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        Cluster Headache Help and Support >> Cluster Headache Specific >> has anyone heard of chronic paroxysmal hemicrania?
        
(Message started by: srichards on Feb 7^th, 2006, 10:38pm)

Title: has anyone heard of chronic paroxysmal hemicrania?
Post by srichards on Feb 7^th, 2006, 10:38pm

I am still trying to figure out what my head pain is. The dr keeps saying that it is Migraines. But being that I have had many many migraines - I can definately say these are NOT migraines. They have now tried 6 diferent migraine medications all which either do nothing or make my headache worse. I am starting to get so frustrated, since I get this pain off and on all day every day, and nothign works to get rid of it. Then tonight I came across chronic paroxysmal hemicrania - which sounds like maybe this could be it. I posted below earlier with what goes on with my headaches. I just wish the doctors would listen to what I am telling them instead of getting out their prescription pad and just giving me some oher medication that does not work.

Title: Re: has anyone heard of chronic paroxysmal hemicra
Post by E-Double on Feb 7^th, 2006, 10:47pm

If so........you can ask doctor for a trial of indomethacin.

paroxysmal hemicrania will be near 100% responsive to it!!!

Indo. is essentially advil on crack haha

Seriously!

It is a super potent NSAID and will help and you will know relatively quickly.

It helps with a few other HA types as well.

E

PS Where do you describe your HA's?

Title: Re: has anyone heard of chronic paroxysmal hemicra
Post by Kris_in_SJ on Feb 8^th, 2006, 7:52pm

Ditto to Eric. Indo has been proven to help with CPH. Research, print it out and take it to your doc.

Hugs,

Kris

Title: my original post
Post by srichards on Feb 8^th, 2006, 9:25pm

My original post is down about 23 posts from this one.

Title: Re: has anyone heard of chronic paroxysmal hemicra
Post by E-Double on Feb 8^th, 2006, 9:33pm

It doesn't sound like paroxysmal hemicrania either because there are far to few attacks.

Get back to a headache specialist!!!!!!!!

U could still inquire about indomethacin since it works for quite a few HA types.

Good luck!

E