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Title: No One Believes Me.... Post by Carolinagirl on May 2nd, 2006, 7:38pm Hi Everyone, I'm new here. I've had cluster headaches for over 13 years now. I didn't know that is what they were until about 5 years ago. I was always told they were migraines, until a doctor actually saw me in the throws of a bad one. He called out the name cluster headache and told me I was the first woman he had seen with one. Imitrex was my salvation for years. It worked great, but lately it has not been doing the trick. Today I went back to my internist. I don't think he has a clue as to what a cluster headache is. I mean he tries to understand and all, but he really doesn't get it! He asked me what I wanted, what medication "did I find on the Internet." I just don't know what to say think or do anymore. I am in the middle of a cluster season right now, that's what I call the 3 month period I get them for. Anyhow I am expecting to wake up any day now with that familiar pain. I've had 9 such nights in the last 6 weeks. The doctor offered me Topomax, Relpax, Inderal, Verapamil, Flova and host of other drugs. I want healing! I took the prescriptions for Verapamil and Flova. I fear it will be more money down the drain. I am really dreading this next attack and am thankful that I found this site. I'll try not to vent so much but rather sit back and hopefully gain some knowledge from all of you! |
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Title: Re: No One Believes Me.... Post by E-Double on May 2nd, 2006, 7:56pm This is a great resource to know like the back of your hand...print it out and give it to the doc http://www.brightok.net/~mnjday/chtherapy.pdf It will present the appropriate treatments that you should seek and your doctor should know!!! If you want an abortive with the least amount of side-effects O2 should not only be requested but demanded from your doctor!!! http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm I have used Zyprexa as an abortive and have found it to work (for me) as fast as Imitrex and without the "hangover" http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=medsarchive2005;action=display;num=1120904753 If you do have the "typical" wake you up in the middle of the night horrors then.... Melatonin might be very helpful Many of us (myself included) have found that taking 6-9mg (some take more) about a 1/2 hour to 45minutes prior to bed have Knocked out the night visits and can finally get sleep. With the exception of 10-12 times.....I have slept through the night since August '04 (went chronic in March 05).....Still get hit during the day but my overall quality of life is better because I am not as exhausted all the time. Some people report that it seems to make them worse....The fact is that we are all different and respond differently to everything therefore it may or may not... The one thing I will tell you as far as my experience was that I had to stick with it...The first night I took melatonin, I was awoken with a doozy only I was too groggy to find my O2 .....It got a lot better for me....I then slept through the night but would get slammed about 1/2 hour after waking up....kinda like knocking the beast off schedule.....then again I was peaking and this cycle has been all over the place with no real pattern. I stayed with melatonin and have had decent sleep overall. (Maybe I should start folowing my own advice again hahahaha!) It may help and it is natural with not too many sideeffects....also ask your doctor b/c if there are any side effects or contraindications...I think they have to do with mild depression..... Like I said we are all different. Best wishes, good luck & stay as positive as you can!!!! Eric |
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Title: Re: No One Believes Me.... Post by Jonny on May 2nd, 2006, 8:06pm on 05/02/06 at 19:38:16, Carolinagirl wrote:
Do you mean you have had 9 HA's in six weeks? If so, you are lucky. Good luck....hope you find what you need! |
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Title: Re: No One Believes Me.... Post by Kris_in_SJ on May 2nd, 2006, 8:07pm Welcome, Eric gave you all of it (good job as usual EE). Follow his links, print them out and get thee to a headache specialist. Meantime, to get you through till then, share the info with your internist. At least you can get a script for Oxygen which helps many here. Keep us informed. Hugs, Kris |
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Title: Re: No One Believes Me.... Post by Carolinagirl on May 2nd, 2006, 8:20pm Thanks for the quick responses. I am already printing Eric information off. I am going to drop a copy by the doctor's office this week. I am also going to look into getting some Melatonin, I've got to stop by the drugstore tomorrow anyway to get the new meds. I wanted to ask the doctor about the oxygen today and simply forgot. I guess I should mention that when I drop off the information. I know he'll prescribe it. To further clarify what I said earlier about the 9 headaches. Those were 9 days/night of headaches. Mine usually last for 3-4 hours ease up a bit, then come back on strong. The cycle usually lasts for 24 hours. Then I'm just wiped out. My neck usually hurts, before, during and up to 3 days after an attack. Its hurting now, that is how I know another headache is iminent. I get them all year round but have the worst bouts from March thru June and Sept. thru Dec. Some times I think the waiting is the hardest part....then the thing hits! I do all things I saw you guys testify too on the website and in posts. I bang my head, press on my eyeball and beg God to just let me die. I sometimes take too much medicine that I know is not going to work and end up sick to my stomach on top of it all. I told the doctor this today and if he didn't know me better he probably would have thought I was crazy. Anyhow one question for you guys.....do you get incredibly hungry when the headaches are over? I find myself famished the day after a headache and always thought this was unusual. |
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Title: Re: No One Believes Me.... Post by Charlotte on May 2nd, 2006, 8:29pm Sometimes I get very hungry. Anyway, Inderal might cut down your pain level by 20% or so but if you have a relationship, avoid it because it makes one's libido disappear. I just started taking 5 mg Paxil. It raises my pain tolerance about 20%. It be better to take it off the top but I'm happy to get rid of 20% anywhere. I'm reading about Kudzu. A lot of people here have had encouraging results with it. Good luck. Charlotte ps I'm sorry you're taking too much medicine that doesn't work. It is very hard waiting. |
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Title: Re: No One Believes Me.... Post by BarbaraD on May 2nd, 2006, 8:44pm Try Black Coffee or Red Bull at the FIRST sign of the Headache -- that along with O2 will sometimes abort them... (at least for me). The caffiene is a vaso constrictor.... I ditto the Melatonin. But ya gotta stick with it long enough for it to get in your system. I got off it twice before I stuck with it the third time and lo and behold it worked the third time. Am still on it and sleeping thru the night like a baby. Just don't lay there when you wake up in the mornings - get up and get to the coffee pot immediately (at least I know to do that cause I wake with a shadow of things to come if I don't stop it right then). Be sure to get the right mask for the O2. The nose thingy don't work -- get a non-rebreather mask. And make sure the O2 regulator is at least 15 liters. let us know how you're doing..... Hugs BD |
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Title: Re: No One Believes Me.... Post by jmorgan52 on May 3rd, 2006, 8:15am Carolinagirl You mention that Imitrex always worked in the past for you. Were you using the pills, nasal spray, or the injections? The injections work really well for lots of people here, but the pills or nasal spray is less effective for many. From your description of 9 CH episodes in 6 weeks lasting 4 hours then easing up and then coming back over a 24 hour period sounds like you might be suffering from Cluster Migraines? In general CH sufferers seems to get 2 or many more CH attacks most days for 6-12 weeks I get both CH and Migraine My CH attacks last 1 to 3 hours and then suddenly vanish for a few hours of totally PF time then just as suddenly start again like clockwork 2am, 6am 11 am 2pm 6pm, 11pm. I also get "shadows" which is like low level annoying CH pain/effects without the excrutiating pain, especially when my cycle has been going for many weeks. My Migraines can last all day or even several days. The Migraine pain ebbs and flows throughout the day from unbearable (just the same as CH!) and sometimes vomit inducing to just about tolerable, and I also sometimes get a stiff sore neck from all the tension. Both types respond within 10 minutes to the IMITREX INJECTION. It might also be worth logging your daily headache patterns in a diary to help your Dr assess the best treatment. John |
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Title: Re: No One Believes Me.... Post by Carolinagirl on May 3rd, 2006, 7:24pm Thanks to all of you for all your responses! You guys are sending me off on all kinds of new Internet searchs. I am going to try the melatonin it can't hurt. I am willing to try anything at this point. I spoke to a doctor I work for today about the oxygen and he said I might have success with it, but my insurance most likely will not cover it, so I guess I need to find out the cost. Where do you get the mask you speak of? Cluster Migraines? I've heard the term but can't seem to find a site that differentiates it in a way I understand. When I get a headache I sometimes know ahead if time, as my neck starts to ache the day before, sometimes it doesn't. Then I will usually awaken between 4:30 and 5:30 and it feels like someone is jabbing an icepick in my left eye. At this point I can't think straight. I keep my Imitrex injection next to the bed and usually my husband realizes whats happening and will either give me a shot or get me to do it. Sometimes I fight it, I don't know why, it must be because I'm in so much pain I can't think straight. If the shot works it works quickly. If not the pain persists. Like I said an icepick is the best way I can describe it, like someone is jamming it in my eye, twisting it and pulling it out and jamming it back in again. Always on the left side. My eye tears and swells. My nose runs. After the initial shock I can't sit still. I cannot lay down as its worse. I try to sit up. I like there to be some noise in the background...tv...radio...something. Sometimes I end up going to the doctor's office, I hate doing this. They give me demerol which does nothing to the headache, but about an hour afterwards I am able to fall asleep. Its not a good sleep but I sleep until the next wave hits and it wakes me up. The whole thing starts over again. I can't sit still, I pace the room, bang my head...whatever until I can fall asleep again. As I am sure you know it sucks. If what is happening to me is not a cluster headache I cannot imagine how you all make it through. I am thankful in knowing that in 24 hours it will be over until the next one hits, which in my case can be a week to a month. I have in the past recorded it all in a diary. I can sometimes predict when they will come, seasonal and time changes. I have also noticed a pattern in relationship to barometric pressure. One of you mentioned Paxil. I have not taken it but have tried Lexapro, Celexa and Zoloft. They induced a headache. It seems anything I take that messes with the brains chemistry causes me to get one, including red wine. I can't even finish a glass without one setting in. Thanks for all your help and maybe someday I will be as knowledgeable as you guys and can help someone else! Nancy |
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Title: Re: No One Believes Me.... Post by Charlotte on May 3rd, 2006, 8:11pm That was me who said Paxil. It just happens to work that way for me in a low dose. If you already know that kind of thing makes a headache, then avoid it like the plague. Clusters and migraines are two different headaches but many of us get both. Good luck. Do lots of reading. Charlotte |
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Title: Re: No One Believes Me.... Post by Lynn91 on May 4th, 2006, 1:01pm When I told the doctor it is cluster headaches - I was accused of drug seeking, being a hypochondriac, being asked if I am depressed, if I am pregnant, that is is perimenopause or menopause (I am almost 50). I cannot!! get prescription meds - no one will prescribe - so the pain is making me very depressed - because unless you have had it - you cannot understand it! This attitude of doctors is making me so incredibly angry! I actually rarely go to a doctor - I am the tough it out kind of person - I do not want to go from doctor to doctor while they perform pregnancy tests, and such - because I am just trying to get attention! Not to mention I cannot afford to keep being laughed at and poo poohed by doctors. |
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Title: Re: No One Believes Me.... Post by seasonalboomer on May 4th, 2006, 1:40pm on 05/04/06 at 13:01:02, Lynn91 wrote:
Go to a reputable nuerologist if you beieve you have CH. Also, since pain-killers are very rarely of much use at all for CH, the idea that anyone would be looking for pain-killers for CH may tip off a doctor as an issue. The prescription meds used for CH are not the kind that any of us really would want to abuse anyway. If you go to a GP and ask for anything for the pain they're gonig to give you the look -- so go to a neurologist. Scott |
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Title: Re: No One Believes Me.... Post by Cendie on May 6th, 2006, 11:52am Hey Carolina, I'm in carolina too, the western nc part. I have migraine and cluster, the difference between the two is the stabbing, and what you do when it hurts. I live with and manage migraine, there is no managing cluster, it owns you. Cluster is so utterly different in intensity. Cluster is frantic, where migraine requires calm. With migraine I can be still, and that training, has helped a little bit in the lesser cluster attacks, Sometimes I can breathe through the little ones, but normal to bad ones make ya move, shake, pace, bang, scream, go crazy, and when they're over, there's exhaustion, and maybe some anger and self pity too. I think the the term "Cluster Migraine" is a misnomer. These are two very different animals. I believe there is a relationship between the two, the scientists just haven't figured it out yet. I was reading posts about heredity and cluster, and while most ppl that posted didn't have a family history of cluster, there was usually a family member with migraine. I used to think my cycles were caused by an underlying migraine that was spawning the clusters, now I think it's the other way around. For a person who is prone to migraine, the stress and anxiety of dealing with cluster will bring on migraines, worrying about when the cycle will start, worrying when the next one will hit, how bad it will be, what event/date you'll have to cancel next, worrying about meds, when the cycle will end, etc. Hope that helps to clarify. Good Luck =) Cendie |
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Title: Re: No One Believes Me.... Post by chewy on May 6th, 2006, 12:57pm Quote:
Absolutely and positively false! You need to read up before making statements like that. There are many ways to manage clusters. |
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Title: Re: No One Believes Me.... Post by Jonny on May 6th, 2006, 1:16pm on 05/06/06 at 11:52:08, Cendie wrote:
That is totally uninformed bullshit....if that were the case how do you think I lived through 30 years chronic, huh? I managed it!!!...thats how ::) |
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Title: Re: No One Believes Me.... Post by Cendie on May 6th, 2006, 1:38pm Semantics perhaps? Manage: To direct or control the use of; handle. Maybe it's just me, haven't found that magic bullet to MANAGE it all. You think that's why I am here? Just trying to hang on til the demon DECIDES to go away, I don't decide when it goes away, IT decides. I am not in control of it, IT is in control of me, IT decides what I take and when I take it, IT decides when and how I sleep, IT decides when and what I eat, IT decides whether or not I can keep my plans, IT decides... who are you kidding.. cluster.. managable... yeah right. Nothing like a positive attitude to rain on reality. Just responding to a post, not interested in being chastised about my correct use of grammar. Cheers |
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Title: Re: No One Believes Me.... Post by chewy on May 6th, 2006, 5:07pm Quote:
Then thats your choice. Dont be insuating that there are no choices because there are. Plenty of them and all successful to manage CH to one degree or another. You obviously have a lot of reading and learning to do about clusters. Its all right here on this site. Take some time and read a little. |
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Title: Re: No One Believes Me.... Post by BarbaraD on May 6th, 2006, 5:51pm Cendie, sorry you're hurting, but Jonny and Don are chronic and so am I. We had to learn to live with CH so we're a little touchy about managing them. We all live a "fairly" normal life with CH, but it wasn't an overnight thing. We had to 'decide" to live with them. Episodics, in a way, have it harder because they only hit periodically. Us chronics get used to (if there's any getting used to being in pain) the hits and learn to deal with them in the best way we can. We learn what works for us (and everyone has their own magic bullet to deal with these things). What we're trying to say is, it takes a lot of trial and error to find something that works for YOU, but most of us have been thru years of trying different things until we hit on the "right" something. And there's no guarantee that tomorrow our magic bullet will still be working. Wishing you PFDAN Hugs BD |
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Title: Re: No One Believes Me.... Post by chewy on May 6th, 2006, 5:56pm Quote:
Actually Barb I have always been episodic. 30 years worth and I manage them well. |
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Title: Re: No One Believes Me.... Post by BarbaraD on May 6th, 2006, 5:57pm Sorry Don, thought you were chronic -- guess it's because you're such a grouch all the time ;;D Love ya anyhow..... Hugs BD |
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Title: Re: No One Believes Me.... Post by chewy on May 6th, 2006, 9:55pm Quote:
LMAO! The ex Property Manager where I work used to call me "crabby ball sack". I liked her. ;) |
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Title: Re: No One Believes Me.... Post by Cendie on May 6th, 2006, 11:10pm on 05/06/06 at 17:07:35, chewy wrote:
Yeah... ITS ALL MY CHOICE.... I CHOOSE CLUSTER.... I LOVE IT.. OH BABY.. HIT ME ONE MORE TIME. OH YEAH, HARDER, MORE, I WANNA SCREAM. I never said anything about choices, never insinuated there weren't choices, hell, I'm on several different choices all day long, I've been on every choice they've handed me for over 10 years. These "choices" don't give me my life back, don't do damned thing for my waning sanity. Have you ever seen pain in color?!? Where this "hot poker" analogy is actually many, too many to count, hot pokers that hit around your eye simultaneously, randomly, rhythmically, and most importantly frantically.. each one is a different color. It's quite the show. Haven't found a way to manage that, but I'm sure the "next" $20 pill will be the one, I'm keeping my options open!! I don't need the stress of some self-righteous bitch to chastise me. Perhaps your condition is such that your life isn't affected by it. So go on and manage yourself, everything is smiles, sunshine and puppydogs in clusterland. |
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Title: Re: No One Believes Me.... Post by chewy on May 6th, 2006, 11:15pm Quote:
Nope. So you should shut the fuck up and read for awhile. |
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Title: Re: No One Believes Me.... Post by mynm156 on May 7th, 2006, 8:49am on 05/04/06 at 13:01:02, Lynn91 wrote:
Oh YEAH Imitrex and Verapimil are such GREAT highs! I Sure cant get enough of them! |
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Title: Re: No One Believes Me.... Post by CrystalAnn on May 7th, 2006, 8:29pm RE: When I told the doctor it is cluster headaches - I was accused of drug seeking I have been there!! [smiley=laugh.gif] I have had a few Doctors ask me what was my drug of choice and when I say Imitrex wow! It seems as if they shut right up!! |
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Title: Re: No One Believes Me.... Post by BarbaraD on May 8th, 2006, 6:58am Back when these things first started for me, the docs (before I was diagnosed) gave me demerol for the pain. They never accused me of drug seeking - just gave the darn stuff to me (didn't help). After I was diagnosed, all of a sudden, I'm seeking narcs. Good grief! I've gotten really hostile in several docs offices and told them they were F(*&ing lunitics who needed to brush up on what the hell to do for CH! (I get a little assertative at times - bet you hadn't noticed.) The only time I've asked for pain meds is when I pulled a groin muscle and THEN I DEMANDED it! Had the doc by the throat telling him I wanted something strong and NOW!!! He didn't argue with me. But over the years we've had people come to this MB asking for narcs (trolls mostly) thinking this is how we treat our malady. I guess people can't understand that the pain we go thru isn't helped by narcs (most of the time for most of us) and that we need vaso-constrictors to stop it. People are just geared to think that if you hurt you take pain meds. When talking to the doc - just tell them that you're NOT wanting pain killers - because they don't work for your CH! Sometimes you have to be assertative to get thru to them. But if you go armed with the things that DO work, it goes a lot easier. Hugs BD |
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Title: Re: No One Believes Me.... Post by seasonalboomer on May 10th, 2006, 3:07pm on 05/06/06 at 13:38:32, Cendie wrote:
I understand what you are saying about the feeling of powerlessness over CH and that the concept of "managing" CH doesn't allow one to feel as though there is anything that can be done. I think the strong responses you are getting from those of us who feel that to give "the beast" this acknowledgement of its power, or to blindly give up my ability to manage my life inspite of CH, is counter to how I can live my life. Yeah, I've got CH and yes my life is affected. And I'll tell you there are moments and probably periods of great despair associated with the presence of CH. But, my life was changed the day I actively engaged in managing my CH. So, for me, I won't give the CH my life. It's mine and it just happens to reside in my skull. As for the rest of my life, there are accommodations for sure. But I need to at least live by the idea that I'm in charge and I can do things to improve my life with CH. I'm not being critical, really. I used to feel as you have communicated your feelings. For many, to live other than feeling as though they have at least a shot at managing these f&*^kers is like throwing in the towel. Best regards, Scott |
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Title: Re: No One Believes Me.... Post by unsolved1 on May 10th, 2006, 4:55pm on 05/03/06 at 19:24:46, Carolinagirl wrote:
I'll go ahead and diagnose you here and now for free. You don't have clusters. At least not any cluster headache I've ever read about. Who else here has had a 24 hour cluster attack ? Anybody ??? I don't think so. ::) You would've blown your head clean off by now!! At least most of us would've ... am I right ?? I do feel for you though. Hope you find something that helps. Maybe even some of the same meds that help us may help you. But, it's not clusters you have ... IMO Anybody ?? PF Wishes Unsolved PS. Be glad girl. Many of us are used to getting major attacks regularly between 3 and 8 times a day, everyday, every night ... for months ... and in some cases ... for years !!! In any case, I'll still say a prayer for you tonight. :) |
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Title: Re: No One Believes Me.... Post by Margi on May 10th, 2006, 5:59pm wholeheartedly agree with you, Unsolved. MAYBE migraine but sure not cluster. And, "cluster migraine" ... kinda makes the hair on the back of my neck stand up when I hear that term. You can have clusters or migraines or clusters AND migraines. They are different from each other. It's like saying 'oh he's wearing a black white shirt.' It just scares me how many misdiagnoses are being handed out now and how much of these cluster meds are being doled out to people who are innocently accepting of an uneducated doctor. Wonder what the long term effects will be of all these poor souls who are grossly overmedicated I just finished reading another thread of someone posting during a 10. Just makes me shake my head. Good post, Unsolved. :( |
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Title: Re: No One Believes Me.... Post by Cendie on May 10th, 2006, 6:37pm on 05/03/06 at 19:24:46, Carolinagirl wrote:
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Title: Re: No One Believes Me.... Post by Cathi04 on May 10th, 2006, 6:39pm I think you might want to reread the post. Carolinagirl states that, in a 24 hr period, it ramps up, then eases off, then ramps up once again. Carolinagirl, are you taking anything now at all?? Perhaps over the counter?? is it possible you are getting rebounds? Just a thought......... Cathi |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 7:28pm on 05/06/06 at 13:38:32, Cendie wrote:
Please tell me how long you have had CH, if you were diagnosed by a neuro and if your episodic or chronic? on 05/06/06 at 23:10:44, Cendie wrote:
LMMFAO!.....you walk the fuck in here and make that statement?.......You should really curb that fucking attitude seeing that new people show up here daily, looking for help. They dont need to see your negative ass spewing bull-shit. My bet is that you are the first to be thrown out of every party you attend! |
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Title: Re: No One Believes Me.... Post by Cendie on May 10th, 2006, 7:40pm Go fuck yourself you wretched thingy =) |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 7:47pm on 05/10/06 at 19:40:42, Cendie wrote:
Thats the reply I knew I would get. What are you doing here? (I added the "." in the quote to show what didnt make by the censore) |
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Title: Re: No One Believes Me.... Post by chewy on May 10th, 2006, 7:49pm Troll-ette |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 7:55pm 14 posts and telling someone they are a C**t......this aint no one we want here, thats for damn sure!! |
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Title: Re: No One Believes Me.... Post by Cendie on May 10th, 2006, 7:57pm BOTH of you BITCHES need to get laid.. GET THE FUCK OFF ME... I DONT NEED YOUR FUCKING BULLSHIT GOT IT!?!? |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 8:01pm Hi Burt....why do you fuck with us? Your a sad man! Please stop emailing me things to post....aint gonna happen, Loser! |
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Title: Re: No One Believes Me.... Post by Grandma_Sweet_Boy on May 10th, 2006, 8:03pm Oh Crap - not him again! Should have guessed. There's no way a respectable female would post that kind of crap. I say it's time to hit the delete button before it gets worse. |
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Title: Re: No One Believes Me.... Post by thebbz on May 10th, 2006, 8:06pm Cendie, Hold the phone. This condition will knock you down again and again. You simply need to get back up. At one time I had lost a bitchin job and wife partially due to CH. I cannot blame CH. It does not rule anything..ever. Get off the pity potty, quit calling names these people know what they are talking about. Never let CH dictate anything. No symantics, no compromise. >:( Coffee and O2 rule. Trex never leave home without it. Get to a neuro. Hope all the best to you jb |
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Title: Re: No One Believes Me.... Post by Cendie on May 10th, 2006, 8:10pm I AM JUST TRYING TO SURVIVE YOU FUCKING BASTARD LEAVE ME ALONE I DO NOT NEED YOUR FUCKING SHIT |
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Title: Re: No One Believes Me.... Post by BobG on May 10th, 2006, 8:11pm LMAO [smiley=laugh.gif]. Bet it really stinks under that rock where Cendie lives. |
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Title: Re: No One Believes Me.... Post by Charlotte on May 10th, 2006, 8:12pm Cendie, Please don't continue this. Take a breath and come back later. Charlotte |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 8:13pm on 05/10/06 at 20:10:11, Cendie wrote:
Thats Burt...All caps...nuff said. |
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Title: Re: No One Believes Me.... Post by Cendie on May 10th, 2006, 8:15pm FUCK YOU ALL |
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Title: Re: No One Believes Me.... Post by Charlotte on May 10th, 2006, 8:17pm Cendie, That's not necessary. You can be here without being mad at everyone. Everyone is not abusing you. Charlotte |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 8:19pm http://im1.shutterfly.com/procserv/47b6db31b3127cce89131449fd1d00000016108AZM2bNk5bM6 |
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Title: Re: No One Believes Me.... Post by BobG on May 10th, 2006, 8:21pm on 05/10/06 at 20:17:55, Charlotte wrote:
True. But, he's abusing all of us. I feel so cheap and used. [smiley=bigcry.gif] |
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Title: Re: No One Believes Me.... Post by medic1852 on May 10th, 2006, 8:29pm on 05/10/06 at 20:10:11, Cendie wrote:
Well if you want to be left alone and do not need this stuff as you put it. Why are you here? Wouldnt it be easy to leave if you dont like it here? Just my two cents. Rodger |
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Title: Re: No One Believes Me.... Post by E-Double on May 10th, 2006, 8:33pm Wrong on this one fellas(re:dogdude), however this one is definitely needs help elsewhere. Cendie, 1)Get a grip 2)Ask for help you will get it 3)Get a grip 4)Never debate when in pain 5)Get a grip 6)Help other in need by providing support or useful information 7)Get a grip 8)Never gonna make friends by attacking or antagonizing people who have been helping people here for many years. 9)Get a grip 10) Smile! It's only pain. |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 8:44pm It seems to me E-Double, that you backed Burt for weeks until he got real bad and then you didnt post for weeks. When DJ deleted him you came out posting again. Maybe its just me, but I read for hours everyday....is there a reason you know its not Burt?? |
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Title: Re: No One Believes Me.... Post by Charlotte on May 10th, 2006, 8:46pm Well, Johnny, the profile said she'd was new in 2003, I think, and a female. That was before the troll. It's too bad people get off on that stuff. I'd rather have jokes, and pictures, and moral support. I love you guys. Charlotte |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 8:49pm on 05/10/06 at 20:46:58, Charlotte wrote:
Thats a good point, I still dont like being called a wretched c.unt for asking how long she had CH. |
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Title: Re: No One Believes Me.... Post by Charlotte on May 10th, 2006, 8:50pm I'm sorry about that. I appreciate the questions. I don't know this other person, but you've always been good to me, and I didn't like seeing thebbz be abused either. Charlotte |
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Title: Re: No One Believes Me.... Post by thebbz on May 10th, 2006, 8:52pm Ya and all I said was nice stuff and now I have to go and #$%#$%^myself...I'll be right back this wont take long. [smiley=sgrin.gif] jb |
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Title: Re: No One Believes Me.... Post by E-Double on May 10th, 2006, 8:53pm on 05/10/06 at 20:44:35, Jonny wrote:
Why ya have to overlook the praise that was given to you? Peace |
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Title: Re: No One Believes Me.... Post by Charlotte on May 10th, 2006, 8:55pm E-double, I thought your post was good and it did make Cendie sign off. Maybe she will get a grip and come back later. I'm willing to give her another chance. Charlotte |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 8:56pm on 05/10/06 at 20:50:47, Charlotte wrote:
Why are you sorry? Edit to add:....Gotcha EX2 |
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Title: Re: No One Believes Me.... Post by Charlotte on May 10th, 2006, 8:58pm I'm sorry because the people here mean a lot to me. You have always been good to me. This site made all the difference in the world to me, and it can to others. Charlotte |
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Title: Re: No One Believes Me.... Post by thebbz on May 10th, 2006, 9:01pm ;) Ya Char dont be sorry...I am tougher than Hobo shit, and I just hope she is OK. Hey Eric [smiley=wave.gif] all the best jb |
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Title: Re: No One Believes Me.... Post by Jonny on May 10th, 2006, 9:21pm Im going to bed, will someone tell someone that when you ask them a question, you do not call the asker of a C-unt? Its nice to answer the question with a real answer. (Of all the things Ive been called, that was never one of them.....LMAO) |
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Title: Re: No One Believes Me.... Post by chewy on May 10th, 2006, 9:24pm Quote:
Yes it was. 8) |
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Title: Re: No One Believes Me.... Post by purpleydog on May 10th, 2006, 10:59pm on 05/10/06 at 20:33:27, E-Double wrote:
The pain ends. You've got to try to find a way to deal with this that you can live with. Life goes on. We know you're hurting, and there is all kinds of advice to be had here on how to deal with this. Once you get there, and find something that works for you, you will be able to deal with it better. The pain sucks, yes. But it's how you deal with it that's important, and will allow you to live a life with CH. Not a life ruled by the beast. Don't let him win!! He's just fucking with you. Doesn't mean you have to take that from him. And remember... the pain ends. You can't live in fear of the next hit. This is the hard part. It will come, then it will be over. Find something that works for you, and fight that bastard. Don't let him win. You are stronger than that!! |
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Title: Re: No One Believes Me.... Post by Linda_Howell on May 11th, 2006, 12:59am This crap is usually reserved for the General Board. Too bad it has to be here... where people come to get help and understanding. Cendie or whatever your name is...you need to leave, this area at least. I have never heard a woman talk the way you have here, and I have been around the block a few times. I'm embarrassed of my gender and I apologize to any newcommer who may see this thread. :-/ Linda |
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Title: Re: No One Believes Me.... Post by LeLimey on May 11th, 2006, 3:58am Cendie.. maybe you should try some evening primrose oil? I hear it works wonders for PMT.. Having said that everyone, I truly don't believe this is a female but I do think it's one of our little treasures in a new frock. I think this whole thread needs to go and fast and lets hope it doesn't hit Cendie on the semantics on the way out eh?! |
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Title: Re: No One Believes Me.... Post by CrystalAnn77 on May 11th, 2006, 9:03am Ok Oh my gosh I know I am new here may not have the right to say what I am about too but here it is! I agree why would a women with any respect for herself come on-line here or anywhere else and talk like trash I would never ever say th C word in public or anywhere else!! and may I ask who is Burt?? sorry if I offend anyone but I am not understanding all the neg stuff! Crystal Ann :-/ |
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Title: Re: No One Believes Me.... Post by Margi on May 11th, 2006, 10:19am on 05/10/06 at 18:39:55, Cathi04 wrote:
ever had a migraine? Didn't think so. Ever seen the visual differences between cluster pain and migraine pain? Didn't think so. JMorgan: "My Migraines can last all day or even several days. The Migraine pain ebbs and flows throughout the day from unbearable and sometimes vomit inducing to just about tolerable, and I also sometimes get a stiff sore neck from all the tension." Carolinagirl: "I am thankful in knowing that in 24 hours it will be over until the next one hits, which in my case can be a week to a month....I have also noticed a pattern in relationship to barometric pressure.... It seems anything I take that messes with the brains chemistry causes me to get one, including red wine. I can't even finish a glass without one setting in... Today I went back to my internist. I don't think he has a clue as to what a cluster headache is. ..... (sorry, but why WOULD an internist know the first thing about any type of headache??) Anyhow I am expecting to wake up any day now with that familiar pain. I've had 9 such nights in the last 6 weeks." My husband would be jumping for joy if he only had 9 clusters in 6 weeks. For me, that's classic migraine pattern. |
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Title: Re: No One Believes Me.... Post by jmorgan52 on May 13th, 2006, 10:27am on 05/10/06 at 17:59:17, Margi wrote:
Margi - Many people get Migraines once a week or every few days for months on end and then are totally Migraine free for very long periods - this in IMO is what Cluster Migraines are - they come in clusters! I do agree on your comments "I just finished reading another thread of someone posting during a 10" What a joke - anyone who can operate a computer and write sense on an a board like this must be very special I can't really function on any rational level during a 10 ::) |
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Title: Re: No One Believes Me.... Post by chewy on May 13th, 2006, 10:48am Quote:
Those levl 10 sinus head aches are a bitch. Only thing I can do with a computer at CH 10 is kick it. |
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Title: Re: No One Believes Me.... Post by Margi on May 13th, 2006, 5:04pm when I'm in the middle of a migraine, I become a total vampire, any shard of light is like holy water to the devil. No way in hell could I ever even sit upright and look at a monitor! JMorgan, yes, I do understand that terminology to describe migraine. A cluster of migraines. It's just a term that's been used here to describe cluster in the past and it really doesn't, IMO. Migraine can appear in clusters. But clusters aren't migraine. Sorry, I'm not explaining myself right, I know. But I did get your point, that's all I'm really trying to say. :) |
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