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Cluster Headache Help and Support >> Cluster Headache Specific >> eye spasms
(Message started by: Gena on May 4th, 2006, 9:33am)

Title: eye spasms
Post by Gena on May 4th, 2006, 9:33am
Yesterday was a really bad day for me. I had rolling hits starting about noon. They were all low kips, but by the end of the day I was wiped out. I got up this morning and I have had eye spasms all day with shadows and the usual tenderness.

My question I have never had the eye spasm thing before has anyone else? If so what did you do?

Title: Re: eye spasms
Post by floridian on May 4th, 2006, 1:58pm
I get a twitch or tic in the eye on the affected side before and during a cycle - for me it is a sign that the beast is on the way.

Haven't found anything specific for it - preventives are the best bet, anti-inflammatories might help some.

Title: Re: eye spasms
Post by thomas on May 4th, 2006, 2:11pm
Thanks Floridian, makes sense to me.  ( I get it too, but didn't have any help to offer.)

Title: Re: eye spasms
Post by BarbaraD on May 4th, 2006, 5:43pm
Mine does the twitch periodically. Used to do it regularly then just quit. Go figure. It bothered other people (like the ones sitting across from me) more than it did me. I just got used to it.

Hugs BD

Title: Re: eye spasms
Post by Gena on May 4th, 2006, 5:50pm
If it were just occasionally that would be one thing. It has been all day now and it is getting to the point of painful! The only time that it has stopped is the 2x’s when I have been getting hit today

Title: Re: eye spasms
Post by Redd715 on May 4th, 2006, 5:57pm
Jody's eye will twitch for some time before many of his hits, but not all of them.  I'll get it sometimes but not everytime.  Never thought to do anything about it, I'd almost think the "getting painful" part would have more to do with the irritated Trig nerve itself?


Title: Re: eye spasms
Post by Charlotte on May 4th, 2006, 6:34pm
I get them.  It annoys me, and I try to ignore them.

Charlotte

Title: Re: eye spasms
Post by BlueMeanie on May 4th, 2006, 7:06pm
Hi girl,

I get those eye spasm/twitches on the CH side every cycle. They NEVER hurt though, just annoying as hell.

I get so used to it happening, don't realize i'm doing it until the wife tells me to stop (she thinks I do it on purpose).  [smiley=laugh.gif]

Title: Re: eye spasms
Post by Drew_Va on May 4th, 2006, 7:22pm
I get the eye tics too...but only in the worst headaches.

Hang in there!

PFDs

Title: Re: eye spasms
Post by Chillrmn1 on May 4th, 2006, 8:04pm
Get 'em too at begining of cycle and they ARE annoying as hell. I haven't found anything to stop 'em.

PF times to all.

Title: Re: eye spasms
Post by ArCane on May 5th, 2006, 12:54pm
Mine does it.  Seems to happen right before a cycle is to begin.  It feels like a mini spasm or something.  Its annoying (no pain) but Ive gotten used to it.  Have gotten some looks from people though if they are looking at me when it happens.  It makes me look crazy I think.  Maybe I am  [smiley=laugh.gif]

Title: Re: eye spasms
Post by Jasmyn on May 5th, 2006, 6:11pm

on 05/04/06 at 13:58:22, floridian wrote:
I get a twitch or tic in the eye on the affected side before and during a cycle - for me it is a sign that the beast is on the way.


Ditto

Hang in there, hope tomorrow is a better day. [smiley=hug.gif]

Title: Re: eye spasms
Post by I Cant Dance on May 5th, 2006, 7:22pm
I get a twitchy eye quite often.  Very weird, especially when running to cope with a hit.  Like the pain isn't enough, right...lol.

Title: Re: eye spasms
Post by Gena on May 5th, 2006, 8:30pm
thanks everybody :-*

I just never had them before, and their gone now [smiley=laugh.gif]

next time I guess I will know won't I ::)

Title: Re: eye spasms
Post by erickthered on Aug 5th, 2006, 1:08am
Its funny, I never thought of it, but now that you mention it, I get them too right before the "Beast" comes knocking at the door.  :-[

Title: Re: eye spasms
Post by georgej on Aug 5th, 2006, 1:26am
Blepherospasm.  (I only know because I looked it up a few weeks ago for just this reason).

I get eye twitches before and after a cycle.  Doesn't hurt, but it's annoying.  

Get this, though--I don't get them on the headache side, but the other side.  Is that weird or what?

Regards,

George

Title: Re: eye spasms
Post by wildhaus on Aug 5th, 2006, 6:09am
I get them at times…. my pain therapist (an anaesthesiologist) told me he can just offer a simple remedy that might work…. it helps me at times….. an infusion of camomile tea……  luke warm put on a pad over the eye it does relax a bit and loosens the tension……  try it can not hurt you..... only do good....
it doesn’t work for me during hits as I dislike "hot" stuff other then a "too“ hot shower  close to my head.....

have a wonderfull weekend and PF wishes

Michael

Title: Re: eye spasms
Post by serendipity on Aug 5th, 2006, 12:49pm
Don't know if this will help, since the eye twitches are related to CHs, but I've always heard that tonic water stops eye twitching.

Too bad we can't throw a little gin in there for good measure, huh?   ;)

Title: Re: eye spasms
Post by NONI on Aug 7th, 2006, 6:24pm
That's funny so to speak ,,,georgej cause I get them on both sides but more on the opposite side recently.

Noni



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