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        Cluster Headache Help and Support >> Cluster Headache Specific >> I have had it…… with this CH!!
        
(Message started by: wildhaus on May 5^th, 2006, 10:09am)

Title: I have had it…… with this CH!!
Post by wildhaus on May 5^th, 2006, 10:09am

Hi

I got my appointment (on Wednesday) for the next (and hope) last meeting with the
Anaesthesiologist / pain specialist the neurologist and the Physiatrist / pain specialist, to try and determen the next Steps of my preventive treatment, as the GLOA seems to Have stopped “working” on me…….
To be honest I have had it…… with this CH, the doctors, and the meds,
Can’t I have my life back?

Michael

Title: Re: I have had it…… with this CH!!
Post by nani on May 5^th, 2006, 10:17am

:(

[smiley=hug.gif]
Stay strong, Michael. hugs and pain free wishes, nani

Title: Re: I have had it…… with this CH!!
Post by Mattrf on May 5^th, 2006, 10:19am

Mike I know just how you feel.
I am five months in on this cycle now and was just about suicidal.
I decided to call a headache specialist that I got off the list from this site and he
rediagnosed me with SUNCT instead of CH, they are similar and have a lot of the same symptoms except the pain spikes are short lived and you normally get hit during the day.
He has done blood work on me and had me get an MRI and MRA and seems to be very interested in getting me some help and it has made me feel a bit better.
Only problem is one of the causes for SUNCT is a brain tumor so I get to find out Tuesday if that is what I have.
All I can say but is I feel your pain and completely understand and am here for you as everyone here has been for me. Hang in there and maybe see a new doctor to get a different view.
Hope you get some relief soon.
Matt

Title: Re: I have had it…… with this CH!!
Post by Jasmyn on May 5^th, 2006, 6:21pm

A big hug to you Michael. [smiley=hug.gif]

Meds sometimes stop working and it sucks! We are here for you, hang tough buddy.

Title: Re: I have had it…… with this CH!!
Post by I Cant Dance on May 5^th, 2006, 7:23pm

Mike...dude...stay in the game!

Title: Re: I have had it…… with this
Post by Jonny on May 5^th, 2006, 7:30pm

on 05/05/06 at 10:09:54, wildhaus wrote:

To be honest I have had it…… with this CH, the doctors, and the meds,
Can’t I have my life back?

Nope.....Not till the beast is done with you!

Till then, you have to be strong for not only you, but, your family!

If ever you want to talk about a looooong stretch of pain,just email me.

Title: Re: I have had it…… with this CH!!
Post by Charlotte on May 5^th, 2006, 8:22pm

I asked my husband one time, "Can't I just have a normal life?"

He said, "I guess not, not right now."

Hang in there.

Charlotte

Title: Re: I have had it…… with this CH!!
Post by sandie99 on May 8^th, 2006, 2:28am

I'm glad that you told us, Michael... [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

There are many treatments to try, so don't give up, okay? I hope that your docs will find just the ticket to PF time.

((((((((((Vibes)))))))))) are on their way to you. I hope that the beast will let you live normal life asap!

Best wishes & PFdays,
Sanna

Title: Re: I have had it…… with this CH!!
Post by GuitarBill on May 9^th, 2006, 3:04am

Hey Michael, we all feel for you man.
I've posted before about doctors....try to find a headache specialist and let them know you ain't jokin' around. Most doctors (in my experiece hate to say) are either ignorant or insensitive...the first thing I asked each doctor I went to was "have you ever had a headache even close to migraine...or experienced your head exploding from the inside out" they all said no, which means they can never understand remotely. But the doctor I see now is very compassionate, and has helped me alot. So keep trying buddy. I know there's one who can help you...and feel for you! Trying all the meds sucks too but once you find the stuff that works man, it's more than worth it (as you know...)
Keep us informed...

Title: Re: I have had it…… with this CH!!
Post by wildhaus on May 10^th, 2006, 2:49pm

Hi
Just got back from my appointment with the 4 wise man (and women), and guess what, all the new I new before from this board, but still we staked the way for my preventive treatment, and next to it some psychological help (witch is good) and anew avenue (for me) try hypnoses to reduce the anxiety.... will give it a shot....
But still I do really think I have had it with the doctors, and the meds! :-/

Michael

Title: Re: I have had it…… with this CH!!
Post by thebbz on May 10^th, 2006, 8:22pm

Hang in there haus!
Dope sucks, doctors suck, CH sucks...so what's new.
4th month this episode. I could'nt agree with ya more.
I am really stubborn though.
Keep up the good fight
Down you demon bastard.. [smiley=hammer.gif]
jb