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        Cluster Headache Help and Support >> Cluster Headache Specific >> S.O.S. - UPDATED !!
        
(Message started by: unsolved1 on Mar 26^th, 2006, 8:34am)

Title: S.O.S. - UPDATED !!
Post by unsolved1 on Mar 26^th, 2006, 8:34am

"The seering pain still catches me off guard" ... You'd think after years of this, I'd be 'used to it' by now ... but the fact is, I can't stand the intense pain anymore. I can't stand it physically or mentally.

I've called my neuro's emergency # and I'm going back into the hospital again. I'll probably be in for days if not weeks.

The madness has to stop! Wish me luck.

UNsolved

Title: Re: S.O.S.
Post by Sean_C on Mar 26^th, 2006, 10:18am

Thats sour Mike [smiley=huh.gif] I've never gotten used to the pain either, I feel your pain bro.

Keep us posted bud, let us know how you make out.

Sean...............................

Mike check your pm's

Title: Re: S.O.S.
Post by SophiaK on Mar 26^th, 2006, 10:39am

We'll be praying for you and hope you'll be PF today.

Title: Re: S.O.S.
Post by kimmiedawn81 on Mar 26^th, 2006, 10:41am

I know how you feel. We never get used to the pain. Please feel better soon.

Title: Re: S.O.S.
Post by rapunzel on Mar 26^th, 2006, 11:36am

the pain is what prompted me to ask how y'all handle the mental part (other thread).

You don't "get used to" the pain. Each and every time is pure hell- but thankfully, here at this site, we have people who truly know what pain it is that we are referring to. No more of that desperate alone feeling- or only having someone say"I know how you feel, I hate getting a headache". We all know that searing pain and the suffering that we go thru each time. It doesnt get any easier-how nice if it would just go numb, or be anywhere besides in our head/eye.

It IS hell. You have my sympathies, and understanding.
Good luck, I hope that you find some relief and that the drs can help.

Kim

Title: Re: S.O.S.
Post by Karla on Mar 26^th, 2006, 1:34pm

God be with you and may you find the relief you are looking for. You will continue to be in my prayers. So sorry you are going through all this.

Title: Re: S.O.S.
Post by mynm156 on Mar 26^th, 2006, 1:40pm

Good Luck Bro!!!

We TOO know how you feel ! Keep us posted!!

GOOD VIBES!!!!!

MYNM156

Title: Re: S.O.S.
Post by kcopelin on Mar 26^th, 2006, 7:31pm

Mike,
What do they plan on doing with you on an inpatient basis? Will is be trying different meds, or knocking you out? Will be praying that you get a break from the pain.
Thought are with you-let us know how things work out. My experience withinpatient was not pleasant-repeated shots -thus a very sore butt-and still getting hit. Hopr your is 1,000 times more productive!
PFDAN
Kathy

Title: Re: S.O.S.
Post by Bethany1 on Mar 26^th, 2006, 8:37pm

Good luck Mike...

Sending up loads of prayers for ya.

hang in there...

Beth [smiley=hug.gif]

Title: Re: S.O.S.
Post by Grandma_Sweet_Boy on Mar 26^th, 2006, 8:41pm

Good luck Mike! So sorry to hear you're having this much trouble again. You sure could use a break.

Carol

Title: Re: S.O.S.
Post by thebbz on Mar 26^th, 2006, 8:46pm

Ow,Ow,Ow
Hope they can get you some relief.
jb

Title: Re: S.O.S.
Post by sandie99 on Mar 27^th, 2006, 2:37am

Good luck!
Lots of vibes & wishes for PF time are on your way. [smiley=hug.gif] I hope that you'll be PF soon!

Sanna

Title: Re: S.O.S.
Post by nani on Mar 28^th, 2006, 10:19am

:'(

>:( Dammit... I wish you'd get a permanent break.
Stay strong, Michael. I'm sending everything I've got your way.
hugs, nani

Title: Re: S.O.S.
Post by superhawk2300 on Mar 28^th, 2006, 4:43pm

So many people here have it so much worse that I do....

I don't know you but I am thinking about you and KNOW that I would take ONE of your attacks away and go through it myself for you, if I was able to help you be PF in a small way.

Title: Re: S.O.S.
Post by unsolved1 on Mar 31^st, 2006, 9:44pm

A quick update. I'm in Floyd Memorial Hospital. Been here for most of March. I've done everything ... Steriods, DHE, Pain meds, O2, Imitrex, etc. I've only had 1 major attack, and it was a WAMMY !! There were 2 nurses and 3 student nurses from Ivy Tech State College in Sllersburg, IN. They all witnessed a true KIP 10 ! I was SCREAMIN', Yellin', Cussin' praying for death, bangin my head on the bathroom sink. They gave me 125mg of Demerol IV and it did nothing! They finally gave me 3 mg of Imitrex which helped in 15 - 20 minutes. I think I freaked them all out. After it was over, I had a printout from OUCH .. THe "letter to collegues & friends" and THe "Kip Scale" and I gave it to them. I edumacated a whole class of nurses! ;;D

I gotta go. Be here til the 4th then going to visit Dr. Diamond on the 5th. I snuck onto a comp at the nurses station so I can't write back now. Thanks for the Letters Jill and Sean, I'll get with you as soon as I can!

Miss all of you ...
Don't forget me!

Mike
AKA
UNsolved

Title: Re: S.O.S. - UPDATED !!
Post by MJ on Apr 1^st, 2006, 2:01am

Be well Mike and best of luck.

I think we all get caught off gaurd no matter how many hits and how many years. The mental part is the tough part.

125mg demerol for hard CH is kinda like giving a horse an aspirin.

MJ

Title: Re: S.O.S. - UPDATED !!
Post by Kris_in_SJ on Apr 1^st, 2006, 8:00pm

Hang in, Michael!

You know there's not one of us here that's not rooting for you. I'm with Nani ... sending all I have your way!

Hugs,

Kris

Title: Re: S.O.S. - UPDATED !!
Post by Kate in Oz on Apr 2^nd, 2006, 7:51am

Ditto to what Kris said.

Thinking of you and hope that you get some blessed, long term relief soon.

All the best Mike

Title: Re: S.O.S. - UPDATED !!
Post by marlinsfan on Apr 2^nd, 2006, 2:00pm

Hang in there mike. We're praying for you.

Title: Re: S.O.S. - UPDATED !!
Post by Sandy_C on Apr 2^nd, 2006, 2:48pm

Hang on, Mike. Hoping things get better for you. But, if there's a silver lining around your cloud, you did edumucated a bunch of nurses! This can only help others, because now, maybe, just maybe, one of those pretty little girls will remember what she saw and know how to help.

Wishing you PF

Sandy

Title: Re: S.O.S. - UPDATED !!
Post by dejay on Apr 2^nd, 2006, 4:26pm

Hang in there Mike. I haven't had an attack in weeks, started cutting back on verapamil yesterday and between that and reading your post don't know if I'm more scared or grateful.

dejay

Title: Re: S.O.S. - UPDATED !!
Post by Mr.YL on Apr 2^nd, 2006, 5:12pm

remember who you are and know that it will pass... I know it is tough though we are here for you and you know that we know. Please take care ... Mr.YL

Title: Re: S.O.S. - UPDATED !!
Post by nani on Apr 5^th, 2006, 10:57pm

You're still in my thoughts and prayers, Michael. Check in when you can. hugs, nani

Title: Re: S.O.S. - UPDATED !!
Post by Jasmyn on Apr 6^th, 2006, 2:15am

You hang in there Mike and I hope they'll give you something that will give you some relief soon. [smiley=hug.gif]

Title: Re: S.O.S. - UPDATED !!
Post by unsolved1 on Apr 11^th, 2006, 4:32pm

After 26 days in 2 different hospitals, I'm no better. I've had 3 major attacks so far today. They're sayin' i'm in "Triptan rebound" mode ... but what am I to do ... it's truley the only thing that helps. I can't stop using it, not even with massive pain meds. I'm closing in on the end of my rope.

And if that's not enough stress, my pyschotic sister is pissed off at me and came over to my house while I was in the hospital and trashed my computer. I'm going to try and salvage the hard drive and memory sticks, the rest is garbage. Needless to say, I won't be checking in as much for awhile.

Thanks for the well wishes. I'll miss reading all the posts. I'll check in when I can.

PF wishes everyone
UNsolved