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        Cluster Headache Help and Support >> Cluster Headache Specific >> asking advice from fellow chronics
        
(Message started by: Charlotte on Mar 17^th, 2006, 4:06pm)

Title: asking advice from fellow chronics
Post by Charlotte on Mar 17^th, 2006, 4:06pm

I have gone through the past few years tyring to ignore everything until I hit the wall, and this doesn't really work that well.

I have a few questions - what is the difference between a shadow and a kip 1-4 or a slient cluster? I always have counted those as pf but if they can be used to gauge what's coming and what to avoid or start doing then I would like to know more.

I don't have the internet at home so I don't have as much time to search the threads as I'd like. If someone could explain or link topic here for me, I'd greatly appreciate it.

Also, I have an adversion to meds but they do ease it some. Does not taking meds make a person go chronic?

Around the time I became chronic, I had a bad experience with Verapamil where I got slammed with hit after hit after hit until I stopped taking it, but that could have just been the end stage of the cycle. Since I took it the whole cycle, I had no comparison.

Depakote worked for the early part of a cycle but the end pain levels and frequency were unbearable. I had a blood test and was informed that I had just the right amount in my blood and it was working right. That was on the 2nd day of 5 days at kip 8-9. So I stopped that also.

Thank you for your help. I will check in later.

I also wanted to apologize for the hit and run nature of my posting. It's just that I have access for 15 minutes or an hour at a time. I plan to get the internet at home but have to get a better computer. Mine is only good for homework printing.

Title: Re: asking advice from fellow chronics
Post by Ghost on Mar 17^th, 2006, 5:45pm

Check your PM's.

I hope this helps but as I say there this is how I judge for me, also everyone sees it differently.

Mike

Title: .Re: asking advice from fellow chronics
Post by Linda_Howell on Mar 17^th, 2006, 9:55pm

Charlotte, We will meet in Sacramento next week-end but let me answer a few of your questions.

Quote:

what is the difference between a shadow and a kip 1-4

A shadpw lasts and lasts. A Kip 1-4 goes on to become more. rapidly.

Quote:

Does not taking meds make a person go chronic?

No. No one knows what makes one go chronic but it isn't that.

Hope that helped Char;otte...you can ask BobPahlow the rest of any questions you have in Sacramento. ;)

Linda

Title: Re: asking advice from fellow chronics
Post by Charlotte on Mar 20^th, 2006, 1:45pm

I will be there from about 2:00 to about 5:00 pm.

Thank you for your patience.

Thanks, Charlotte