in there and keep on rowing, life is not always what we want but our kids stay a blessing and our condition keeps us humble.

Hope you get a break soon. [smiley=hug.gif]

Title: Re: Life goes on
Post by E-Double on May 21^st, 2006, 7:05am

Best of luck!

Title: Re: Life goes on
Post by BobG on May 21^st, 2006, 11:30am

Sorry to hear about your daughter (and you) having to
go through that experience. Glad everthing worked out
OK.
Good looking tyke you have there. He takes a really big picture! :)