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        Cluster Headache Help and Support >> Cluster Headache Specific >> Anyone ever try this?
        
(Message started by: superhawk2300 on Mar 31^st, 2006, 5:35pm)

Title: Anyone ever try this?
Post by superhawk2300 on Mar 31^st, 2006, 5:35pm

This has worked for me before, but its use is limited to the circumstance.

Lately my attacks are coming later in the early morning, 5 am not 2 or 3 am. Today I felt it coming on and I simply got up and it aborted it. I didn't go back to bed as when I did it in the past the headache then comes.

Today I've had shadows all day, one strong enough to thinkthe start of the headache was coming on, but when I took my verapamil it went away.

Anyone esle simple get up when they feel shadows and have it abort a CH attack.

It is actually being awake and vertical, I've tried sleeping sitting straight up, so it isn;t just body position but actually being awake.

Why would this work sometimes and not others?

Title: Re: Anyone ever try this?
Post by Charlotte on Mar 31^st, 2006, 6:56pm

I don't think it helps me, but I do jump out of bed at a run.

Charlotte

Title: Re: Anyone ever try this?
Post by chewy on Mar 31^st, 2006, 7:16pm

Many times I've gotten up and started moving around to abort the attack. Sometimes works with some accupressure to the back of the neck.

Title: Re: Anyone ever try this?
Post by burnt-toast on Mar 31^st, 2006, 8:57pm

on 03/31/06 at 18:56:30, Charlotte wrote:

I don't think it helps me, but I do jump out of bed at a run.

Charlotte

I have found that moving around at the very first sign of an attack seems to sometimes abort it. Being asleep doesn't typicall lend itself to this technique because it seems attacks are too far along to abort this way.

So - I'm with Charlotte on this one - jump out of bed and run.

Tom

Title: Re: Anyone ever try this?
Post by superhawk2300 on Apr 1^st, 2006, 12:48am

Chewy - where on the back of the neck do you push?

Title: Re: Anyone ever try this?
Post by MJ on Apr 1^st, 2006, 1:50am

I think being mentally alert may be one of the best deterrents of CH.

However I get hit in cycles standing up, laying down, sleeping, walking, sitting, talking, laughing, standing on my head or doing anything else a human can do.
Regardless CH comes.

Title: Re: Anyone ever try this?
Post by mynm156 on Apr 2^nd, 2006, 12:23am

I have had a couple neuros tell me to try exercising hard at first sign of a cluster but I dont get any real warning. I get hit within seconds and it ramps up usually in about a min. I have tried it but shit when I am getting hammered I am banging my head jumping around almost and it never does seem to help. I have a pnching bad outside that I have tried and I can only go so long before I just cant take it.

I hope that it works more often for you in the future.

Good Vibes

MYNM156

Title: Re: Anyone ever try this?
Post by Kate in Oz on Apr 2^nd, 2006, 7:46am

Yep this sometimes works for me... it is what I think of as my 'rat in a maze' moments. :P Move about frantically doing housework, gardening, something!

Doesn't work everytime but its well worth a try!

Title: Re: Anyone ever try this?
Post by Mikey99 on Apr 2^nd, 2006, 3:26pm

Whenever I get up when I feel shadows, usually 4 or 5 am, if I lay back down it will definitely come on full force. If I stay up, it will abort but than it will start coming later in the morning. This is bad because when it does this around 9 or 10 am, I am on the job or in the street. Sometimes I rather just have it at 5am if it's coming anyway.

In the middle of my cycle even between headaches, I can't lay down for weeks until the cycle ends. I have to sleep in an upright position--- it's crazy!

Title: Re: Anyone ever try this?
Post by superhawk2300 on Apr 2^nd, 2006, 8:02pm

Mikey,

I;ve tried sleeping sitting up and it didn;t work. I am glad it does work for you though.

There is so much about this disorder that doesn't make sense, or works for some and not others - it is just f-in crazy.

Title: Re: Anyone ever try this?
Post by Mikey99 on Apr 2^nd, 2006, 9:53pm

Superhawk,

It's the only position that I can get in but it will only allow cat naps (an hour at most) here and there. It is truly enough to drive you nuts. It's amazing, I used to think that it was just me.

When I lay down, all the pressure just drops to that side of the head like a dagger and increases to the point that you have to jump right up. Then your neck is stiff from sitting up and.................uh

Trust me -- I know what you're feeling. Hope you get relief soon.

Title: Re: Anyone ever try this?
Post by seccsij on Apr 2^nd, 2006, 10:15pm

I, too can occasionally get relief by getting out of bed but, not every time. I DO find that if I trey to stay in bed when the demon 1st wakes me, I bring it on stronger and faster - I have to get STRAIGHT up when I wake up or I'm toast!

I have had a couple neuros tell me to try exercising hard at first sign of a cluster but I dont get any real warning

;;D
I have always been upset about exercise as I find it very hard to find a happy medium with CH. Laying around brings it on but ANY extra movement (swimming, stretching, walking, laughing, ((living :-/)) etc, makes pain rush my system. I still try but it's a real killer, every time!
I hope others have better luck with exercise, I am getting quite portly these days ;;D

wishing you all PF days AND nights!!!!!!